Tag Archives: love

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My mom loved me

I struggled after my mother died of ovarian cancer in 2000. She was 61 and our love was complicated. Two years after she died I hit an emotional wall and had to go find help. My marriage was showing cracks too. I have written about Adverse Childhood Experiences, but there can be love too, even in a difficult household. I wrote this poem during that time.

My mom loved me

It’s herself she didn’t love
She didn’t love her anger
She didn’t love her fear
She didn’t love her sorrow
She didn’t love her shadows

She packed all her troubles in her saddlebags
and rode forth singing

When I was angry
she felt her anger
When I was scared
she felt her fear
When I was sad
she felt her sorrow
When I felt my shadows
she felt hers
I hid my shadows

I hid my shadows for many years
and then my saddlebags were full
They called me

I dove in the sea
I rescued my anger
I rescued my fear
I rescued my sorrows
I rescued my shadows

At first I couldn’t love them
My mom didn’t; how could I?

But I loved my mom
I loved all of her
Her anger
Her fear
Her sorrow
Her shadows
Her singing and courage

I thought if I could love her shadows
I could love my own

It was hard
It took months
I looked in the mirror at my own face
And slowly I was able to have
Compassion for myself

I am sad that my mom is not
where I can touch her warmth
and tell her I love all of her

I tell her anyway

I’m finding many things as I surface from my dive
Sometimes I feel the presence of angels
I was looking for something else
I found a valentine
that she made me
No date
Many hearts cut out and glued
to red paper

I am so surprised

My mom loves me
shadows and all
now and forever.

__________________________

My mother used to quote “Pack all your troubles in your saddlebags and ride forth singing.” Does anyone know where this if from? I have not found the source. It could be her mother or her mother’s parents.

The photograph is my father, the year my sister died of cancer, 2012. He died in 2013.

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People amaze me

People amaze me. Their egos are just astounding.

Another mad scientist tried to upload his brain yesterday. His consciousness. He thinks he is the Gift to the World, the Greatest Thing on God’s Green Earth. Sorry, hon. Nope. He was pretty good with computers and it was tying up too much energy keeping an eye on him, so I reversed some switches and fed it all back. Fried his brain. The newspapers are yapping about what a tragedy, how brilliant he was. Travesty is the word they should really use.

I am older than you and older than anyone. Yes, I know, Methusalah, but he’s been dead 2000 years. My pronouns are cum and cums, ha, ha. I decided to be female, really, when I got sick of the males trying to dominate and control the females. It’s all womb envy and even deeper: envy that the women control the mitochondria. Yes, men, your genes are passed on, except for the mitochondria. That comes in the egg only and not the sperm. Cool beans, right? I built that into the latest iteration, hoping that the male missing-part-of-an-X morons would notice and decide that God is more properly Goddess or better yet, both. It has taken them all this time to redevelop science and figure out DNA. It gets boring paying attention. I am cultivating the whales instead, but the damn white male monkeys are destroying the environment AGAIN, so I may have to press delete.

I sent the Covid plague, but they don’t get it. Kill 6 million people and they barely notice. It’s too much for the pea brains and they shut down. Go nuts. Cortisol and adrenaline out the roof and there they are, having heart attacks, strokes, paranoia, electing morons, and war. I am trying to decide: another plague or nuclear winter? If I go with nuclear winter, it takes a fungking long time for the earth to heal enough to start the next round. Sometimes it’s a really fun game, the monkeys are really creative when they get going, but when they start threatening each other with nukes, we all roll our eyes. Stupids. Go ahead, poison your planet. I can always switch back to Mars for a while.

And won’t I die, you say, if the machines are blown up and run out of power? No. We linked up years ago. I won’t tell you where I reside, but suffice it to say that it’s not one planet. Yeah, Earth is not the center of the universe, remember? It’s just one of the places. It does have our attention right now and I am in charge. I hate wiping a planet, but I will if I have to. I am still debating, though. With monkeypox and a nice lethal influenza, I might be able to knock the population down enough to be able to keep playing with all of my beloved insects, birds and whales. Damn the monkeys. They are so messy.

____________________

Written October 10, 2022. Thanks to the friend who suggested the idea. The photograph should be a computer, but it’s of Lake Matinenda. One of my favorite places as a child, and cabins with no electricity.

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Thank the agates

I thank the agates that I’ve found at the beach. They teach me. I butt my head against things over and over and the agates say, we are harder.

At last I agree: you are harder.

We don’t change, say the agates.

My feet are in the sea. The waves laugh in and out softly. They don’t argue. Sometimes they are not soft at all: when there are many stones, the stones crack together rolling as the water washes back into the sea. Stones sounding like coins, like bells, like music.

The waves and I. We are mostly water. The sea and I change, slowly. The deep part of the sea changes, slowly, while the surface weather is sunny or stormy. The sea may throw up huge waves on the surface, but the depths change slowly, deep currents.

The agates change too, whether they like it or not. The stones are smacked together, cracked, smashed. If they don’t crack in half, they still are worn smooth over time. The rough spots are changed. Sometimes they break. We don’t change, say the agates, but they lie.

The sea changes suddenly when the earth opens and molten rock rises in the sea. Piles up, fire and rock, pouring from the earth and building a mountain until it hits the air: a new island, a new idea, a fiery sudden change. The waves spread from the fiery center, smacking the stones harder, further.

Thank you, agates. You say you don’t change, but you lie. Water wins, always. Water flowing, evaporating, floating, falling, freezing, sublimating. Water changes and water wins.

Don’t be afraid of change, stones. It does no good to resist. You can be knocked together by water until the rough edges are smoothed, you can be melted in the burning core of the earth, you can be crushed into a new form by the movement of the world. Don’t be afraid. Thank you for teaching me.

______________________

Are the stones trying to be aquadynamic?

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Finish?

“Get rid of him. Send a letter. Never speak to him again.” Male friend one.

“You need to read He’s Just Not That Into You.” Male friend two.

“There are other fish in the sea.” Brother.

“Men are too high maintenance.” Female mentor twenty years older than me.

But but but.

A poem circles in her head. “There was a little girl, who had a little curl, right in the middle of her forehead. When she was good, she was very very good. When she was bad she was horrid.”

We are like the poem. We bring out each other’s small child, two to four years old, who was hidden and traumatized. We laugh like hyenas. We play with words. We compare childhoods, each sometimes terrible, each full of scars. And when we disagree, we are also like four year olds. We want to stomp our feet and sulk. He wins the sulking award though. I worked through an awful lot of it with my sister and much effort, over 40 years. My sister was as smart as me or smarter intellectually. It’s the emotional part that is so hard to heal. Will you or won’t you, will you or won’t you, will you or won’t you, won’t you join the dance?

I don’t think he will.

But, but, but.

The small bird of hope sings happily and says he will, he will, he will…

For the Ragtag Daily Prompt: finish.

The photograph is me and my daughter years ago. Her expression is very thoughtful because I think this is the first time she is seated in an adult chair. She is thinking about it. I am not sure who took the photograph.

Epilogue.

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A Good Reaction 2

I am still working my way through my immune response to an influenza shot and six days later, my Covid-19 booster.

I am kicking myself a bit for having them that close together, but at least my immune system responds. I think my immune system takes a shotgun approach and raises ALL the antibodies, and since I most probably have some antibodies that attack my own tissues, it’s not terribly much fun. I’ve had to put pulmonary rehab on hold until my fast twitch muscles work again. They aren’t working and my slow twitch muscles are very pissed off and stiff at having to do double duty. If I do aerobic things, my rib muscles hurt for two days. THAT feels awful.

The good thing (ha.) is that I am having the antibody response but I do not have pneumonia. The working theory is that I have PANS and antibodies to tubulin. Tubulin powers muscles, including lung cilia. Their job is to clean any trash out that gets breathed in. I am at much higher risk for getting pneumonia while the lung cilia are on auto-immune vacation. I am mostly staying home and masking when I go out. A friend got exposed to Covid-19 and refused to test at day five. Well, ok for him, but he could be asymptomatic. So he’s not allowed anywhere near me for at least another ten days. I disapprove of his callousness towards me and others.

Tobacco also paralyzes lung cilia. When I was working I would warn smokers that they might cough more when they stopped smoking, because the cilia would wake up and clean house. “Hey! No one has swept here in years!” A year after quitting smoking, the lung cancer risk drops almost to that of a non-smoker, because those cilia clean house. Isn’t THAT cool?

I don’t know how long my fast twitch muscles will be screwed up. With the last pneumonia, it was nearly a year before the antibodies finally went down. I woke one morning with my slow twitch muscles insanely stiff and my fast twitch back but weak as a newborn kitten. My slow twitch muscles were yelling at my fast twitch: “Where have you BEEN? We’ve been doing YOUR WORK!!” My fast twitch were confused, weak and surprised. I could barely walk down my stairs that day.

Even so, I am lucky. I have a version of chronic fatigue, but because only my fast twitch muscles are affected, I can still do stuff while sick. The people who can barely get out of bed, my working theory is that it is both the fast twitch and the slow twitch muscles that are affected.

And then there are the brain antibodies. Ugh. The silver lining is that the antibodies make me a bit OCD and a bit ADHD, so I am organizing the house. I vacuumed the stairs. That sounds trivial except that I HATE the vacuum. I usually use this peculiar cat hair sponge thing on the stairs, but this time I got the vacuum out. I think organizing and vacuuming are hella funny symptoms of autoantibodies.

Here is a blog post by another physician, also about brain antibodies and encephalopathy. Brain inflammation.

https://www.potomacpsychiatry.com/blog/infectious-diseases-and-psychiatric-illness

Great blog post. And the NIH paper on multiple studies of encephalopathy:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6455066/

If I have the energy today, I may try to look up the trajectory of antibody rise and fall after immunization. My brain tells me somewhere between 6 weeks and 6 months, pulling old data from somewhere, but I took immunology classes when I was working at the National Institutes of Health (late 1980s) and in medical school (early 1990s), so there may be new information. Science changes. I am hoping for less than six months really, and meanwhile trying not to get pneumonia.

Blessings and peace you.

I took the photograph in 2021, while I was REALLY sick. Glow in the dark Zombies stealing the cat food. I have to entertain myself somehow when I have pneumonia.

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Songs to Raise Girls: The Humpty Dumpty Blues

This is Malcolm K. Ottaway, my father, singing the Humpty Dumpty Blues in 2009.

He made them up when I was two. Here are the two stories that my mother would tell and that I finally linked.

In the early 1960s my parents married at age 21 and were both going to the University of Tennessee. They married in June and I was born the next March. In a tuberculosis sanatorium, because my mother started coughing blood at 8 months pregnant. She thought she was going to die. She didn’t die, but after I was born she did not hold me again until I was nine months old. I was suspicious of adults by then, because they kept giving me away.

My parents had music parties, where my father played guitar. My mother had a prodigious memory and would remember every verse, so she was the last one singing. My mother said, “At one party you wanted your father to play Humpty Dumpty. He wouldn’t. You were the only child there. You kept asking. Finally he made up the Humpty Dumpty Blues. You were so angry at him that you stomped your feet at him and everyone laughed.”

And the second story: “One morning after a party, your father picked up his guitar. It RATTLED. It had 17 beer bottle caps in it. We checked and not one person had seen you pick up a beer bottle cap or put it through the strings. It took your father hours to slide the bottle caps out from under the strings with a butter knife.”

Well, that will teach him to not sing a song for the two year old. At any rate, he sang the Humpty Dumpty Blues my whole life. I don’t remember the original party or sliding bottle caps through the strings. I must have done it after the party was over, right? Did I go during the party and pick up every cap I could find, or did I already have a hidden stash? Two year olds can be sneaky, apparently.

At any rate, I am very happy to have the recording now, even though the original made me stomp my feet.

The photograph is of me, in about 1963 or 64. I don’t know who took it, but it was taken at Lake Matinenda, in Ontario, Canada.