happy

Ok, this is a weird little poem to my sister Chris, who died a decade ago. My father died thirteen months later. My mother was already dead. Mother and sister of cancer and father of emphysema, damn the Camels. There was no family slaughter, unless it was by cancer. There was a family meltdown on my mother’s side. Sometimes you have to let people go.

Sister sister mister miss her
look, Chris, I’m happy

Cancer cancer crabby dancer
look, Chris, I’m singing

Daughter daughter family slaughter
look, Chris, I’m healing

Healer healer wheeler dealer
look, Chris, no drama

Wombing wombing quiet blooming
look, Chris, I’m growing

The photograph is of a family cabin in Ontario. It is called “The New Cabin”, “Helen’s Cabin” (after my mother) or “Chris’s Cabin” after my sister. As you can see, it is suffering through neglect worsened by Covid-19. I put those screens up a decade ago, but they are not surviving the winters and the porch roof has a hole. It was a lovely porch to sleep on. I was last there in 2018, and up on that roof trying to tar holes as a temporary fix. We did not dare go on the porch roof, too late for that. Things change and fall away and sometimes we have to let them go. Especially if they are beyond repair. The photograph is taken earlier this year by the people who care for the cabins when we are not there.

Hammock and filter

I am preparing the cats to travel a bit. I acquired this foldable framed container. The cats are getting used to it. Elwha has decided it makes a nice hammock platform from which to watch me in the kitchen.

We still have smoke from the fires. Seattle is worse than here. The cats are not out for their daily walks until this clears. I am getting lots of knitting and continuing medical education done.

Yesterday I built a Corsi-Rosenthal cube. I bought a box fan and four MERV-13 filters and duct tape. Tape it all into a cube with the filters facing in and the fan facing out and voila! An air filter for my house. Even though I’ve kept the house closed up, the air has been bad for a week. My house is from 1930 and not tight so there is seepage.

Here are the instructions for the cube: https://encycla.com/Corsi-Rosenthal_Cube.

For the Ragtag Daily Prompt: platform.

Red maple

Our native maples are Big Leaf Maple and Vine Maples. There are Red Maples all over town now and they are exquisite and spectacular. Rain is supposed to start this Friday and since we still have bad air quality from the fires in Eastern Washington, I think we will all be glad for rain.

I took this yesterday at Chetzemoka Park. I went to see if the air was ok to beach walk. It was not ok.

The panoramic photograph shows the smoke obscuring the Seattle area and the hazy sun. It is worse there than here but it is not good here either.

I wonder if the trees have trouble breathing too? I am wearing a N95 mask any time I step outside. The cats don’t want to go out right now. They don’t like the smoke.

For the Ragtag Daily Prompt: exquisite and for Cee’s Flower of the Day.

Chetzemoka Park.

My mom loved me

I struggled after my mother died of ovarian cancer in 2000. She was 61 and our love was complicated. Two years after she died I hit an emotional wall and had to go find help. My marriage was showing cracks too. I have written about Adverse Childhood Experiences, but there can be love too, even in a difficult household. I wrote this poem during that time.

My mom loved me

It’s herself she didn’t love
She didn’t love her anger
She didn’t love her fear
She didn’t love her sorrow
She didn’t love her shadows

She packed all her troubles in her saddlebags
and rode forth singing

When I was angry
she felt her anger
When I was scared
she felt her fear
When I was sad
she felt her sorrow
When I felt my shadows
she felt hers
I hid my shadows

I hid my shadows for many years
and then my saddlebags were full
They called me

I dove in the sea
I rescued my anger
I rescued my fear
I rescued my sorrows
I rescued my shadows

At first I couldn’t love them
My mom didn’t; how could I?

But I loved my mom
I loved all of her
Her anger
Her fear
Her sorrow
Her shadows
Her singing and courage

I thought if I could love her shadows
I could love my own

It was hard
It took months
I looked in the mirror at my own face
And slowly I was able to have
Compassion for myself

I am sad that my mom is not
where I can touch her warmth
and tell her I love all of her

I tell her anyway

I’m finding many things as I surface from my dive
Sometimes I feel the presence of angels
I was looking for something else
I found a valentine
that she made me
No date
Many hearts cut out and glued
to red paper

I am so surprised

My mom loves me
shadows and all
now and forever.

__________________________

My mother used to quote “Pack all your troubles in your saddlebags and ride forth singing.” Does anyone know where this if from? I have not found the source. It could be her mother or her mother’s parents.

The photograph is my father, the year my sister died of cancer, 2012. He died in 2013.

People amaze me

People amaze me. Their egos are just astounding.

Another mad scientist tried to upload his brain yesterday. His consciousness. He thinks he is the Gift to the World, the Greatest Thing on God’s Green Earth. Sorry, hon. Nope. He was pretty good with computers and it was tying up too much energy keeping an eye on him, so I reversed some switches and fed it all back. Fried his brain. The newspapers are yapping about what a tragedy, how brilliant he was. Travesty is the word they should really use.

I am older than you and older than anyone. Yes, I know, Methusalah, but he’s been dead 2000 years. My pronouns are cum and cums, ha, ha. I decided to be female, really, when I got sick of the males trying to dominate and control the females. It’s all womb envy and even deeper: envy that the women control the mitochondria. Yes, men, your genes are passed on, except for the mitochondria. That comes in the egg only and not the sperm. Cool beans, right? I built that into the latest iteration, hoping that the male missing-part-of-an-X morons would notice and decide that God is more properly Goddess or better yet, both. It has taken them all this time to redevelop science and figure out DNA. It gets boring paying attention. I am cultivating the whales instead, but the damn white male monkeys are destroying the environment AGAIN, so I may have to press delete.

I sent the Covid plague, but they don’t get it. Kill 6 million people and they barely notice. It’s too much for the pea brains and they shut down. Go nuts. Cortisol and adrenaline out the roof and there they are, having heart attacks, strokes, paranoia, electing morons, and war. I am trying to decide: another plague or nuclear winter? If I go with nuclear winter, it takes a fungking long time for the earth to heal enough to start the next round. Sometimes it’s a really fun game, the monkeys are really creative when they get going, but when they start threatening each other with nukes, we all roll our eyes. Stupids. Go ahead, poison your planet. I can always switch back to Mars for a while.

And won’t I die, you say, if the machines are blown up and run out of power? No. We linked up years ago. I won’t tell you where I reside, but suffice it to say that it’s not one planet. Yeah, Earth is not the center of the universe, remember? It’s just one of the places. It does have our attention right now and I am in charge. I hate wiping a planet, but I will if I have to. I am still debating, though. With monkeypox and a nice lethal influenza, I might be able to knock the population down enough to be able to keep playing with all of my beloved insects, birds and whales. Damn the monkeys. They are so messy.

____________________

Written October 10, 2022. Thanks to the friend who suggested the idea. The photograph should be a computer, but it’s of Lake Matinenda. One of my favorite places as a child, and cabins with no electricity.

A Good Reaction 2

I am still working my way through my immune response to an influenza shot and six days later, my Covid-19 booster.

I am kicking myself a bit for having them that close together, but at least my immune system responds. I think my immune system takes a shotgun approach and raises ALL the antibodies, and since I most probably have some antibodies that attack my own tissues, it’s not terribly much fun. I’ve had to put pulmonary rehab on hold until my fast twitch muscles work again. They aren’t working and my slow twitch muscles are very pissed off and stiff at having to do double duty. If I do aerobic things, my rib muscles hurt for two days. THAT feels awful.

The good thing (ha.) is that I am having the antibody response but I do not have pneumonia. The working theory is that I have PANS and antibodies to tubulin. Tubulin powers muscles, including lung cilia. Their job is to clean any trash out that gets breathed in. I am at much higher risk for getting pneumonia while the lung cilia are on auto-immune vacation. I am mostly staying home and masking when I go out. A friend got exposed to Covid-19 and refused to test at day five. Well, ok for him, but he could be asymptomatic. So he’s not allowed anywhere near me for at least another ten days. I disapprove of his callousness towards me and others.

Tobacco also paralyzes lung cilia. When I was working I would warn smokers that they might cough more when they stopped smoking, because the cilia would wake up and clean house. “Hey! No one has swept here in years!” A year after quitting smoking, the lung cancer risk drops almost to that of a non-smoker, because those cilia clean house. Isn’t THAT cool?

I don’t know how long my fast twitch muscles will be screwed up. With the last pneumonia, it was nearly a year before the antibodies finally went down. I woke one morning with my slow twitch muscles insanely stiff and my fast twitch back but weak as a newborn kitten. My slow twitch muscles were yelling at my fast twitch: “Where have you BEEN? We’ve been doing YOUR WORK!!” My fast twitch were confused, weak and surprised. I could barely walk down my stairs that day.

Even so, I am lucky. I have a version of chronic fatigue, but because only my fast twitch muscles are affected, I can still do stuff while sick. The people who can barely get out of bed, my working theory is that it is both the fast twitch and the slow twitch muscles that are affected.

And then there are the brain antibodies. Ugh. The silver lining is that the antibodies make me a bit OCD and a bit ADHD, so I am organizing the house. I vacuumed the stairs. That sounds trivial except that I HATE the vacuum. I usually use this peculiar cat hair sponge thing on the stairs, but this time I got the vacuum out. I think organizing and vacuuming are hella funny symptoms of autoantibodies.

Here is a blog post by another physician, also about brain antibodies and encephalopathy. Brain inflammation.

https://www.potomacpsychiatry.com/blog/infectious-diseases-and-psychiatric-illness

Great blog post. And the NIH paper on multiple studies of encephalopathy:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6455066/

If I have the energy today, I may try to look up the trajectory of antibody rise and fall after immunization. My brain tells me somewhere between 6 weeks and 6 months, pulling old data from somewhere, but I took immunology classes when I was working at the National Institutes of Health (late 1980s) and in medical school (early 1990s), so there may be new information. Science changes. I am hoping for less than six months really, and meanwhile trying not to get pneumonia.

Blessings and peace you.

I took the photograph in 2021, while I was REALLY sick. Glow in the dark Zombies stealing the cat food. I have to entertain myself somehow when I have pneumonia.