Category Archives: abandoned

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Falling

Poem: Falling

I was asked to write a poem from the perspective of the angels in my dream. I have posted this once before, but not with all the other Falling Angels poems. It is a sequence of poems responding to a dream.

Falling

We are stars
We are born
We are made to burn
We flame
We explode or burn out
We are made to die

We are angels
We are made to fall
We all fall
We are white falling in black space
Or black falling in white space
If you prefer
It doesn’t matter
It is the contrast that is important
There is no light without dark

We are angels
We are made to fall
We all fall

Do you fear
your fear?
your anger?
Your grief?
falling?
death?

We fall for you

If you reject
your fear
your anger
your grief
falling
death

We will fall for you
We accept falling

All must fall

If you accept
your fear
your anger
your grief
falling
death

We will fall with you

You will fall with us

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Straddle this place

Straddle this place, where we look at history again and again, admit horror and mistakes and cruelty, and work together to build a future.

Indigenous Peoples’ Day 2021: Reflecting on Indigenous leadership in labor

For the Ragtag Daily Prompt: straddle.

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No pandas

Today is PANS/PANDAS awareness day. I wrote this a couple weeks ago.

Home
PANDAS PHYSICIANS NETWORK: PANS/PANDAS AWARENESS DAY

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No pandas

I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.

I don’t have PANDAS because even though one psychiatrist said I did, he retired, and the next one says I don’t. Then not sure then no. They don’t agree.

I don’t have PANDAS because my primary care doctor won’t read the guidelines even after I have been her patient for seven years.

I don’t have PANDAS because my pulmonologist has never heard of it.

I don’t have PANDAS because it would be a lot easier to put me on a mood stabilizer to shut me up than listen to me.

I don’t have PANDAS because I am labelled difficult because I am afraid to take a mood stabilizer because I do not get a fever or a white count so my main symptom of infection is that other doctors think that I am manic though I am hypoxic and short of breath. They want to fix my mood while I want to not die of pneumonia, so our goals are at odds.

I don’t have PANDAS because I am a doctor and if I had PANDAS my fellow local doctors would feel guilty that they have told each other that I am bipolar and manic for the last 18 years and have shunned me at the county medical meetings and won’t even send me the invitations, except for the one that forwards them. He says he has given them my email and he doesn’t understand why they don’t send me the invitations.

I don’t have PANDAS because Seattle Children’s doesn’t allow the Cunningham Panel to be drawn and they say there is not enough evidence yet.

I don’t have PANDAS because I can’t afford to pay $925 on my own for the Cunningham Panel and anyhow my antibody level is back to whatever is my new baseline, higher than before no doubt.

I don’t have PANDAS because the other doctors are frightened: if I have PANDAS then who else does and if I have chronic fatigue caused by hypoxia and fibromyalgia and it’s related to PANDAS then who else would they have to test and neuropsychiatric is a whole different thing from psychiatric and we swear that we don’t know what causes chronic fatigue and fibromyalgia.

I don’t have PANDAS because I am an adult who lives in the US though if I was in Canada or Europe I could in fact have PANDAS.

I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.