Tag Archives: fear

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Xeno or infection phobic?

So is Xenophobia a pathological fear of strangers or foreigners? Like agoraphobia or arachnophobia? The Mayo Clinic site has a listing for agoraphobia but not for arachnophobia or xenophobia. Perhaps agoraphobia is more disabling. Though with our world having more and more people, xenophobia might be terribly dangerous as well.

Current world population: https://www.worldometers.info/world-population/.

Number of people with Long Covid: at least 65,000,000, though the talk I attended yesterday say that’s a low estimate. Nearly one percent of the world population.

This article in Nature: https://www.nature.com/articles/s41579-022-00846-2 is about Long Covid, the research to date and the areas that need research. This is a very fast moving target with information exploding from multiple labs.

I attended an on line continuing medical education about Long Covid yesterday: https://hsc.unm.edu/echo/partner-portal/echos-initiatives/long-covid-fatiguing-illness-recovery/. This is a global monthly teaching session about Long Covid and current research and diagnosis and treatment. Yesterday’s talk was about immune cell abnormalities that persist and evidence is showing up that they are causing some of the problems. However, as one researcher said, the problems are multifactorial and any system in the body can be affected in more than one way.

Essentially some of the immune cells are puffy, sticky and enlarged. The suspicion is that the postexertional malaise is related to these puffy sticky cells. During exercise, or for some people normal activity, the muscles need more blood flow and more oxygen. The puffy sticky cells are stiff and won’t slide through capillaries easily. The muscles send a panic “I need oxygen!” message to the brain and the muscles do not work. The recovery can take a day or two days because of the food/oxygen deprivation. The researcher said that the same mechanism is suspected in ME-CFS (myalgic encephalopathy-chronic fatigue syndrome).

My muscles are feeling normal. My chronic fatigue is comparatively mild and happens with bad infections or with a vaccine that raises antibody levels, as it is supposed to. That’s how immunizations work. Do I have antibodies that shut down my muscles or do I have puffy cells? I would postulate the former but I can’t be sure right now. My home science kit is not quite up to that study.

When my fast twitch muscles are not working, are affected, it is very weird. They DO NOT WORK RIGHT. It is hard to describe: it is sort of pain, but it’s more of a very very strong STOP EXERCISING NOW message. And then I am exhausted for 1-2 days. In contrast, my muscles are a bit sore after a four mile beach walk 2 days ago and then an intense physical therapy session, but I am not exhausted. No naps the last two days. I have returned to my normal sleep patterns, less hours.

One of the researchers presented new technology that can make a movie of the microscopic cells going though a space with a narrowing like a capillary. Video electron microscopy. They are describing the cell shapes and whether they go through a capillary diameter normally or stick, for people with no Covid, diabetics, acute Covid and Long Covid. All are different. It is fascinating new technology.

I think I am more infection phobic than xenophobic. People all have the same basic blood cells inside, even with lots of different genetic patterns. So far infection phobia has not led me to agoraphobia, but the talk yesterday sure makes me want to keep my mask on.

There were over 350 attendees yesterday from all over the world. Lay people can sign up as well and the videos are stored for anyone to watch. I will watch yesterday’s a second time because five different scientists presented in 30 minutes and I ignored the chat which was going full speed with references to look up. Homework. And progress is being made.

Blessings.

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For the Ragtag Daily Prompt: xenophobia.

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I took the photograph two days ago from East Beach on Marrowstone Island. The distance between the sea lions and the container ship is much further than it appears, and this is taken with a Canon PowerShot SX40HS zoomed most of the way out.

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You will be labeled

If you get sick
with something the doctors don’t understand
you will be labeled
unstable
mental
bipolar
crazy.

They will try to drug you.

How do you tell
when they are right
and you are crazy
brain on fire
and when you aren’t?

Don’t ask me.
I’m a Family Practice doc
and I’m rural
and I’m a girl.

I’m the one they make fun of
in the medical schools.
“The rural doctor
transferred this patient.”

Yes we did.
Because we knew it was something
different
that needed more
than we had
in our small town
in our small hospital.

Once a neurosurgeon says,
“You are transferring the patient
because it’s Friday
and you don’t want to work
on the weekend.”
“She needs an MRI,” I say
“and we don’t have one.”
and transfer her anyway.
I call two days later.
After the MRI, she is in
the operating room
for a tumor in her spine.
He doesn’t call me back
but I hope he remembers.
I certainly do, after years
and years.

If you get sick
with something the doctors don’t understand
you will be labeled
unstable
mental
bipolar
crazy.

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Perchance to dream

I have been dreaming regularly since mid-January, nightmares. The cause is my sleep apnea machine. I got it in December, but two days before I flew east to my son’s for Christmas. I did not take it with me. I delayed getting back for nine days to visit an ill friend in Michigan and help out. On January 11, I took the class on how to use the machine.

My initial “mask” was the “nasal pillow” one. I go to sleep by slowing my breathing and using the Zen Buddhist and Jon Kabat Zinn’s body scan to relax. However, if I slow my breathing, the CPAP will start to blow pressure when my breath out drops below a certain volume. Then I was breathing against pressure and it woke me up. Also I would sometimes open my mouth, which lets the air out and the machine instantly increases pressure and is much noisier.

I got another mask within ten days. This is a face mask. It did not have one strap around the head, but four. The hose is attached to the top of the head. The main pressure point is where the four straps meet right at the back of the skull.

The dreams started. Nightmares every single night. About being trapped and trying to escape. An octopus grabbing me by the skull. One dream about trying to rescue a man from a building that was under attack or going to blow up and he kept saying, “But I’m not READY. I have to PACK.” I’m arguing, “You can get more stuff! We have to go! We’ll get killed if we stay! Come on, I am here to rescue you.” He keeps looking for his stuff because he can’t believe that a 5 foot 4 female could actually be a heroine and there to rescue me. Dumb male. I wake up and laugh. Even men in my dreams have little respect for me. That is a pretty sad illustration of my lifetime experience with the other gender.

Anyhow, to have the insurance pay for the stupid sleep apnea machine, I needed 21 out of 30 days with more than 4 hours on the machine. And I have to do this within 3 months of getting the machine. I got it in December, remember? So I was motivated and hella grumpy with it. At least twice a night I would wake up from a nightmare and rip the darn thing off my head. The cats do not like it when it hisses.

I took to using it during naps too. Since I was NOT sleeping well on it, I was sleeping longer. Nine or ten hours a night, at least three or four OFF the machine. Pretty pathetic.

Last week I had my visit where I am blessed and the insurance will now pay for the machine. I begged a little to talk to the mask guy. They said no at first and then yes. He gave me another octopus headdress. This one also goes around the back of the skull, but the hose is hanging from the front. That means the weight is more in front.

It still took three or four days before I got to four hours on the new one. It works better and I am not dreaming about escape rooms twice a night. Phew!

The interview to have the machine paid for was pretty amusing. The insurance wants me to say I am sleeping better to qualify for the machine. I answered that I was sleeping longer. There are a bunch of questions. Mostly I could be positive except for the “are you waking up less?” “No, more.” “More? Why?” “Because the octopus has me by the head or I am dreaming I am trapped.” I had the nurse laughing at my answers, but I still qualified.

Anyhow, if I can invent a different mask that doesn’t feel like an octopus, I could probably be a gadzillionaire. I think I will look at some bondage stores, seems like they have various masks that could be adapted. Then they could do double duty and I will be a double gadzillionaire!

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For the Ragtag Daily Prompt: dreams.

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A timorous culture

Over 20 years ago, when I first start practicing in Washington State, I get a letter from the state. It frightens me. It says that there is a complaint to the state from a patient and that I am being investigated. I think, “What did I do?” The letter says that they will notify me when they are done investigating. I am not allowed to inquire about it until they are done.

I worry, then shrug and go on working.

Eventually I get a letter from the state saying that the investigation is complete and has been dismissed. Now I can request information. I do.

The complaint is that on a yearly exam, I had asked if a patient had guns in the house. Since too many US citizens die by gun suicide and children can find guns and accidentally kill themselves or others, I was taught to counsel regarding guns. If a person has guns in the house I am to counsel them to keep the gun locked up with the ammunition locked up separately.

I was charged in the complaint with trying to find out how many guns this person has and “reporting it to the government”. I thought, that is ridiculous, but it did change my practice. Since there are paranoid timorous gun owners, I no longer asked if they had guns. Instead I said, “If you have guns in the house, as a safety measure, keep them locked up with the ammunition locked up separately.” We are supposed to counsel people to keep addictive drugs that can overdose and kill people locked up too.

I get three replies to the gun counseling. 1. “No guns!” 2. “I am a policeman (or hunter or retired veteran or gun collector) and all guns are secured at all times.” 3. Silence. The silent ones clearly have guns and do not lock them up. Truly I have had people tell me that they sleep with a loaded gun under the pillow. Really? That is our fear based timorous violent culture. We are terrified of….. someone. People on drugs, criminals, immigrants, people of another ethnicity, invaders, alien lizards in human disguise. Whatever.

I don’t have guns. I do have a fairly high level Tai Kwan Do belt, but my main home defense is that I am a packrat. Anyone trying to sneak into my house at night would trip over a cat or cat toy or the cardboard boxes in the kitchen that Elwha loves to sleep in. My house is seriously dangerous. I need to removed the stuff on the stairs by the time I turn 65 so that when they counsel me about fall risks at my medicare wellness visit, I can say that my stairs are clear.

Well, I do have a pop gun, loaded with a cork on a string. Also an Archie McPhee potato gun. Don’t shoot it in the house because those little bits of potato are hard to find. We have a 2 inch plastic ray gun that makes great sound effects and oddly has worked for years. I have a wooden katana and various instruments of garden destruction which could be deadly. I also have a lot of beach rocks and fossils, also fairly deadly, and other things. I’d rather not use any of these ever. Ok, I chased the 4 point buck out of the front yard with the baseball bat twice because he’d jumped the back fence and was eating my roses, but he’s allowed the run of the back yard. I was really mad at him.

We have to get past the fear based timorous culture, because it is making people crazy. Who are you most afraid of? In high school my daughter states, “Well, young white males with guns are the ones most likely to come shoot us, so that is who we should be afraid of.” That’s a sad, sad statement about the US culture.

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For the Ragtag Daily Prompt: timorous.

Hummingbirds are not timorous at all! They guard the feeder and seem to enjoy chasing other hummingbirds and bigger birds away and aren’t afraid of me either!

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Qia and the monsters

Qia is three. She is scared.

“Don’t be scared or go to your room.”

Qia wants help. She is scared of the monster, FEAR, the giant monster, but her father won’t listen. She sniffles and tries, but she can’t stop crying. She goes to her room, because her father has turned his back. Her mother is drawing. They are busy. They don’t like it when she is scared.

FEAR is enormous and pushes into the room with her. She cries harder in her room with the door closed. No one can hear her now except FEAR. FEAR is large and has horrible drippy teeth and too many arms and keeps swatting at her. Qia gives up and lets FEAR swat her. She sits on the bed with her knees up and puts her head on her arms.

FEAR rages around her room.

After a while Qia is tired of crying. She lifts her head off her arms.

FEAR is smaller. Still bigger than her father, bigger than her mother, but just standing and looking at her. FEAR looks tired too.

Qia pats the bed beside her. FEAR hesitates and looks scared. Qia waits. FEAR shuffles over and sits beside her on the bed.

The room is very quiet. Qia finds a scrap of tissue and blows her nose. She looks sideways at FEAR.

FEAR’s head is down and FEAR seems to be crying. Qia reaches out and takes FEAR’s paw. One of the paws. There are a lot.

FEAR holds her hand tightly and then leans against her. Qia wiggles over a bit more to give FEAR room. FEAR sighs and then snuggles down onto the bed, massive drippy toothy head in Qia’s lap.

Qia strokes FEAR’s fur. It is very soft and dark purple.

FEAR is the first monster that Qia makes friends with. There are many more.

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I was thinking about this story even before the Ragtag Daily Prompt: bugbear.

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Make space for the difficult feelings

I am watching a four part video from the UK about illness and trauma.

The first part is about how trauma memories are stored differently from regular memories. Regular memories are stored in files, like stories in a book or a library.

Trauma memories are stored in the amygdala and often are disjointed and broken up and have all of the sensory input from the worst parts, including the emotions.

The therapist is talking about healing: that our tendency is to turn away from the trauma, smooth it over and try to ignore it.

However, the amygdala will not allow this. It will keep bringing the trauma up. And that is actually its’ job, to try to warn and protect us from danger!

The therapist counsels finding a safe time and place and safe person (if you have one) and then making space for the trauma to come back up. One approach is to write out the story, going through that most traumatic part, but not stopping there. What happened next? Writing the story and then putting it aside. Writing it again the next day and doing this for four days. As the story is rewritten and has an ending, even if it is not a happy ending, the story is eventually moved from the amygdala to the regular files. People can and do heal. They may need a lot of time and help, but they can heal.

I am not saying that four days of writing stories is enough. That is one approach, but nothing works for everyone and people need different sorts of help. There are all sorts of paths to healing.

In my Family Practice clinic I would see people in distress. With some gentle prompting and offering space, they would tell me about trauma and things happening in their personal life or work life. Things that were feeling so overwhelming that they could not tell their families or friends and they just could not seem to process the feelings about it. I would keep asking what was happening and give them the space to tell the story. Many times when they reached the present they would stop. There would be a silence. Then I would say, “It seems perfectly reasonable that you feel terrible, frightened, horrified, grieved, whatever they were feeling, with that going on.” And there was often a moment where the person looked inwards, at the arc of the story, and they too felt that their feelings were reasonable.

I would offer a referral to a counselor. “Or you can come back. Do you want to come back and talk about it if you need to?”

Sometimes they would take the referral. Sometimes they would schedule to come back. But nearly half the time they would say, “Let me wait and see. I think I am ok. I will call if I need to. Let me see what happens.”

When a person goes through trauma, many people cut them off. They don’t want to hear about it. They say let it go. They may avoid you. You will find out who your true friends are, who can stand by you when you are suffering. I have trouble when someone tries to show up in my life and wants to just pretend that nothing happened. “Let’s just start from now and go forward.” A family member said that to me recently. Um, no. You do not get to pretend nothing happened or say, “I wanted to stay out of it.” and now show back up. No. No. You are not my friend and will not be. And I am completely unwilling to trade silence about my trauma for your false friendship.

Yet rather than anger, I feel grief and pity. Because this family member can’t process his own trauma and therefore can’t be present for mine. Stunted growth.

People can heal but they need help and they need to choose to do the work of healing.

The four videos are here: https://www.panspandasuk.org/trauma.

This song is a darkly funny illustration: she may be trying to process past trauma, but the narrator doesn’t want anything to do with it. And he may not have the capacity to handle it. He may have his own issues that he has not dealt with. And maybe they both need professionals.

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Prayers for people in Turkey and Syria

I took this photograph with my phone yesterday before I heard the news.

The ambulance has been out for a week or so, along with the doll tent. Two doll babies, the doll doctor, various pieces of equipment. I took the photograph because the cats keep “helping” and it keeps looking a bit like a disaster. Sigh. I wish they were just doll disasters with giant cats wandering through, not real earthquakes.

I wrote Flooded after the tsunami in Japan, about PTSD and about feeling helpless watching. I think we all have a little post-Pandemic PTSD and are more hair trigger and more ready for fight or flight.

Send prayers and money and huge blessings on on the first responders that are heading there or are already there.

For the Ragtag Daily Prompt: strange.

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Catch and release

The chances of you changing are quite small.
I know from very early in our time.
Why God makes angels that will one day fall.
We could be sent to teach each other rhymes
or something else. I wonder at it daily.
My heart opens like a flower even so.
The candle just at dusk burns quite palely.
I wonder what excuse you’ll use to go.
It’s a comic denouement I see at last.
You denigrate my knowledge and my skill.
After exposure you refuse to wear a mask
or test. I rise in anger at ill will.
It’s comic that I’ve liked your busy mind.
Respect for mine is nil: you elk’s behind.

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Conspiracy is easier than vulnerability and grief

“Our culture faces a flood of conspiracism” says the Atlantic Monthly.

My great Uncle forwards an article that says we are tracking along stages as we did to WWII.

I write back. No, I say, we are tracking towards WWI.

Because of Covid-19.

The problem with the pandemic is vulnerability and grief. It is difficult to be mature enough to accept vulnerability and grief. It is easier to find someone to blame and go after them. We can’t burn a virus, we can’t hang it in effigy, we can’t take it to court and give it the death penalty. Many people are terrified and do not want to feel vulnerable and do not want to grieve. So they fall into conspiracies: it is safer to believe that the pandemic is a lie, that alien lizards have taken over the US Government, that it is the fault of a country making it on purpose, or a race, or a religion. It is easier to believe that nanocomputers are being injected with the vaccine than to think about the number of dead. It is easier not to think about the number of dead, the terrifying randomness, to believe that this only affects people with preexisting conditions, or people who God wants to smite, or people the lizard aliens hate. Or that the whole thing is a lie.

We are mimicing the late 19 teens and early 1920s very well. A world pandemic. We have a war, that is not a world war. This time we have bombs capable of destroying current life on earth. We’d be left with tardigrades and those bacteria who live in the deep trenches in boiling water where the earth’s crust is thin. At least one of my friends thinks this might be a good thing.

We have just reached 8 billion people.

In London, the Black Death had a 50% kill rate in the 1400s. Half the people that got it died. It changed the world. Pandemics change the world. In this pandemic the death rate is about 1% or a little more. However, 10% to 30% of the people with Covid-19 have Long Covid. Today, Johns Hopkins says we are at 635 million people who have gotten Covid-19. 6.6 million or more are dead from it. Then we have between 65 million and 195 million people with Long Covid in the world.

We don’t know how long Long Covid lasts. We don’t know how to cure it. We do not know if we can cure it or if people will get better. We do not know, we do not know, we do not know.

Which is also terrifying. So the conspiracy and someone to hate or some group to hate or someone to fight is safer for many people.

Do not go there. We must grieve. We must help each other. We must face fear and not give in to it. We must not fall into the trap of the charismatic leader who will give us villains, who will lead us into a World War to distract us from our grief.

And from there into a world depression. Remember, the Roaring Twenties end with the worst depression the world has seen so far. Let us not repeat it, let us not beat it.

Peace you and blessings.

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We want to believe

My cousin said to me once: “We want to believe what we want to believe.”

This was right before Mr. Trump was elected President.

After my cousin said that, I was unsurprised that Mr. Trump was elected. He was elected out of fear and anger and shame and grief. He was elected by people who are afraid that people rising out of discrimination will take things from them. Lower their standard of living. They are afraid that they will have to give things up.

A friend was working on my boat. He said that if I paid in cash, it would be less. Because, unspoken, he would not report the income. I thought about it. I said, “My medical practice is mostly medicare and state insurance. That is paid for out of our taxes: yours and mine. Therefore I am giving you a check and I don’t care if it costs more.”

There is a big culture here of not paying taxes. Cheat the government. Pay cash to each other, nod, nod, wink. It is tempting, takes a percentage off what I pay. But…. the people who I know are doing this are mostly conservative. They say drain the swamp. They say the government is cheating us. But THEY are cheating all of us.

I asked my cousin why he and my maternal family believed a story masterminded by my sister. That my father and my neice’s father and I were villains. One of the villainies was the our grandmother’s money had paid for MY graduate school but not my sister’s graduate school.

But that is not true. My grandmother paid four years of medical school tuition. 21K. I paid my own loans.

After my grandmother died, and then my mother died, my father used “my grandmother’s money” to pay off my sister’s graduate school loans. 36K. My parents also cosigned on a house, that my sister walked away from. They wrote 30K off thier taxes that year selling it. My father bailed her out of 7K on a work credit card. My father called me crying when she bullied him out of another 30K for another house. And that is when I said to her ENOUGH. I refused to visit for a year: until she went into hospice for her cancer. I visited three times while she was in hospice. We made peace. But she did not tell anyone else the truth.

I said to my cousin that I could send the bank statements showing that my father paid for my sister’s graduate school. That is when he said, “No. We want to believe what we want to believe.”

I thought really? So you want to believe my sister because she is dead. We will not speak ill of the dead, so you are ok with me and my father and my niece’s father being villainized and you will not even look at the lies.

VOTE and VOTE against FEAR, SHAME, DISCRIMINATION, ANGER AND GRIEF. We have to stand up. I loved my sister even when she was dishonest and bounced 1000$ worth of checks in my small town with people I knew. My father got threatening phone calls and he paid. That was the last straw for me.

So guess which politician stirs up fear and hate and discrimination and anger and grief? Well, honestly, both sides are guilty of that, but I stand against discrimination. We all shall rise up.

Love and Blessings and Peace you.

The photograph is on one of the last three visits to my sister. She died in March 2012.