I am to have the intention daily to release old grief
it sits in my throat aching lump, knot, old I don’t know how old is it from before birth I haven’t looked up whether antibodies to tuberculosis cross the placenta attacking
Kell kills that is one of the antibodies that can kill a fetus
I have the grief a tiger by the tail
at first I was afraid that releasing it would lose some core part of myself that the me I have built is the nacre, a pearl wrapped around a core of grief
but Beloved I try to listen I try so hard to listen to have faith why pay for help without attempting to follow the ideas unless they are so clearly wrong
conversation with myself the past the woman the girl the child the fetus let the grief go gently
Beloved maybe I am not gentle enough full speed ahead maybe I need to cradle the grief more rock it, comfort it, thank it grief, you protected me so much from the patterns in the family
Beloved maybe I need to thank the grief before I let it go
my cousin says that people learn to stay away from angry people
I am hurt and then let that go and think, yes, she is right my cousins say over and over that I am too angry when I’m not angry until it makes me angry
my cousin gives good advice I let go and stay away it’s not my anger
I thought allopathic medicine was where we listened to the patient I let go of that too, disillusioned
a family member wants to be free I let go
I let go of you slowly I let go of coffee I let go of sitting next to you I let go of seeing you daily I let go of asking I let go of driving by
I let go of hope
I have not let go of longing
I think that I can fall without letting go of longing
it is only a thread like a spider’s web thrown into the universe
I was asked to write a poem from the perspective of the angels in my dream.I have posted this once before, but not with all the other Falling Angels poems. It is a sequence of poems responding to a dream.
Falling
We are stars We are born We are made to burn We flame We explode or burn out We are made to die
We are angels We are made to fall We all fall We are white falling in black space Or black falling in white space If you prefer It doesn’t matter It is the contrast that is important There is no light without dark
We are angels We are made to fall We all fall
Do you fear your fear? your anger? Your grief? falling? death?
We fall for you
If you reject your fear your anger your grief falling death
We will fall for you We accept falling
All must fall
If you accept your fear your anger your grief falling death
PANDAS PHYSICIANS NETWORK: PANS/PANDAS AWARENESS DAY
___________________________________
No pandas
I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.
I don’t have PANDAS because even though one psychiatrist said I did, he retired, and the next one says I don’t. Then not sure then no. They don’t agree.
I don’t have PANDAS because my primary care doctor won’t read the guidelines even after I have been her patient for seven years.
I don’t have PANDAS because my pulmonologist has never heard of it.
I don’t have PANDAS because it would be a lot easier to put me on a mood stabilizer to shut me up than listen to me.
I don’t have PANDAS because I am labelled difficult because I am afraid to take a mood stabilizer because I do not get a fever or a white count so my main symptom of infection is that other doctors think that I am manic though I am hypoxic and short of breath. They want to fix my mood while I want to not die of pneumonia, so our goals are at odds.
I don’t have PANDAS because I am a doctor and if I had PANDAS my fellow local doctors would feel guilty that they have told each other that I am bipolar and manic for the last 18 years and have shunned me at the county medical meetings and won’t even send me the invitations, except for the one that forwards them. He says he has given them my email and he doesn’t understand why they don’t send me the invitations.
I don’t have PANDAS because Seattle Children’s doesn’t allow the Cunningham Panel to be drawn and they say there is not enough evidence yet.
I don’t have PANDAS because I can’t afford to pay $925 on my own for the Cunningham Panel and anyhow my antibody level is back to whatever is my new baseline, higher than before no doubt.
I don’t have PANDAS because the other doctors are frightened: if I have PANDAS then who else does and if I have chronic fatigue caused by hypoxia and fibromyalgia and it’s related to PANDAS then who else would they have to test and neuropsychiatric is a whole different thing from psychiatric and we swear that we don’t know what causes chronic fatigue and fibromyalgia.
I don’t have PANDAS because I am an adult who lives in the US though if I was in Canada or Europe I could in fact have PANDAS.
I don’t have PANDAS because in the United States we barely believe in it in children and we don’t at all in adults.
Discover and re-discover Mexicoβs cuisine, culture and history through the recipes, backyard stories and other interesting findings of an expatriate in Canada
Engaging in some lyrical athletics whilst painting pictures with words and pounding the pavement. I run; blog; write poetry; chase after my kids & drink coffee.
Refugees welcome - FlΓΌchtlinge willkommen I am teaching German to refugees. Ich unterrichte geflΓΌchtete Menschen in der deutschen Sprache. I am writing this blog in English and German because my friends speak English and German. Ich schreibe auf Deutsch und Englisch, weil meine Freunde Deutsch und Englisch sprechen.
You must be logged in to post a comment.