Another Falling Angels poem.
quit
Another Falling Angels poem.
Today is PANS/PANDAS awareness day. I wrote this a couple weeks ago.
___________________________________
No pandas
I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.
I don’t have PANDAS because even though one psychiatrist said I did, he retired, and the next one says I don’t. Then not sure then no. They don’t agree.
I don’t have PANDAS because my primary care doctor won’t read the guidelines even after I have been her patient for seven years.
I don’t have PANDAS because my pulmonologist has never heard of it.
I don’t have PANDAS because it would be a lot easier to put me on a mood stabilizer to shut me up than listen to me.
I don’t have PANDAS because I am labelled difficult because I am afraid to take a mood stabilizer because I do not get a fever or a white count so my main symptom of infection is that other doctors think that I am manic though I am hypoxic and short of breath. They want to fix my mood while I want to not die of pneumonia, so our goals are at odds.
I don’t have PANDAS because I am a doctor and if I had PANDAS my fellow local doctors would feel guilty that they have told each other that I am bipolar and manic for the last 18 years and have shunned me at the county medical meetings and won’t even send me the invitations, except for the one that forwards them. He says he has given them my email and he doesn’t understand why they don’t send me the invitations.
I don’t have PANDAS because Seattle Children’s doesn’t allow the Cunningham Panel to be drawn and they say there is not enough evidence yet.
I don’t have PANDAS because I can’t afford to pay $925 on my own for the Cunningham Panel and anyhow my antibody level is back to whatever is my new baseline, higher than before no doubt.
I don’t have PANDAS because the other doctors are frightened: if I have PANDAS then who else does and if I have chronic fatigue caused by hypoxia and fibromyalgia and it’s related to PANDAS then who else would they have to test and neuropsychiatric is a whole different thing from psychiatric and we swear that we don’t know what causes chronic fatigue and fibromyalgia.
I don’t have PANDAS because I am an adult who lives in the US though if I was in Canada or Europe I could in fact have PANDAS.
I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.
It is easy with you
All the places you’ve been offended
Where you haven’t been treated right
A bike shop
Food co-op
Coffee shops
Restaurants
It’s easy to hide my physical body
Where you can’t find me
But what of my mind and heart
You always feel it when I go
I go to the Beloved
I give up
I cast myself into the abyss
Grief, denial, loss, bargaining, abandonment, hopeless grief
I throw myself over the cliff
Over and over
I resist
And then let go
It’s not wings
Because the cliff is a waterfall
I don’t want wings
And the Beloved laughs
Wings form
I refuse to fly
I won’t I won’t I won’t
I fall towards the water
Each time I wonder
If this time the Beloved will not shift
I hit the water
Safe again
Scales and tail
And I can breathe
And swim free
To the sea
A friend in his 30s was working on my car the other day. “Are you immunized?” I ask. “No.” he says. “I wish you’d get immunized,” I say, “Also, I can’t ride in the car with you because if I get the Delta variant, I’ll probably die.” He responds, “I hate doing what other people tell me to do.” “Oh,” I say, “Oppositional defiant, just like me. Fine. Don’t get the vaccine.”
Two days later I text. “Don’t get the vaccine today. Or tomorrow.”
I hear back. He got vaccinated the day I sent the text. I don’t know if it was me saying don’t do it, or me getting out of the car and staying a good ten feet away after that. Please don’t kill me, not today, ok?
Maybe we should try it nation wide. “DON’T GET VACCINATED. DON’T DO IT TODAY. OR TOMORROW.”
Unvaccinated thirty year olds are getting really sick and getting intubated and dying. One in five hospitals in the US now is 95% full, on divert. I used to heave a sigh of relief when I was in residency and we were on divert. That meant no admissions until beds opened back up. We are full. But one in five is really bad. Virginia Mason in Seattle is on divert. Our rural county has more covid infections than we’ve had the whole time, mostly unvaccinated. About 15% vaccinated. We are starting to see the breakthrough infections, around 8 months after the vaccine. Makes sense, because the vaccine riles up the immune system for 8 months and then quiets down. I am 8 months out, no immune system, high bleeping risk. The head of the heart lung bypass part of Virgina Mason was interviewed. “We have been full for ten months (?or a year) and have turned away over 150 patients.” So heart lung bypass could save lives in covid. But it takes round the clock two ICU nurses and the ICU nurses are burning out, quitting, dying. If they get too tired, their immune systems don’t work, they are more at risk for covid and they could die. The nurses and the doctors KNOW this. So…. how many unimmunized people are you willing to die for? Just curious.
Kids have been at home, quarantined, small groups. So then they started school or daycare or even a few more playdates and hello: when you get them together, they trade viruses. There is an outbreak of RSV and other viruses. RSV won’t kill most kids but some babies need the hospital and it can kill premies. And the beds, remember, are full.
Now the AAFP is calling for emergency authorization for kids age 2-11 to get the vaccine. Because they are dying too and there bloody won’t be room in the hospitals at this rate. Or well, you can build a tent, but if you don’t have any ICU nurses, the tent is not too helpful.
For the governors saying “No mask mandate at school,” yeah, well, I think they should refuse the vaccine and refuse treatment and refuse intubation and refuse oxygen.
Meanwhile, I am hiding under the bed. Roll up the sidewalks, lock the doors, I am sorry not to be useful but I am not useful dead. I could telemedicine if our area gets shorthanded enough. I suppose I should call the hospital and say that. They aren’t that desperate… yet. We have four ventilators last I checked. And 32,000 people in the county and we are the only hospital. Bummer.
I am in a physician mothers Facebook group. The stories are getting grimmer and grimmer. A physician put up the list of hospitals she called to try to transfer a patient: over 30. All no. Another is in North Carolina and got a call from Texas to transfer a patient. But… they were on divert. No.
Take care. Don’t get your immunization if you are against it. Whatever.
I have photographed lots of eagles in trees. Now I am trying to catch them in flight. It’s tricky. Against a gray sky, I am still happy with this one.
She is mistress of all she surveys.
For today’s Ragtag Daily Prompt.
There were long distance swimmers out going parallel to the shore on my last beach walk. Four of them. Women, because voices carry over the water. Brrr, but wearing wet suits. Good for them, I’m jealous.
I had my big camera with the serious zoom. The swimmers would stop to talk.

They don’t look tired or cold or stressed, do they? They were ending their swim back at North Beach.
This is a song that needs a tune. Message me if you have one for it…. and thank you
Let’s go to the beach and take a walk
Wander down the sand and share a talk
You have your life and I have mine
Meet for a little while, that suits us fine
We’re searching for agates
You show me how
I’ve lost interest in beach glass now
The clear ones let the light shine through
Like a friend that is always true
Short walks, long walks, walks for miles
Talk wanders, past, present, sorrows and smiles
You show me how agates catch the sun
You find three and I find one
We’re searching for agates
You show me how
I’ve lost interest in beach glass now
The clear ones let the light shine through
Like a heart that is always true
You say in the winter the agates hide
With rain and dark you say we’ll go inside
Make music and sing and learn new songs
And see what else comes along
We’re searching for agates
you show me how
I’m getting pretty decent at finding them now
The clear ones let the light shine through
They almost shine as much as you
written 10/9/20
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