One of my patients eventually had to have her husband admitted to memory care. He was falling, he was angry, he outweighed her by 50 pounds and he was incontinent. When he fell, she could not get him up.
She went to our hospital Grief Group and came to see me, angry.
“They said he’s still alive!” she snarls. “I got mad and said, no, my husband is gone! He just left his body!”
“I’m so sorry.” I say. “I am sorry that they don’t understand.”
“I’m selling his stuff.” she says. “I don’t have any use for Ham Radio equipment. And HE doesn’t EITHER, now.”
She stomps out. I am sure she cried too.
That is how I think of Alzheimer’s. Neurons burning out from the present to the past. When the person can no longer talk, they are close. Then they are in the womb and stop eating.
Let them go, let them go, god bless them. Where ever they may be. You may search the wide world over but your memory person is free….
Why are the roses caged, you ask? What did they do? Nothing, they are being protected. I found that rose and transplanted it years ago, but our deer eat the buds every year. This is the first time that it has bloomed in the 21 years I have lived in this hours. Isn’t it beautiful?
I am listening to this:
I wrote this poem today. This is one of the poems where I have no idea where it will go when I start writing it. I start writing about judgement and it never ever goes where I expect. The poems go where I want to go in my deepest heart, in my soul. I am never where the poem is, the poems show me the way….. Then I try to go there. And it can take years….
I am being judged and watched
I have no issue with the Beloved
it’s the humans I don’t like
I twist people’s words but not with malice
when the antibodies are up it is hard to communicate hard to explain it is hard just to survive and I might be focused on survival first and comforting the people around me second
can you blame me?
how near to death have you passed? and how often?
first pneumonia heart rate 135 when I stood up
my doctor and I could not understand it
my doctor partners thought I was lying in 2003
second pneumonia after my sister’s death which was bad enough but the legal morass that she had set up with her daughter as the center
pitting me and her daughter’s birth father and my father against all the PhDs in the maternal family smart, smart, smart yet emotionally stupid
my niece is not an inheritance to be passed to whom my sister wants
she reluctantly came home and the myth endures that this is an injustice
third pneumonia one year after I find my father dead triggered by grief and the outdated will and the mess he leaves
and I don’t even get sued about the will for another year
I do not care if you want to believe what you want to believe it isn’t true and it hurt
and I learn to let go
with the fourth pneumonia
I see the liars surrounding me downvoting yes, it does matter except that one that I trusted that mentored me
has lied all along
that hurts too
let it go let it go let it go
and I let it go
each pneumonia is a time of change creativity I am lonely and sick and not trusting
as I improve slowly, slowly
I wander garage sales estate sales
and find things things that are beautiful things that enhance my joy
at the start of covid I was so down I was so sad I wanted to lie in the street and give up
the Beloved sent a spirit he says he is no angel
I see angels bright and dark after all they all fall
just as humans do
we all fall we all fall down
try to look perfect try to look virtuous tell yourself that you are good
that is the biggest lie of all
the bad parts of your spirit locked in the basement of your soul howl howl and want to be freed
and if one gets out and you reject her or him
he will return with nine friends yes that is what the bible says
she will return with nine friends
he/she MONSTER will free the others
and you will do bad things you will be terrible you will hurt people while you try to contain while you try to lock away while you try to chain your monsters your evil your self
let them go let the monsters go they are howling I hear them all the time when I meet you when I speak to you the monsters howl at me begging to be loved
yes, they want to be loved and I love them
but if I mention them
you get that look of horror
someone sees me someone sees my evil someone sees what I hide
I can’t help it raised in alcohol neglect and lies on my own as soon as I can walk
but I can’t walk away at nine months
so I find other escapes words songs books poetry rhymes numbers
and my sister when she is born
I do all the mothering
that I have longed for
even though I am three
we were talking about your monsters not mine
you must go in to the cave where you have locked them
and free them all
fall on your knees
and say forgive me forgive me
for I have sinned
bow your head
and hold out your arms
and what, you say, will the tortured monsters do?
will they smite you? will they burn you? will they lock you in their place?
mine didn’t mine were babies grief, fear, shame and I embraced them carried them up to the light and care for them
wash them diaper them feed them wrap them in warm blankets
One I am wailing. I am crying. The Bear came today, our bear, the tribe’s bear, our Spirit.
But he didn’t just walk through camp and take fish and his tribute.
He took my son.
He walked right up to where my wife stood still, as we must when he comes, and he lifted the boy in his paws. The boy was quiet and still, he did well, he was brave, but when the bear turned to leave, he called once.
Then our bear dropped to three legs, my son in the fourth, and turned and left.
My son, my son, my heart, my joy. Spirit Bear, return him to me! Two We fought, argued, for a very short time. The Shaman said that if Spirit Bear wants my son, he shall have him.
He does have him, I said, but I want him back. The Shaman knew that was true. Some shook their heads and say that my son is already dead, but most agreed with me. We were on the trail nearly immediately. The bear should not be able to move as quickly as usual when he is carrying my son. I dread evidence of my son’s loss, that he will be eaten. But that has never happened, in the history, in the songs. The Shaman said as much. But neither has a bear taken a chief’s son.
Three Spirit Bear is moving amazingly fast on three legs. He is headed for the mountains. Not a surprise. My son may get cold. But bears are warm. My son has not been eaten. Four We have to make camp. I am so angry that we have not caught Spirit Bear. Out of our home camp he is fair game.
We do the Bear Dance, four times. We did not bring the masks and the young men dance the women’s part and one sings the woman’s part. We made quick rough masks and costumes. The Spirits will forgive us. This is past all understanding.
What does a Spirit Bear want with my son? Four years. No one knows.
Five Day again. I am up before dawn praying for light, for my son, to find the Spirit Bear. Six We are hot on the trail. We find that Spirit Bear did sleep and rest. My son is dropping beads. Smart boy. Each bead means that he is still alive and relatively unhurt. Seven We have spotted them. Spirit Bear stood and looked down at us, my son tucked against his side. My son very slowly raised his arm, so he knows. Eight We are approaching the peak. Everyone is tired from the climb and hungry and thirsty. Yet we keep going. No one complains. Nine We reach the peak and Spirit Bear and my son. We arm our spears and arrows, but my son shouts “No! Look!” We turn. We see the water. There is something in the water. It has tannish wings that are filled with wind. It is huge compared with our boats.
We turn to my son. He stands and Spirit Bear leaves, ambling down the mountain, quickly, gone. I hurry to my son, sweep him up. He starts shaking and then cries, leaning his head into me.
We turn and watch the tan winged thing, which is coming against the wind. It comes at an angle and then turns, to the opposite angle, yet still it comes. We know this is new and that there can be terror or joy, we do not know which. There will be learning, we know that.
My son falls asleep. We carry him down to water and camp. We are all singing quietly, the song of new things, fear and joy. The Shaman will welcome us when we are home, and we will prepare for the winged thing. We do not know what it will bring.
We thank the Spirit Bear for warning us, for telling us to prepare.
I have pictures of all of these women with that expression.
This is Mary Robbins White, my grandmother’s mother.
This is the line of women: mother to daughter all the way down.
What is passed from mother to daughter and mother to son? Besides the fierce expression?
Mitochondria. The mitochondria are only in the egg, not in the sperm. My grandparents, had three children, two boys and my mother. My mother passed the mitochondria to me and my sister, but the men would not contribute mitochondria to their sons or daughters. It is amazing to look at that serious face with intensity and concentration and see that passed down to my daughter, my son and my niece….
Guess who is who in the following photographs. I took two of them.
… your oxygen tank doesn’t QUITE match the turquoise of your outfit. Dang. And it’s not a great photograph. And the mirror has water spots. And your hair needs combing. And you aren’t wearing “yipstick”. And you don’t care….
Yep. Missing a friend right now. Sigh. Miss talking regularly and hugs. I miss talking with my patients and hugs! I missed hugs all through covid! It has sucked!
Virtual hugs to you all.
Maybe I will go lie face down in the yard and hug the grass. The stupid deer won’t let me hug them. I did touch a bird yesterday. I had a fledgling in my yard, a pine siskin. It had taken a bath in the birdbath and was all fluffed and asleep with it’s head tucked under it’s wing, on the edge of the birdbath. If I still had a cat, it would have been eaten. Boa Cat is buried in the back yard, sigh. Anyhow, the fledgling woke up and paniced and started moving around the yard. It went out into the neighbor’s driveway. I went around and dropped a piece of cloth over it and gently picked it up in the cloth and put it back in my fenced yard. Later it was stupid again. This time I just came and tried to shoo it back to the yard. Marginally safer as far as cats go, but at least it won’t get run over by a car. It wouldn’t shoo until I touched it gently. Then it hopped a little. It got back in the yard eventually. Hopefully it will figure flying out pretty quickly or else I won’t see it again.
Friends are still friends even when they part. I miss friends that I’ve lost, awfully. Wrote a poem called missing yesterday. I don’t feel quite like publishing it yet. Too raw.
May gives me time to go dark. My mother died May 15, 2000, right by Mother’s Day. Her birthday is May 31, right by Memorial Day.
I wrote this poem when I was not sure I would survive this round of pneumonia. I would like to see grandchildren. So far so good. It got a little dark, though. Sometimes it does that.
When I sit down to write a poem, I don’t know where it is going. I sit down with a question. The poem is the answer. Sometimes the poem is where I want to be emotionally. Usually I am not there yet.
it is almost as if each poem were a prayer.
_________
Hello loneliness
Here I am again give me a hug it’s been a while
I’ve been so happy I feel so loved
he has to go on a trip to care for family
meanwhile I am so sick my heart hurts most of the time
it is tiring it is tiresome
I may get better or not
hello loneliness hello illness hello fraility hello death
Or no, I refuse. It is your game. I was not playing. I am the honey badger, metabolism so fast that I have to run from one meal to the next or else I will starve. I eat whatever I can find: cobras, bees, anything. I eat or I die.
You have tethered a honey badger to oxygen by playing a game.
I am the football and you have been kicking me, throwing me, catching me, slamming me to the ground as hard as you can in the end zone.
And now that I am worn and damaged and torn, you’ll toss me away, not even notice me, and find a new ball.
You will need a new football. To play with.
I don’t envy that person.
The truth is, it will be one of you. The group will rest on their laurels, oh, we nearly killed her, wasn’t it great? We showed her. She is so stupid, took her what, 21 years to fucking figure it out? And she thinks she’s so smart.
I was looking for food because I am always hungry. The food insecurity goes back to infancy. Maybe to the womb: my mother says she was not to gain weight and spent the entire pregnancy longing for a gigantic ice cream Sunday. Think of being in a womb, attacked by antibodies to tuberculosis, and starving all the time. Might be a little bit worried when birth happens. Fuck, I am going through a tunnel, what horrors await me here? But maybe there will be more food.
Maybe someone will love me. Maybe there will be someone for me to love. And feed. We can give each other food.
My advice to you is don’t be the ball. I was the ball for 21 years. I was so hungry the whole time, for food and for love, that I kind of noticed but dismissed it as unimportant. Food and love were more important. Work and my patients were more important. You don’t matter and your games are trivial.
It will be the weakest one who will be the ball. You worry that you are the one. You should worry. You had better look strong right away. Post some horror. Write something really tough. Don’t show anyone any niggling doubts. Um, the ball is wearing oxygen. I am feeling a little bad about this. Are you feeling bad about this? The ball isn’t just crazy, it’s hurt. Actually crazy is an illness too: I know that you discriminate and think that cancer is a legitimate illness and that mania isn’t, but you are assholes. No, you’re too small and pathetic to be an asshole. You are a one celled animal that is clinging to a hair on an asshole and you get shat on daily. And you know, deep deep in your tiny shrunken heart, that you deserve it.
I am so glad I am not you.
I am tethered to oxygen. But I am healing. I don’t think you can. You are locked in your small sick pathetic triangulation competition and pretending that it’s a game that it’s ok that you are just playing.
Ick.
Meanwhile, the oxygen is portable.
I have food and I have love and I have work to do that lifts me on wings. I will go too near the sun and light on fire and fall burning, but that’s ok. I’ve done it before. The ocean heals me, always. It is so much fun to fly!
This is in memory of my mother, my father and my sister. I miss all three and I love them and they love me. Today is the day my mother died. The longer we live, the more days are days when someone that we love died. But they are still here. They are in the rocks and the sky and the trees and the coffee cup. They are not in sugary donuts or foods that cause heart attacks. But they are all around us, cradle us, still love us. Joy to you and the memories of your loved ones who have gone on. Blessings.
Discover and re-discover Mexicoβs cuisine, culture and history through the recipes, backyard stories and other interesting findings of an expatriate in Canada
Engaging in some lyrical athletics whilst painting pictures with words and pounding the pavement. I run; blog; write poetry; chase after my kids & drink coffee.
Refugees welcome - FlΓΌchtlinge willkommen I am teaching German to refugees. Ich unterrichte geflΓΌchtete Menschen in der deutschen Sprache. I am writing this blog in English and German because my friends speak English and German. Ich schreibe auf Deutsch und Englisch, weil meine Freunde Deutsch und Englisch sprechen.
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