Tag Archives: home

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Damaged or blessed?

Am I damaged or blessed to have PANS?

Damaged because it has put me out six times? Four times with pneumonia, once with preterm labor, and once with mononucleosis. Plus getting really sick with strep A as a kid, an earache that had me crying with pain at age 8, coughs in medical school that would hang on for six weeks and not respond to albuterol. Only rest would help. A year this time and not better yet, 6 months out last time and then seven years working half time. In 2012 out two months. 2005 out two months. Preterm labor out 6 months. Mononucleosis: dropped ten pounds and did not feel better or gain it back for two months. How much income have I lost? A lot. Am I damaged?

Blessed because I am not dead? My sister dies of cancer at 49, my mother at 61, my mother’s father at 79. All three married people who had “anger issues”. And all three got cancer.

I think that they had anger that they could not reach.

I do not think that ALL cancer is buried, unexamined, unresolved anger. But I am starting to see a medical pathway that could lead from buried anger or other buried emotions to illness and death. The buried emotions are stressful. The body tries to hold the stress. The body works very hard at it. The conscious mind is not aware. This is the realm of the unconscious. The stress, the unresolved trauma, anger, grief, whatever, triggers antibodies. Heightened sympathetic nervous system, higher adrenaline and higher cortisol. Cortisol is the steroid system. Steroids help to lower inflammation but they also impair the immune system. The immune system is chronically suppressed, trashed, and then it can’t do its job. Anti lysoganglioside antibodies form and block the lysogangliosides. The lysogangliosides are supposed to clean house in the brain. They can’t clean house, they are paralyzed. And the brain forms plaques: dementia. Or some other antibody forms that blocks cancer removing cells in the immune system: and there it is. Cancer.

We all have cancer all the time, that our immune system is removing. That’s a little weird to think about, isn’t it? So we need healthy immune systems, we need the parasympathetic nervous system, we need to relax, we need to play, we need to laugh ourselves silly at stupid cat videos, we need to make ridiculous memes go viral on TikTok, we need to use the power of the internet to drive the cost of a share up just to fuck with the rich Bosses, because we are tired of them fucking us over.

So, says my sig other, or he who used to be. You need to avoid stress, in order to not get sick again.

Well. I stopped eating on Saturday a week ago and ate minimal calories and mostly high protein and fat. Because I was pretty sure he was breaking up with me. He felt the same about me. I was terrified when we walked two days ago, so I wore the dragon shirt. Most of all I wanted not to yell.

Neither of us yelled. We both listened. He doesn’t know why he has shut me out of three areas of his life, and the three most important ones. It isn’t me. He is aware that it is him. He was not really aware that he was doing it. I am trained to hide emotions, from childhood in my crazy family and then physicians are trained as well. I cry with patients sometimes, when we find that their cancer is back, or other things like that. The child dying. But I can hold a calm expression even when a person tells me that they are hearing voices telling them to kill themselves and would I please take out the antenna in their tooth. So I sat hard on my emotions for ten months. Until I thought the right time had come.

Even then, I did my best and screwed up. We’d opened up one thing and I thought the rest would be ok. I sent an email. Whoa, boy, it was NOT ok, and I got yelled at. I burst into tears. I didn’t feel like yelling at all, I was crushed. But it is ok, it had to come out. The Year of the Ox is almost over. I hope the Year of the Tiger is less horrible. But at the same time, I would not trade the time with him for anything.

Damaged or blessed? Cursed or blessed?

Both, I think. All of us.

I am submitting this to today’s Ragtag Daily Prompt, though it is not a hawk.

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Skookum Smithsonian

I forget how BIG the Washington, DC Mall is. On my last day visiting out east over the winter holidays, my friend B and I went to the Mall. Above is the Smithsonian National Museum of Natural History (DINOSAURS!), then the National Gallery of Art and then the Capitol Building. We went to the National Gallery first because they opened late at 11 am, while the Smithsonian was opening some buildings at 1 pm.

Looking the other way, the Washington Monument, the National Museum of African American History and Culture, and the National Museum of American History.

The museum buildings are each two city blocks long and a city block wide. They are enormous. We only went through part of the National Gallery and then ducked in to Natural History. There are now 23 buildings, including the National Zoo, in the Smithsonian. It is amazing and wonderful. And there are other museums as well, including the National Gallery of Art.

The Smithsonian: https://www.si.edu/museums.

The National Gallery of Art: https://www.nga.gov/.

cast of a triceratops skull

They are SKOOKUM museums.

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Up a tree

I love Great Blue Herons. We have a lot. I love them best in trees, because they still look strange to me in trees. They will perch right on the top of our tall Pacific Northwest trees and look like peculiar Christmas tree toppers. Alien angels. Their bones are lighter than ours, so they can stand on a limb that would not hold me or you.

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organize

I am ready to organize my house.

I thought for years that I am NOT capable of organizing a house.

It turns out that I never had time to organize my house. I was a single mother family physician doing rural medicine including obstetrics and frequently on call, and then I opened my own business.

So organizing the house was way down the list of priorities.

I’ve been home now since March 20, 2020. I am starting to really recover from the pneumonia and muscle dysfunction. So now I am organizing once again.

I need a work room, other than the computer room. I set one up upstairs, but in this 1930s house, the upstairs room is too cold. It is great for sleeping but not for a prolonged time working on a project. So I am eyeing my spaces. I could use the front room which is currently the invasion from my clinic. However, I love having the front windows right there when I am on the computer. The cats have a chair there too and keep me company.

I am eyeing rooms in the basement. There is baseboard electric in three rooms. It means moving things around, but that is not difficult. It may take me a little while, but I will get it done.

I am ready to organize it.

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For the Ragtag Daily Prompt: READY!

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hope for good coming out of isolation

This video is from 2011. I was invited to be a speaker and had ten minutes to present the Mad as Hell Doctor program, talking about single payer healthcare, medicare for all.

If there is a good thing to get from Covid-19, for me it is single payer healthcare. Because doctors and nurses and staff are worn out, sick, quitting, dying. We need people to take out sick appendixes. We need people to work in nursing homes. We need to support our medical people and I am NOT talking about insurance corporations. They are making more profit than ever. Twenty percent of every dollar paid to them or more.

People say, but it’s socialized medicine, to have medicare for all. Well, no. The only socialized medicine in the US currently is the Veterans Administration. No one that I talk to wants to take away Veterans benefits. Or any of the other government programs: medicare, medicaid, active duty military. The oldest, the poorest and disabled and the people defending our country.

But physicians can do a better job if they are not worrying about prior authorization from 500 + companies, each with multiple different insurance contracts, and who can change what they cover at any time. I get emails all the time: we have changed what we cover. Great. Like I have time to read and learn 500+ insurance contracts. I memorize medicare rules and they change too. Medicare for all, one set of rules and then if you ask if something is covered, we will know.

I am not the only physician who wants single payer: Physicians for a National Healthcare Program.

Physicians for a National Health Program

I find this on line: https://www.quora.com/Could-Medicare-or-Medicaid-be-expanded-to-the-general-population-to-create-single-payer-healthcare-Would-it-be-more-efficient-than-an-entirely-new-program?share=1

The answer is yes, yes, yes. And there would be a continuous ongoing battle about what is covered and what isn’t but that already happens. For two reasons: medicine changes continuously as the science changes and there is a vocal strong fringe, which is occasionally correct. I don’t trust the fringe, but then I don’t trust insurance companies, herbal medicine makers or politicians either.

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I can’t credit the videographer because I did not know that the video was being taken or that it was posted. I found out when a new patient said she was seeing me because of my video. I had to look it up.

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Boa waiting

Boa Black would often wait in the yard, watching. What was she waiting for?

These:

Boa really liked the fawns. She would wait and watch the path into my second lot.

I have a 1930 house and a 1930 garage. The garage is on the lot line and one side extends five feet into a second lot, that is set at 90 degrees to the house lot. I quit mowing the second lot when I was divorced, working, and had two kids. I talked to the neighbors on the block and no one objected. The lot is hidden from the road by a huge bank of rosa rugosa.

The deer have used the lot in some years to stash young fawns while they made their rounds.

This is taken with a 26X zoom, so the fawn saw me but did not get spooked. Actually the fawn was hopping around in the second lot and managed to look guilty when I first saw it. Uh-oh, mom told me to stay hidden. It lay down and tried to pretend it had been behaving the entire time.

Boa Cat died in early 2020, after 17 years with me, a kitten from the pound. In memorium.

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Ms Bun

I get Ms Bun and the blanket from my church silent auction fundraiser. She did not have many bids, so I bid on her.

When I get her, I wonder who to give her to.

I am gone for two weeks, with a cat sitter coming in daily. The cats are bigger but still kittens. They are amazed when I get home. They are so surprised. I get the impression that they thought I was gone forever.

They are even more delighted when I go to bed. They purr and purr and purr. I am staying! They are very happy.

Today I have to get groceries. When I return, I see who Ms Bun is for. She helps take care of the cats when I am not here, and they both cuddle in her lap.

Welcome, Ms. Bun.