Category Archives: daughter

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Who would I be?

If I have had PANS since birth, who would I be if I had not contracted it?

No one knows. We are still arguing about whether PANDAS and PANS exist. But, my daughter says, we make up all the words. The definitions of illnesses CHANGE over time, and what an illness MEANS. Tuberculosis was an illness of poets and people too noble for this world, until microscopes became advanced enough to see the tiny bacterium, and then it became an illness of the crowded unclean poor. Medicine and science continued to study it. Once we recognized that it is an airborne illness, tuberculosis sanatoriums were set up, to quarantine people. My mother was diagnosed with tuberculosis when she coughed blood 8 months pregnant, so I was born in a sanatorium and avoided contracting tuberculosis as a newborn.

Antibodies cross the placenta, even though the tuberculosis bacterium does not. Usually infants contract tuberculosis and die, at least when I was born. The antibodies can trigger PANS or PANDAS.

The antibodies prime the fetus’s immune system. This makes sense, right? The fetus has a sick mother and best if its’ immune system is ready to fight.

Did my younger sister have it? I do not know. Not as badly, would be my guess. My mother said that as kids, we’d both get sick, but I got sicker. We both had strep A many times. My sister got mumps, off from school for three weeks, and I did not get it. But I got everything else.

Now the estimate for children with PANS or PANDAS is 1 in 200. This is enormous. A high prevalence. Antibodies, that I suspect are adaptive and lie in readiness for a pandemic or a crisis. And now we have had another pandemic, with the last really world wide bad respiratory one 100 years ago. Is the prevalence rising because of the pandemic or are we figuring out some of the cause of behavioral health illness or is the definition of illness changing or all three? I think all of them.

My cousin’s mother had polio either during her pregnancy or very soon after. My anthropologist uncle took his family to Bangladesh, where he was doing linguistics. So does my cousin have PANS or PANDAS? I do not know.

And what of my children? My pregnancy with my older child was fourth year medical school and went well. My pregnancy with my second was very complicated. I was in my first year of work as a rural Family Practice doctor and working too hard. I ended up on bed rest for three months and on a medicine. Is labor at 23 weeks an illness? Does it affect the fetus? I was on medicine from 23 weeks to 37 weeks. What effect does it have?

Medicine is still changing and changing quickly. We don’t know. There is so much we do not know.

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PANS/PANDAS: https://www.pandasppn.org/guidelines/

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The photograph is me and my sister, in about 1967ish. I do not know who took it.

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Sailing with my father

Sailing with my father
after I’m divorced
we take my two children.
They and I are small.
My father is frail,
55 years of Camel cigarettes
in his lungs.
“Papa,” I say, “How would we
pull you in if you went
overboard? We aren’t strong enough.”
Nor is he strong enough
to pull me in.
My father thinks. “You are right,”
he says, “We’ll make a Go Bag.”
A 3 to 1 pulley, with a clip.
We can clip it to the boom
and push it out over the water.
Attach the pulley to the life jacket
and I can winch nearly anyone aboard.
Maybe. We have it in a dry bag,
with towels and chocolate
and a set of sweats,
a space blanket
because the water is cold here,
45-55. My father knows, I’m sure,
that if he falls in, he’d be unlikely
to survive even if I did reel him in,
an unlikely catch. We wear our life jackets
and the kids do too.

One time we hit container ship waves
when my son is on the bow.
He is thrown up and drops, flat,
prone on the bow, holding on.
This boat has no railings
but my children pay attention.

We never have to use the pulley.

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At first my father said that we could unhook the haul down and use the boom, but I said, if it’s me and two little kids and I have to drop sail and get back to someone, that is too hard. How do we make it easier?

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Old men never die, they just spout poetry

I wrote this in 2009. I don’t know why this gentleman comes to mind today. Partly because I have a friend in the hospital. She is in her 80s. When the doctors ask how she is, she says, “Fine.” I want to yell “Liar! She is NOT fine!” Luckily she has her daughter-in-law and me and her sons saying “She is NOT fine!” Sometimes people are very stoic and will not tell you that they are not fine.

When I was in residency we rotated through the Veterans Hospital in Portland, Oregon. Most of our patients were either very elderly or they were alcoholics or addicts in their 50s, starting to really go downhill medically.

One elderly patient is particular vivid in my memory. He was in his 80s and black. He was weak and had various problems. I was not doing a very good job of sorting him out.

He wouldn’t answer questions. Or rather, he would give a reply, but it was not yes or no and I couldn’t figure out how the answer related to the question.

On the third day he gave a long reply to a question and I recognized it.

“That’s Longfellow,” I said. He nearly smiled. “We did a bike trip around Nova Scotia and read Evangeline aloud in the tents at night. The mosquitos tried to eat us alive. That’s Longfellow, isn’t it?”

He wouldn’t answer but the twinkle in his eye indicated yes.

So our visits were cryptic but fun. I would try to guess the author. He knew acres of poetry, all stored in his brain, no effort. I tried to relate the poems to my questions to see if he was answering indirectly. I wondered if he had schizophrenia and these were answers, but I didn’t think so. I thought he was just stubborn and refusing to answer.

I challenged him. “Ok, you are the right age. Come up with a song with my first name that is from early in the century. My father used to sing it to me when I was little. Can you?”

The next day he sang to me: “K-k-k-katy, beautiful Katy, you’re the only beautiful girl that I adore. When the m-moon shines, over the cow shed, I’ll be waiting by the k-k-k-kitchen door.”

We sat and grinned at each other. Soon afterward I moved on to the next rotation. I don’t remember his medical problems. But I remember him and remember wondering what he had done in his life to have a memory and a store of poetry in his head. A teacher? A professor? A man who loved poetry? I started matching him with my own store of poems, the Walrus and the Carpenter, songs, bits and pieces. I felt blessed and approved of when his eyes twinkled at me, when I recognized an author or even recognized the poem itself. I looked forward to seeing him daily on rounds. And he seemed to look forward to my visits. I was sad when I had to say goodbye and the next rotation was out of town. And since he had never told us his name, no way to stay in touch. Farewell, poetry man, fare thee well.

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We were not doing nothing. He would not tell us his name, so we were awaiting an opinion from neurology. Waiting.

The photograph is not as old as the song. The young man holding the ball is my father, in the 1950s. My Aunt and I think this was at Williston in around 1956.

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Learn young

This child is not afraid of the saxophone because she is growing up with it. The saxophone player is her father. She’s ready to help and be up on stage as well! She’ll have a fabulous jazz foundation and her father didn’t miss a note!

This is Tuesday night at the Bishop Hotel in Port Townsend, Washington. Chris Miller and Peter Leopold Freeman.

For the Ragtag Daily Prompt: saxophone.

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Small cat

The kittens were new in 2021 and are so much bigger now. Elwha is the biggest cat I’ve ever had. Tiger face and shoulders. They were a bit malnourished when I got them and Elwha grow out rather than up at first. He was also very worried about food and ate very fast. It took a while for him to trust that more food would come. So far so good and he is much more mellow now.

And they both love to go outside on harness and leash. I have to take them one at a time, because I can’t effectively carry both if one of them freaks out. Elwha is much more likely to freak out than Sol Duc. The recycling truck is particularly scary. Also people, dogs and SUVs.

Early on, when everything was new, Elwha jumped into the bathtub and howled, because he landed in water. He had previously found it empty. I had to rescue him and he was very upset. He spent a full thirty minutes cleaning himself.

Very happy New Year’s Eve. Be careful out there and I hope the New Year brings joys. I am hoping that this will be our last really bad Covid-19 winter, though we may need to do yearly vaccines.

Here is a tea-cat, Hot Kitty, in a teapot that Helen Burling Ottaway made. She was my mother and the poem on the teapot is mine. You can read it here. We drank a lot of tea growing up.

For the Ragtag Daily Prompt: new.

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hands together

These hands and the other hands that finished this difficult puzzle together on Christmas morning. We even found the missing piece, under my son’s pile of loot! We did start this one two days before Christmas. It’s a stinker.

These hands that make eggs benedict, and hug me, and hug each other. These are some of the things I adore, the owners of these hands.

For the Ragtag Daily Prompt: adore.

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The happiest day of his life

When I was a preteen, I got my first Spiderman comic book. I was enthralled. A hero who had powers, but had a grandmother, responsibilities, made mistakes, felt guilt and confusion. I wanted this, not the princess crap. I did not want a prince to ride in and carry me off. I did not and don’t trust princes. The wedding being the happiest day of a woman’s life: what the hell? Is it the happiest day of the man’s life? If not why not? It’s important to the woman to be married to her love but not the man?

And anyhow, the Disney movies were very consistent. There were no good Disney Queens. The good ones died in childbirth, or were absent, or their ship went down. The stepmothers were evil. The princess career ended with marriage. Pregnancy either kills you or turns you evil. Actually, sex turns you evil if you are a female. That was the very clear Disney message judging by the animated features. Virgin girls are pure princesses but there are no adult female role models for years and years and years. By my preteens I wanted to drive my own wagon: I was not going to be taken care of, controlled, or left poor and with small children through divorce. I would have a career and children.

What IS the happiest day of a man’s life? Do we have any map of that? When they are promoted? When they buy twitter? When they are elected President? When they get married? Why do we have a happiest day for women (and is it the marriage or the sex?) but not for men?

In the romance novels, the man is usually older, “experienced”, rich, and has a reputation for seducing women. The woman is often a virgin, or she has a child because there was an evil man who she thought loved her, or the older man got her pregnant and she never told him. She knows it is true love because she is pure and yet is overcome by lust, so it must be true love. Snort. I have always thought this is stupid and silly. So men in the novels are experienced, have sex with lots of women, and then are carried away by lust that turns out to be true love with this woman? What about all the others? Did they think it was true love too? Or were they “bad” women, who had lust without true love? Impure, not virgins, not a “good” girl. Seems pretty confusing to me. Often the virgin gets pregnant because, hey, she is carried away by uncontrollable love, so of course she would not think about birth control. What is the experienced man thinking? Hey, let’s get this one pregnant, I’d like to pay child support? Oh, he’s carried away by uncontrollable love, but really now, you’d think after all that experience that he would use birth control. Apparently the rich experienced older seducer males are all morons when struck in the heart by true love. These books should be burned, really.

Anyhow, I was suspicious of the princess story and I wanted my own horse and armor and sword and I’ll fight my own dragons, thank you! I was much more interested in the super hero story, even though the superheroines were still pretty lame and likely to get killed off. Oh, and girlfriends get killed off. Gwen dying from fear during a fall: give me a break. Yuk. Made me glad she was dead if she was that much of a weakling. At least she couldn’t reproduce. I liked Mary Jane a whole lot more: feisty.

I wanted to be a superhero and still human, not a princess.

So what is the happiest day of a man’s life?

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The cat is Boa, not Sol Duc. Boa died at age 17 right before Covid-19 started.

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Elephant

My daughter got the elephant in the mail yesterday.

She called me, very happy with it. “It has a TAIL! It matches the pillowcase. I love the fishy fabric.”

The back story is that when she was a baby, her father’s mother made her a pillow. It had two pockets. In the pockets were four small stuffed toys. Her older brother has one too. The toys were not exactly the same. Hers had an elephant.

When she got sick earlier this year, I start sending her care packages. I send the pillow with three of the stuffed toys. However, I don’t find the elephant.

She loves it but asks, “Where’s the elephant?”

“I’m still looking.” The elephant is pink, with fabric ears that are different from the body. I find it! She is coming here for a month, so I don’t mail it. She is very pleased with the elephant.

It goes AWOL before she flies back to work. “Check the tent, mom.” She stayed in the tent in the back yard with two of her friends. I take the tent apart. No elephant. I check the sleeping bags. I sweep under her bed and search the house. As my daughter says, my house has a lot of hiding places and the cats like the elephant too. No elephant.

So for her birthday I make one. I remember how it looks and I make it while watching some continuing medical education. It’s easier to hand stitch than to get out the machine. I have to buy a large bag of stuffing, because the store downtown only has one size. Never mind, maybe I will make more elephants.

I made her a pillowcase last year, with the whale/mermaid fabric and the fish. So the elephant matches.

And she likes it! Hooray!

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My daughter says I can’t make clothes for her, but pillowcases and elephants are great! A breakthrough!

For the Ragtag Daily Prompt: breakthrough.

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Arty’s warning

Trigger warning: non graphic mention of child abuse.

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I don’t notice that things are frozen at first, because the cats aren’t frozen. I do notice the light. Also I notice the change in sounds. The car outside in the street is not moving nor making sound. Uh-oh.

I go to the front door. Might as well if everything is frozen. I just finished putting on make up, which always means a dangerous mood.

She lands first, on a white flying horse. Who smiles at me, showing fangs. Smoke is coming out of the Pegavamp’s nostrils. Eeeee.

Arty herself is in silver and black today. Silver cloth with black embroidery that seems to be writing a little.

“Good morning, Goddess.” I say, bowing. The other horses and dragons and flying motorcycles and pterodactyls are landing as well. Sol Duc is in the window. Elwha has gone to hide, quite sensibly, I think.

Arty stomps her staff on the ground. “I am really pissed.” she says.

“They named a rocket after you.”

“That penis toy? That is supposed to please me while they are killing virgins who refuse to tent their heads?”

“Sorry.” I hang my head.

“And do you know how much the smoke is going to shorten the lives of my birds and stags?”

“A lot, I think.”

“Do you all want to starve in the dark?’

I look up at her then. “No. I want grandchildren and a healthy earth.”

“Work harder.” she snarls. The rest of the dangerous crowd is muttering and snarling and the local cats have come out. They are sitting very respectfully at a distance. Rooftops. The ridge above my house three blocks up. The tree tops are frozen too.

“Do you need prescriptions again?” I ask. “I see that there have been a lot more rapists jailed. Thank you, Goddess.”

She looks tired for a moment. “We are hunting them everywhere: cities, countryside, hovels, palaces, movie sets, where ever.”

“You don’t turn them into stags any more?”

“Yes, sometimes. My hounds love to tear them apart. But sometimes prison is slower and crueler and a better punishment.”

I kneel. “What service can I do, Goddess?”

She touches me with the staff. I feel a hard bright shock, pain that roars through me and is gone.

“Write this. Write my warning. If this continues, it is death in the cold dark of nuclear winter and we will begin again.”

“Is that the only choice?”

“Oh, no, we are all being very creative. One suggestion has been the sperm banks. There is nothing that says they can’t be used to make one gender only. The one that rapes less and doesn’t kill young girls for what they wear.”

“Thank you for your warning.”

“Stand up.” she says. “You and every abused child, male or female, are under my protection. Yet the cycle must be broken and the abused must not become abusers. Write this.”

The Pegavamp drops one knee and she steps up easily. The other riders start to roar and shout and howl. Her winged creature jumps in the air and the whole group follows. There is a snap and they are gone.

The car in the street is moving and the treetops as well. The cats stand and move away.

I keep writing.

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October 22, 2022

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Finish?

“Get rid of him. Send a letter. Never speak to him again.” Male friend one.

“You need to read He’s Just Not That Into You.” Male friend two.

“There are other fish in the sea.” Brother.

“Men are too high maintenance.” Female mentor twenty years older than me.

But but but.

A poem circles in her head. “There was a little girl, who had a little curl, right in the middle of her forehead. When she was good, she was very very good. When she was bad she was horrid.”

We are like the poem. We bring out each other’s small child, two to four years old, who was hidden and traumatized. We laugh like hyenas. We play with words. We compare childhoods, each sometimes terrible, each full of scars. And when we disagree, we are also like four year olds. We want to stomp our feet and sulk. He wins the sulking award though. I worked through an awful lot of it with my sister and much effort, over 40 years. My sister was as smart as me or smarter intellectually. It’s the emotional part that is so hard to heal. Will you or won’t you, will you or won’t you, will you or won’t you, won’t you join the dance?

I don’t think he will.

But, but, but.

The small bird of hope sings happily and says he will, he will, he will…

For the Ragtag Daily Prompt: finish.

The photograph is me and my daughter years ago. Her expression is very thoughtful because I think this is the first time she is seated in an adult chair. She is thinking about it. I am not sure who took the photograph.

Epilogue.