Tag Archives: Beloved

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A Good Reaction 2

I am still working my way through my immune response to an influenza shot and six days later, my Covid-19 booster.

I am kicking myself a bit for having them that close together, but at least my immune system responds. I think my immune system takes a shotgun approach and raises ALL the antibodies, and since I most probably have some antibodies that attack my own tissues, it’s not terribly much fun. I’ve had to put pulmonary rehab on hold until my fast twitch muscles work again. They aren’t working and my slow twitch muscles are very pissed off and stiff at having to do double duty. If I do aerobic things, my rib muscles hurt for two days. THAT feels awful.

The good thing (ha.) is that I am having the antibody response but I do not have pneumonia. The working theory is that I have PANS and antibodies to tubulin. Tubulin powers muscles, including lung cilia. Their job is to clean any trash out that gets breathed in. I am at much higher risk for getting pneumonia while the lung cilia are on auto-immune vacation. I am mostly staying home and masking when I go out. A friend got exposed to Covid-19 and refused to test at day five. Well, ok for him, but he could be asymptomatic. So he’s not allowed anywhere near me for at least another ten days. I disapprove of his callousness towards me and others.

Tobacco also paralyzes lung cilia. When I was working I would warn smokers that they might cough more when they stopped smoking, because the cilia would wake up and clean house. “Hey! No one has swept here in years!” A year after quitting smoking, the lung cancer risk drops almost to that of a non-smoker, because those cilia clean house. Isn’t THAT cool?

I don’t know how long my fast twitch muscles will be screwed up. With the last pneumonia, it was nearly a year before the antibodies finally went down. I woke one morning with my slow twitch muscles insanely stiff and my fast twitch back but weak as a newborn kitten. My slow twitch muscles were yelling at my fast twitch: “Where have you BEEN? We’ve been doing YOUR WORK!!” My fast twitch were confused, weak and surprised. I could barely walk down my stairs that day.

Even so, I am lucky. I have a version of chronic fatigue, but because only my fast twitch muscles are affected, I can still do stuff while sick. The people who can barely get out of bed, my working theory is that it is both the fast twitch and the slow twitch muscles that are affected.

And then there are the brain antibodies. Ugh. The silver lining is that the antibodies make me a bit OCD and a bit ADHD, so I am organizing the house. I vacuumed the stairs. That sounds trivial except that I HATE the vacuum. I usually use this peculiar cat hair sponge thing on the stairs, but this time I got the vacuum out. I think organizing and vacuuming are hella funny symptoms of autoantibodies.

Here is a blog post by another physician, also about brain antibodies and encephalopathy. Brain inflammation.

https://www.potomacpsychiatry.com/blog/infectious-diseases-and-psychiatric-illness

Great blog post. And the NIH paper on multiple studies of encephalopathy:

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6455066/

If I have the energy today, I may try to look up the trajectory of antibody rise and fall after immunization. My brain tells me somewhere between 6 weeks and 6 months, pulling old data from somewhere, but I took immunology classes when I was working at the National Institutes of Health (late 1980s) and in medical school (early 1990s), so there may be new information. Science changes. I am hoping for less than six months really, and meanwhile trying not to get pneumonia.

Blessings and peace you.

I took the photograph in 2021, while I was REALLY sick. Glow in the dark Zombies stealing the cat food. I have to entertain myself somehow when I have pneumonia.

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Songs to Raise Girls: The Humpty Dumpty Blues

This is Malcolm K. Ottaway, my father, singing the Humpty Dumpty Blues in 2009.

He made them up when I was two. Here are the two stories that my mother would tell and that I finally linked.

In the early 1960s my parents married at age 21 and were both going to the University of Tennessee. They married in June and I was born the next March. In a tuberculosis sanatorium, because my mother started coughing blood at 8 months pregnant. She thought she was going to die. She didn’t die, but after I was born she did not hold me again until I was nine months old. I was suspicious of adults by then, because they kept giving me away.

My parents had music parties, where my father played guitar. My mother had a prodigious memory and would remember every verse, so she was the last one singing. My mother said, “At one party you wanted your father to play Humpty Dumpty. He wouldn’t. You were the only child there. You kept asking. Finally he made up the Humpty Dumpty Blues. You were so angry at him that you stomped your feet at him and everyone laughed.”

And the second story: “One morning after a party, your father picked up his guitar. It RATTLED. It had 17 beer bottle caps in it. We checked and not one person had seen you pick up a beer bottle cap or put it through the strings. It took your father hours to slide the bottle caps out from under the strings with a butter knife.”

Well, that will teach him to not sing a song for the two year old. At any rate, he sang the Humpty Dumpty Blues my whole life. I don’t remember the original party or sliding bottle caps through the strings. I must have done it after the party was over, right? Did I go during the party and pick up every cap I could find, or did I already have a hidden stash? Two year olds can be sneaky, apparently.

At any rate, I am very happy to have the recording now, even though the original made me stomp my feet.

The photograph is of me, in about 1963 or 64. I don’t know who took it, but it was taken at Lake Matinenda, in Ontario, Canada.

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Boa Black in dishabille

This is my beloved cat who died in February 2020. She was named Boa Black or Feather Boa, depending on the situation. We got her as a tiny kitten at the pound. She had the softest fur and purred the instant I picked her up. She was 17 when she died.

For the Ragtag Daily prompt: dishabille.

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Water reflections: fire sunrise

I took this three days ago, watching the sunrise on East Beach, Marrowstone Island. The fires in eastern Washington cause amazing colors. We could really use some rain in Washington, though not too much. The rivers are down, fishing is locked up, because the salmon are stuck in smaller pools and are too vulnerable. Some rain, please, but not those flooding atmospheric rivers?

At any rate, it is gorgeous watching the sky and water turn pink and orange.

For Jez’s Water Water Everywhere #147.