Category Archives: mother

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Who would I be?

If I have had PANS since birth, who would I be if I had not contracted it?

No one knows. We are still arguing about whether PANDAS and PANS exist. But, my daughter says, we make up all the words. The definitions of illnesses CHANGE over time, and what an illness MEANS. Tuberculosis was an illness of poets and people too noble for this world, until microscopes became advanced enough to see the tiny bacterium, and then it became an illness of the crowded unclean poor. Medicine and science continued to study it. Once we recognized that it is an airborne illness, tuberculosis sanatoriums were set up, to quarantine people. My mother was diagnosed with tuberculosis when she coughed blood 8 months pregnant, so I was born in a sanatorium and avoided contracting tuberculosis as a newborn.

Antibodies cross the placenta, even though the tuberculosis bacterium does not. Usually infants contract tuberculosis and die, at least when I was born. The antibodies can trigger PANS or PANDAS.

The antibodies prime the fetus’s immune system. This makes sense, right? The fetus has a sick mother and best if its’ immune system is ready to fight.

Did my younger sister have it? I do not know. Not as badly, would be my guess. My mother said that as kids, we’d both get sick, but I got sicker. We both had strep A many times. My sister got mumps, off from school for three weeks, and I did not get it. But I got everything else.

Now the estimate for children with PANS or PANDAS is 1 in 200. This is enormous. A high prevalence. Antibodies, that I suspect are adaptive and lie in readiness for a pandemic or a crisis. And now we have had another pandemic, with the last really world wide bad respiratory one 100 years ago. Is the prevalence rising because of the pandemic or are we figuring out some of the cause of behavioral health illness or is the definition of illness changing or all three? I think all of them.

My cousin’s mother had polio either during her pregnancy or very soon after. My anthropologist uncle took his family to Bangladesh, where he was doing linguistics. So does my cousin have PANS or PANDAS? I do not know.

And what of my children? My pregnancy with my older child was fourth year medical school and went well. My pregnancy with my second was very complicated. I was in my first year of work as a rural Family Practice doctor and working too hard. I ended up on bed rest for three months and on a medicine. Is labor at 23 weeks an illness? Does it affect the fetus? I was on medicine from 23 weeks to 37 weeks. What effect does it have?

Medicine is still changing and changing quickly. We don’t know. There is so much we do not know.

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PANS/PANDAS: https://www.pandasppn.org/guidelines/

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The photograph is me and my sister, in about 1967ish. I do not know who took it.

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Theme for April: Daily Evil

I have been thinking in a desultory manner or perhaps not really thinking about the A to Z April Challenge. I want to have a whole month of my mother’s fabulous art, but what is my theme? Mothers? No. Women artists? No. Discrimination against women artists? Sigh, no. Oh! I read an article yesterday about how the negative and nasty headlines get the major clicks. Today I read another very nice kind blog post about putting something nice into the world. So that gives me my theme! My mother’s art and daily evil impulses.

Impulses, not actions. Don’t we all feel those nasty impulses? Now I am interested in my own theme: how does that tie into my mother’s art? You don’t know? I don’t know either, but I know that many of us have complex feelings about our mothers. You might too. What does her art reveal or what does it trigger in me? And you get to enjoy her art, while you react with prim or gleeful horror at the Daily Evil Art Impulse.

Happy April!

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The first photograph is of one of Helen Burling Ottaway’s watercolors. It is signed, matted and shrink wrapped. Date: 1996. She died of cancer in 2000. I do not know the title, but this is Lake Matinenda, in Ontario, Canada. My maternal family has land there and I have gone there since age 5 months.

For the Ragtag Daily Prompt: placid. Heh.

Ooooo and later:

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Passe

Today’s Ragtag Daily Prompt is anachronism. I guess that would be Helen Burling Ottaway’s watercolors, since an AI can do them, and my work as a physician. The American Academy of Family Practice (AAFP) wrote: “So, the AAFP looked into an AI assistant for clinical review that can “pull the data together in a problem-oriented manner and give you a snapshot of exactly what’s going on with your patient without having to search and click and find things.”

Um. Ok, I am thinking of a patient who was about to be transferred from our small hospital to a bigger one. His notes came across my desk. I called the hospitalist. No less then four physicians during the hospitalization, starting with the emergency room physician, had written that his abdomen was “flat, soft, non-tender, no masses”. What this told me was that 1. Not one of them had done an exam. 2. Not one of them had read my notes nor the surgeon’s notes. 3. The bigger hospital was going to laugh themselves silly if they did an exam. Why? He had an 8 by 8 inch enormous umbilical hernia present for 20+ years, which had not gotten fixed yet because of other medical issues.

Great. So let’s make it worse by having an AI pick out what is important from the patient record and have it make up exams, which people are too lazy to do. Physicians are too lazy to do. People, you had better read every single note your doctor or nurse practitioner or physician’s assistant writes, because you want to go on record in writing when they get it wrong. It is an absolute horror show. Read your notes, because your doctor is most likely not reading the notes from the specialists. I find it amazing, horrifying and sloppy.

I learned to paint watercolors from my mother. I am not primarily an artist, but I learned all sorts of techniques from her. We do not learn from plugging an idea into a computer. We learn from doing. And yes, it is work to learn techniques, but it is worth it!

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Keep

The older we get, the more we learn
which bridges to cross, which bridges to burn.

What shall I keep?
And shall I burn that bridge before I cross it
or after?
I did not know that was a bridge
I would burn
And I grieve as a I learn
But the sledgehammers and bombs
loosed by the family
have left a bridge
that is all but falling
Into an abyss.
It is stone and old.
It won’t burn, but it barely holds together.
One heavy rock, thrown in the middle
and it will fall
down down down.
What shall I keep?
What shall I let go?

I wonder what my parents think
and grandparents
and sister.
Do they think at all
or do they let go with death
and let joy overcome them
in reunion with the Beloved.
I hope where they are is joy.
It is ok, loves.
It did not turn out well
but people make their choices.
I can’t rebuild the bridge alone
and on the other side they prepare new IEDs to blow me up
if I attempt to rebuild
or cross.

I keep my children away
from the web of triangulation
and so they are not attached to the land
nor do they play the family games.
I am so glad.
I am still attached to the land
and my dead.
Not the living but the dead.
My sister, my mother, my father
grandparents, uncles, aunt.
All the dead.
Forgive me, but I can’t keep the bridge
going
and I will let the land go.
My children and I will be dead
to those living.
We have family and friends
who are loving and not hating
and not cruel.

I still love my dead
and even though the place reminds me of them,
they are not there.
They are in my heart.
I keep them safe
and let the bridge
and the land
go.

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For the Ragtag Daily Prompt: keep.

My sister is paddling the canoe. I took the photograph, in about 1980.

And here is music:

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Hunted

I am having an internal argument.

It’s about shacks on a lake in Ontario. My grandparents and family built the shacks and I’ve been going there since I was under a year old.

However, my sister died of cancer in 2012 and there was a horrific family battle over my niece. My mother had already died. My father died 13 months after my sister and left the same will as my mother. Unfortunately it was written when I was a minor. I cried when I read it because I was the only person named in it who was still alive. I knew what my father wanted, or remembered what he told me. A will is a will though. I took it to an attorney and followed her interpretation.

Then I was sued by family regarding the niece.

I knew what my father wanted but he had not done it. So I decided not to fight it and handed over half the estate. Because even though my father wanted me to watch over his granddaughter, he had not left me the tools. And she did not want me.

So back to the shacks. It’s the side of the family that brought in all the lawsuits. I have not felt welcomed there nor loved since my sister died.

Part of me is furious that I am being hunted out, unwelcomed, wants our grandparents to curse them.

The other part points out that I have already been hunted out, effectively. I stopped trying to take my children there because I couldn’t tell who in the family was “neutral” (basically not talking to me) or “gossiping” — the rumors re me trying to harm my niece were incredibly painful. I had to let her go.

After my father died I dream that I am issued a huge SUV, black. I am to go pick up three children. When I arrive, two are teens: my two. The third is a toddler. My niece is really the same age as my daughter, but not in the dream. In the dream, they tell me, “You can’t take the toddler. You don’t have a car seat.”

I say, “Can I go get one and come back?”

“No.” they say.

I say, “Please, can I borrow one? I didn’t know I needed it! I was issued the SUV!”

“No.” they say. “You can only take the two teens.

So I took the two teens and left, crying.

I woke up and thought: my father’s will is not my fault. I did the best I could. I followed an attorney’s advice and I tried to do what my father wished. I did not have the tools I needed.

Now my children and I may get an offer to buy our share of the land. My children are ready to be bought out.

I do not know if I am. I feel like this is the last connection with that side of my family, not only the living, but the dead. I love the land far more than the silent living and the cruel living. Why are families so cruel and why do they need enemies so badly? Gossip is a sin, truly, and hurts. Selling my share is saying goodbye to my sister, my mother, my father, my grandmother, my grandfather, my two uncles, my aunt. I don’t mind saying goodbye to the cruel living nearly as much as to my dead.

And that too makes me sad.

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The Extroverted Feeler’s haircut

My son was an Extroverted Feeler when he was little. Let’s call him EF.

We move in the middle of his first grade. From Colorado to the Olympic Peninsula, arriving on December 31, 1999. Y2K. The computers do not stop the next day and the world does not implode. My mother has recurrent cancer.

He starts school. He is in a three year class in public school with two teachers. It is a first, second, third grade mixed class. There are fifty kids and he is starting in January.

His mother is bananas because she is trying to learn a whole new set of patients, phone numbers, specialists and local medical slang. His father hates moving and lies on the couch. His grandmother is not doing well. He doesn’t have any friends yet. He misses his Colorado friends and his teacher. He is gloomy.

His father takes him to get his hair cut.

They return and I nearly swallow my tongue. The EF has a triple mohawk. A central spike of hair, shaved on both sides, and then another spike on each side. He and his dad thought it up. I tell myself: it’s just hair, it’s just hair, it will grow back! Horrors.

Two weeks later the EF is cheering up a bit and has a friend. Why? Apparently the haircut garnered attention. Within a week, not only does every kid in his class know his name, but most of the parents do too. “Who is that kid with the triple mohawk?” The EF is very pleased.

He gets a triple mohawk once more. By now I am ok with it.

After that he gets normal haircuts. His grandmother dies, but he has some friends now. His mother is less bananas over time and his father knows the name of every checker at the grocery store and all the coffee shops and the golf pros.

There was a cartoon where a mother is telling her son not to stare at a person with a mohawk. “But mom, don’t they get mohawks so that people will stare?” Uh, good point!

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For the Ragtag Daily Prompt: mohawk.

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DIY FUD: more

I am Elwha, cat.

Day three of offerings. My Mother did not even take a picture of day two. I do not understand why she scorns my offerings. This is a precious mouse that I extracted from the Tower.

This was a difficult operation. I stood on the sheep that warms and carefully tried to remove the tangled mouse. Mother interfered a little, but at last I could jump down with it. And I have offered it in exchange for more food! This precious toy!

Many thanks to all who made suggestions the other day. I still do not understand how a sub would help, but I will watch for one. Perhaps if I continue to make offerings and observe, I will be able to communicate with Mother. She seems loving, even though she is also obtuse. I am still hungry and lose weight. I fear starvation. My sister laughs when I approach her, but she is smaller and does not have the same needs. Mother feeds us in separate rooms. It is frustrating.

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In praise of stuff

A month ago my neighbor called. “Do you have a big canning pot?”

“Of course,” I say.

“Can we borrow it?”

“Of course.”

He came right over to get it. “The electricity was off for days at my cousin’s and all the berries thawed out in the freezer. Mom is going to make jam. Do you like jam?”

“Heck yeah!” I say.

The canner is way up on a high shelf. It has a tool to pick up jars too. “Do you need the lids?” I ask.

“No, we are good.”

I got the canner back a few days later with a beautiful jar of jam. Yum.

I am going against the fashion tide. My house is not spare and elegantly decorated. I joke that it is decorated in “Pack rat Cat lady”. I have two cats. My daughter wants me to not get ten or twelve. I don’t want ten or twelve either. Two is fine.

I have stuff. I have a house like my grandparents. Though really, I have less stuff than they did or than my parents did.

I loved my maternal grandparents house. It was an old farmhouse near Trumansburg, New York. My grandfather was a psychiatrist and professor at Cornell. The old farmhouse had a “newer” house built on, colonial style, in the 1860s. Fourteen foot ceilings and a fireplace in every room. There was a grand entrance with Corinthian columns that was almost never used. The hallway had a grand staircase and a spectacularly uncomfortable horsehair couch. My cousin always said she wanted it: I hope she got it. There was a back stairway as well, in the old house. The door from the newer house to the older one upstairs went into the attic, which was full of all sorts of mysterious old things. My sister and I were three years apart and had three other cousins between us and we all played for hours. We dressed up in my mother’s 1950s prom dresses and made fun of all of it. There was another attic, with a pull down ladder. I only got to go there a few times. I loved it. The back stairs were very narrow and twisty. The kitchen had huge cupboards made from old barn boards and with hand forged hardware. All the cupboards along one wall had doors in the kitchen and on the other side, in the dining room. That fascinated me too. There were two cellars as well. One larger one which once had a copperhead snake

 that my grandfather killed with a hoe, and a smaller one with a door flush in the floor. My grandparents had a wine cellar there and we were strictly not to go in there without an adult. There was a huge flagstone screen porch off the kitchen and dining room, with a table and chairs and a daybed. We practically lived there in the summers.

That house would be a nightmare to heat now. I love old houses, though. My house is from 1930 and really quite big. It is full of books and stuff, but my parents had a smaller house, a full two car garage with no cars, and two barns. I cleared that after my father died in 2013. Every time my daughter says I have too much stuff, I point out that I have gotten rid of a house full and two barns full. I am resting on my laurels for now.

My daughter gives me grief about the stuff, but she borrows too. She borrowed two sleeping bags for a trip when her brother helped drive her car because she had an injury. She borrowed “ugly mom shorts” for a summer job where the shorts had to be long. She tells me that she will get rid of it all when I die, but she has her eye on some things.

I am going against the tide. What is the idea behind having an empty looking house, a living room with a couch, two chairs, a rug and side table with a vase and possibly one book? Ugh. Not me. My living room must have at least 100 books on shelves along one wall. My mother was an artist and I am still trying to get her art out into the world. She was prolific. Watercolors, etchings, drawings, oil paintings and pottery too. My word.

I have a grandparent house. I have stuff and I know how to use it. I have books. I do look things up on the computer, but old books are amazing for understanding what people were thinking, what was acceptable, what discrimination would horrify us now, old recipes and photographs and children’s books. I am not an expert canner but I can make jam. I am a great knitter. I play guitar and flute.

I took care of a two year old neighbor about ten years ago, on and off. The first time he came to my house, I showed him the stick dragon, that would roar with flashing eyes, in one closet. He wanted the  door closed right away. But the next time he came, he went straight to that closet and pointed. “Do you want to see the stick dragon?” I asked. He nodded, very serious. I opened the door and we got the dragon to roar again. The grandparent house if full of mysterious things and old games and toys and grandparents who could possibly be witches or magical or grumpy some times.

My sister would get mad at my mother and say, “I’m going to run away and live with grandmother!” We stayed with my grandparents for a week while my parents were gone. By the end of the week, my sister threatened my grandmother, “I am going to run away to mom!”

My house is ready. Now I need a grandchild. For now, I borrow them, while I loan out the odd things that people no longer have in their spare and elegant houses.

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I don’t have a picture of my grandparent’s house with me today. However, this is a picture with me on the left and my sister and the maternal cousins. I do not know who took it. This was in the late 1960s.

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Small cat

The kittens were new in 2021 and are so much bigger now. Elwha is the biggest cat I’ve ever had. Tiger face and shoulders. They were a bit malnourished when I got them and Elwha grow out rather than up at first. He was also very worried about food and ate very fast. It took a while for him to trust that more food would come. So far so good and he is much more mellow now.

And they both love to go outside on harness and leash. I have to take them one at a time, because I can’t effectively carry both if one of them freaks out. Elwha is much more likely to freak out than Sol Duc. The recycling truck is particularly scary. Also people, dogs and SUVs.

Early on, when everything was new, Elwha jumped into the bathtub and howled, because he landed in water. He had previously found it empty. I had to rescue him and he was very upset. He spent a full thirty minutes cleaning himself.

Very happy New Year’s Eve. Be careful out there and I hope the New Year brings joys. I am hoping that this will be our last really bad Covid-19 winter, though we may need to do yearly vaccines.

Here is a tea-cat, Hot Kitty, in a teapot that Helen Burling Ottaway made. She was my mother and the poem on the teapot is mine. You can read it here. We drank a lot of tea growing up.

For the Ragtag Daily Prompt: new.

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Songs to raise girls: lullaby

Just you wait: new stories. We visited my Aunt Pat, Uncle Jimmy and Aunt Joan, all in their 80s. I want more stories!

My Aunt Pat and Uncle Jim were married for two weeks and then took a newborn home: me. My mother was in a tuberculosis hospital for active tuberculosis and could not be around me. I would be infected and die. So I went with my father, my aunt and uncle, my paternal grandparents and my great grandfather Malcolm Kenyon Ottaway and Florence Henderson Ottaway, who were visiting from Lincoln, England for two weeks. My father, aunt and uncle were all in college at the University of Tennessee. My aunt says it was rather chaos.

My great grandfather Mal would walk up and down singing this lullaby: “With her head tucked underneath her arm.” It’s about Anne Boleyn as a ghost after being beheaded, haunting the Tower of London. So this was one of my lullabies. Some of the songs to raise me were fairly peculiar choices. This might explain some things about me. My Aunt Pat says that Great Grandfather Mal said “‘ead tucked underneath ‘er arm”.

Here are the lyrics: https://genius.com/Stanley-holloway-with-her-head-tucked-under-her-arm-lyrics.

For the Ragtag Daily Prompt: just.

The photograph is Aunt Pat and Aunt Joan playing four hands Christmas songs. YouTube sometimes does not approve of my music choices. After finding these four versions of “With Her Head Tucked Underneath Her Arm”, it plays this to try to mellow me out. Just stop that, YouTube.