Category Archives: memory

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Memory trip

The Swinging by the Sound dance weekend was a memory trip for me.

I met my future husband dancing, back in 1986. We met contra dancing, but he was already learning Lindy Hop. We took a class together and met people that I am still in touch with. We went to dances at the Spanish Ballroom, in Cabin John, Maryland, with 400+ people. We had an hour of teaching and three hours of dancing, in the old park which did not allow alcohol. The Ballroom was not heated in the winter and would be in the upper 90s in the summer. I remember winter dances with the band needing space heaters. The dancers did not need heat: we were generating it.

I took this photograph at a Swinging by the Sound class. People choose Lead or Follow and the instructors have the Leads rotate every few dances. I am happy seeing so many people learning both, because it makes you a much better dancer.

We loved our bands too, and Daryl Davis and his band played at our wedding.

For the Ragtag Daily Prompt: trip.

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Daily Evil: G is for Grumpy

Gruff, grouchy, grumpy and garden! The watercolor is a small one by Helen Burling Ottaway, my mother. She did not date any of the watercolor sketches in it. I think it is from the 1970s. I very much remember the pot that the tree is in. That is an avocado that she grew from a pit.

Is being grumpy evil? I don’t think so. I don’t think we should inflict our grumpiness on others, but we may have very good reasons to be grumpy. When I was having difficult things at home, I would give a heads up to my nurse that I was grumpy but not at her or the patients. That helped a lot, because I did not have a perfect wall about my emotions. I also hate when people are pretending to be nice when they are angry or hurting or frustrated or grumpy.

Sometimes people say, “I don’t like to be around people who aren’t positive.” Well, now, wait. Do they have to be positive if a family member dies? If they lose their job? If they are very worried about making ends meet when a car has broken down? That would be a fair weather friend, who is only present in the good times, and abandons me when I am stressed. That person is not really a friend at all. The true friends are the ones who notice I am grumpy but stay present anyway. And they ask if it is about them. They do not try to fix it or ignore it: it’s my mood, not theirs. Hooray for real friends who are present through thick and thin!

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Who would I be?

If I have had PANS since birth, who would I be if I had not contracted it?

No one knows. We are still arguing about whether PANDAS and PANS exist. But, my daughter says, we make up all the words. The definitions of illnesses CHANGE over time, and what an illness MEANS. Tuberculosis was an illness of poets and people too noble for this world, until microscopes became advanced enough to see the tiny bacterium, and then it became an illness of the crowded unclean poor. Medicine and science continued to study it. Once we recognized that it is an airborne illness, tuberculosis sanatoriums were set up, to quarantine people. My mother was diagnosed with tuberculosis when she coughed blood 8 months pregnant, so I was born in a sanatorium and avoided contracting tuberculosis as a newborn.

Antibodies cross the placenta, even though the tuberculosis bacterium does not. Usually infants contract tuberculosis and die, at least when I was born. The antibodies can trigger PANS or PANDAS.

The antibodies prime the fetus’s immune system. This makes sense, right? The fetus has a sick mother and best if its’ immune system is ready to fight.

Did my younger sister have it? I do not know. Not as badly, would be my guess. My mother said that as kids, we’d both get sick, but I got sicker. We both had strep A many times. My sister got mumps, off from school for three weeks, and I did not get it. But I got everything else.

Now the estimate for children with PANS or PANDAS is 1 in 200. This is enormous. A high prevalence. Antibodies, that I suspect are adaptive and lie in readiness for a pandemic or a crisis. And now we have had another pandemic, with the last really world wide bad respiratory one 100 years ago. Is the prevalence rising because of the pandemic or are we figuring out some of the cause of behavioral health illness or is the definition of illness changing or all three? I think all of them.

My cousin’s mother had polio either during her pregnancy or very soon after. My anthropologist uncle took his family to Bangladesh, where he was doing linguistics. So does my cousin have PANS or PANDAS? I do not know.

And what of my children? My pregnancy with my older child was fourth year medical school and went well. My pregnancy with my second was very complicated. I was in my first year of work as a rural Family Practice doctor and working too hard. I ended up on bed rest for three months and on a medicine. Is labor at 23 weeks an illness? Does it affect the fetus? I was on medicine from 23 weeks to 37 weeks. What effect does it have?

Medicine is still changing and changing quickly. We don’t know. There is so much we do not know.

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PANS/PANDAS: https://www.pandasppn.org/guidelines/

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The photograph is me and my sister, in about 1967ish. I do not know who took it.

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Threw me out of the band

On Sunday I was in Portland with a friend and went to a memorial at the Laurelthirst. It was for a musician named Turtle. Local musicians showed up like crazy. There were at least six very fine guitar players, three on stage at a time and sometimes more. They switched in and out and switched styles. It was a beautiful tribute.

My two favorites were “They threw me out of the band” and one that bemoaned everyone playing music and drinking and that he had to sing another song about another dead band member. Funny and sad.

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For the Ragtag Daily Prompt: delete.

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Old men never die, they just spout poetry

I wrote this in 2009. I don’t know why this gentleman comes to mind today. Partly because I have a friend in the hospital. She is in her 80s. When the doctors ask how she is, she says, “Fine.” I want to yell “Liar! She is NOT fine!” Luckily she has her daughter-in-law and me and her sons saying “She is NOT fine!” Sometimes people are very stoic and will not tell you that they are not fine.

When I was in residency we rotated through the Veterans Hospital in Portland, Oregon. Most of our patients were either very elderly or they were alcoholics or addicts in their 50s, starting to really go downhill medically.

One elderly patient is particular vivid in my memory. He was in his 80s and black. He was weak and had various problems. I was not doing a very good job of sorting him out.

He wouldn’t answer questions. Or rather, he would give a reply, but it was not yes or no and I couldn’t figure out how the answer related to the question.

On the third day he gave a long reply to a question and I recognized it.

“That’s Longfellow,” I said. He nearly smiled. “We did a bike trip around Nova Scotia and read Evangeline aloud in the tents at night. The mosquitos tried to eat us alive. That’s Longfellow, isn’t it?”

He wouldn’t answer but the twinkle in his eye indicated yes.

So our visits were cryptic but fun. I would try to guess the author. He knew acres of poetry, all stored in his brain, no effort. I tried to relate the poems to my questions to see if he was answering indirectly. I wondered if he had schizophrenia and these were answers, but I didn’t think so. I thought he was just stubborn and refusing to answer.

I challenged him. “Ok, you are the right age. Come up with a song with my first name that is from early in the century. My father used to sing it to me when I was little. Can you?”

The next day he sang to me: “K-k-k-katy, beautiful Katy, you’re the only beautiful girl that I adore. When the m-moon shines, over the cow shed, I’ll be waiting by the k-k-k-kitchen door.”

We sat and grinned at each other. Soon afterward I moved on to the next rotation. I don’t remember his medical problems. But I remember him and remember wondering what he had done in his life to have a memory and a store of poetry in his head. A teacher? A professor? A man who loved poetry? I started matching him with my own store of poems, the Walrus and the Carpenter, songs, bits and pieces. I felt blessed and approved of when his eyes twinkled at me, when I recognized an author or even recognized the poem itself. I looked forward to seeing him daily on rounds. And he seemed to look forward to my visits. I was sad when I had to say goodbye and the next rotation was out of town. And since he had never told us his name, no way to stay in touch. Farewell, poetry man, fare thee well.

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We were not doing nothing. He would not tell us his name, so we were awaiting an opinion from neurology. Waiting.

The photograph is not as old as the song. The young man holding the ball is my father, in the 1950s. My Aunt and I think this was at Williston in around 1956.

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Deleting spam

I still think of you occasionally
when I pay the bills, I think of you
when I clean the catbox, I think of you
when I clear the spam, I think of you
it’s the Get’a’super-sized’rod’ ones
that make me think of you and laugh
I want to send them to you every time
I still think of you occasionally
Get’a’super-sized’rod’ and poo and bills

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In praise of stuff

A month ago my neighbor called. “Do you have a big canning pot?”

“Of course,” I say.

“Can we borrow it?”

“Of course.”

He came right over to get it. “The electricity was off for days at my cousin’s and all the berries thawed out in the freezer. Mom is going to make jam. Do you like jam?”

“Heck yeah!” I say.

The canner is way up on a high shelf. It has a tool to pick up jars too. “Do you need the lids?” I ask.

“No, we are good.”

I got the canner back a few days later with a beautiful jar of jam. Yum.

I am going against the fashion tide. My house is not spare and elegantly decorated. I joke that it is decorated in “Pack rat Cat lady”. I have two cats. My daughter wants me to not get ten or twelve. I don’t want ten or twelve either. Two is fine.

I have stuff. I have a house like my grandparents. Though really, I have less stuff than they did or than my parents did.

I loved my maternal grandparents house. It was an old farmhouse near Trumansburg, New York. My grandfather was a psychiatrist and professor at Cornell. The old farmhouse had a “newer” house built on, colonial style, in the 1860s. Fourteen foot ceilings and a fireplace in every room. There was a grand entrance with Corinthian columns that was almost never used. The hallway had a grand staircase and a spectacularly uncomfortable horsehair couch. My cousin always said she wanted it: I hope she got it. There was a back stairway as well, in the old house. The door from the newer house to the older one upstairs went into the attic, which was full of all sorts of mysterious old things. My sister and I were three years apart and had three other cousins between us and we all played for hours. We dressed up in my mother’s 1950s prom dresses and made fun of all of it. There was another attic, with a pull down ladder. I only got to go there a few times. I loved it. The back stairs were very narrow and twisty. The kitchen had huge cupboards made from old barn boards and with hand forged hardware. All the cupboards along one wall had doors in the kitchen and on the other side, in the dining room. That fascinated me too. There were two cellars as well. One larger one which once had a copperhead snake

 that my grandfather killed with a hoe, and a smaller one with a door flush in the floor. My grandparents had a wine cellar there and we were strictly not to go in there without an adult. There was a huge flagstone screen porch off the kitchen and dining room, with a table and chairs and a daybed. We practically lived there in the summers.

That house would be a nightmare to heat now. I love old houses, though. My house is from 1930 and really quite big. It is full of books and stuff, but my parents had a smaller house, a full two car garage with no cars, and two barns. I cleared that after my father died in 2013. Every time my daughter says I have too much stuff, I point out that I have gotten rid of a house full and two barns full. I am resting on my laurels for now.

My daughter gives me grief about the stuff, but she borrows too. She borrowed two sleeping bags for a trip when her brother helped drive her car because she had an injury. She borrowed “ugly mom shorts” for a summer job where the shorts had to be long. She tells me that she will get rid of it all when I die, but she has her eye on some things.

I am going against the tide. What is the idea behind having an empty looking house, a living room with a couch, two chairs, a rug and side table with a vase and possibly one book? Ugh. Not me. My living room must have at least 100 books on shelves along one wall. My mother was an artist and I am still trying to get her art out into the world. She was prolific. Watercolors, etchings, drawings, oil paintings and pottery too. My word.

I have a grandparent house. I have stuff and I know how to use it. I have books. I do look things up on the computer, but old books are amazing for understanding what people were thinking, what was acceptable, what discrimination would horrify us now, old recipes and photographs and children’s books. I am not an expert canner but I can make jam. I am a great knitter. I play guitar and flute.

I took care of a two year old neighbor about ten years ago, on and off. The first time he came to my house, I showed him the stick dragon, that would roar with flashing eyes, in one closet. He wanted the  door closed right away. But the next time he came, he went straight to that closet and pointed. “Do you want to see the stick dragon?” I asked. He nodded, very serious. I opened the door and we got the dragon to roar again. The grandparent house if full of mysterious things and old games and toys and grandparents who could possibly be witches or magical or grumpy some times.

My sister would get mad at my mother and say, “I’m going to run away and live with grandmother!” We stayed with my grandparents for a week while my parents were gone. By the end of the week, my sister threatened my grandmother, “I am going to run away to mom!”

My house is ready. Now I need a grandchild. For now, I borrow them, while I loan out the odd things that people no longer have in their spare and elegant houses.

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I don’t have a picture of my grandparent’s house with me today. However, this is a picture with me on the left and my sister and the maternal cousins. I do not know who took it. This was in the late 1960s.