I don’t wear livery at work and anyhow that’s a uniform for men or a place to board horses though the horses can be male or female. Once I go to my daughter’s second grade for a bring your parent day and bring part of my uniform, or perhaps it is a tool or instrument, my stethoscope. The children all want to listen to my heart or at least touch this magical tool. Afterwards I receive thank you notes. I think that every one, except my daughter’s thanks me for bringing the stethoscope to their classroom. I did not know how special and magical a tool can be.
On Thursday and Friday I spent six hours daily glued to zoom, for the Inflammatory Brain Disorders Conference. Speakers, both physicians and scientists and physician-scientists, from all over the world, spoke. The research is intensive and ongoing. They spoke about Long Covid, both the immune response and “brain fog”. They spoke about anti-NMDA antibody disorder (the book Brain on Fire) and now there have been over 500 people identified with that disorder and a whole bunch more antibody-to-brain disorders! They talked about PANS and PANDAS and chronic fatigue and Mast Cell Activation Disorder and about the immune system over and over. The new information is amazing and I need to reread all my notes. Psychiatry and Neurology and Immunology are all overlapping in research, along with Rheumatology, since these disorders overlap all four.
It is a medical revolution in the making.
Best news was that 96% of Long Covid patients are better by 2 years from getting sick. That is tremendously reassuring, though the number may change. And the definition of Long Covid is still being sorted out and we do not know if people relapse.
I felt that MY brain was MELTED by the end, but I managed to enjoy the Rhododendron Parade on Saturday and just puttered around the house on Sunday.
A relatively young man comes to see me.
Problems, a bit intricate, I type a thorough
history as we talk. I make suggestions
and he is to return in a few weeks.
He receives a copy of the note and plan
spit out by the printer.
He returns. There is a pain component.
He does not bring the journal I suggested.
He seems no better. I add a little to the plan
and suggest that he return again.
And again and again. Fourth visit. No journal.
“What have you tried that I have suggested?”
He replies, “I haven’t read your notes yet.”
“You haven’t read my notes yet? In three months?
I’ll tell you what: how about you return after
you read my notes and try some
of my suggestions. Why come in if you aren’t interested
in trying anything?” I do not go to rage.
It is not my problem. It is his problem.
If he doesn’t like the plan or doesn’t want to read
(yes he can read) or doesn’t want change,
that is his choice. Don’t waste my time.
He does not return.
It is a mystery. What did he want?
Why didn’t he tell me if he wanted something else?
If it was opiates perhaps he asked around
and decided I am the wrong “provider”
since I am very careful about those provisions.
A mystery. I wonder if it could have played out differently. Then I let it go and move on.
Rainshadow Chorale is going to sing like Shakespeare birds on November 5th and 6th. I think this will be another delightful and really fun concert. I tried out for a solo wearing a cowgirl hat. My hat got a solo. I got a small group part. I’m too jealous of my hat, of my hat.
Why a cowgirl hat for Shakespeare? You’ll have to come to the concert to find out! We have composers ranging from Purcell to modern, all using Shakespeare’s words.
Anyhow, mark your calendars. My father was one of the initial eight choral members in 1997 and I joined in 2000. Sing on!
When I first think about divorce, I call my sister.
I say, “I am thinking about a divorce.”
She replies, “YOU don’t want to be a single mom.”
I think, well, crap, that is true. Me: “I AM a single mom. It’s just that one of them is FIFTY.”
My sister proceeds to tell me how difficult it is to be a single mother.
I have to self examine my OWN prejudices against single mothers.
Then I wade in, to solo and couples counseling, for a year. My ex fires our couples counselor after a YEAR. He says the counselor is on my side. “We have been talking to him for a year!” I protest.
“I want a new one,” says my then husband.
I find a new one. I am filling out the paperwork. It asks, what is your goal?
That is the moment I decide: I write “Amicable divorce.”
The two years before that moment, I am not sure. I am trying very very hard to see if it can be fixed. But it takes two to tango and my then husband will not tango. Not one step.
We were each attracted to something specific in the other person. My then husband did not want to work at any sort of traditional job. His father would come home angry from work for years. I loved working, always.
I was a terribly serious child, growing up in an alcoholic family, and I have food insecurity. That is, at some deep level, I always worry about whether there will be food. When I meet my then husband he says that his goal is “To have fun every day.”
This slays me. Have fun? And he WAS fun. Biking, jitterbug dancing, he was a tennis and golf pro, he was smart, well read, divorced from a marriage of convenience to a lesbian to cover so she could be a small town librarian. Really? Yes, really. I demanded to see the divorce papers before we got married. My then husband thought I was very very funny and I thought he was too.
When we divorce, people tell me he will never pay child support. He won’t stay in contact with the kids. There are a lot of opinions.
Wrong, wrong, wrong. My ex returns to school, gets a “displaced homemaker scholarship” because he was a househusband (yeah, I said he was smart). He goes to nursing school and gets an RN. “You’ve yammered about medicine at me for fourteen years, I might as well.”
He gave me hell about us living in an “old person’s” town. Then in nursing school he calls. “Hey, I’m doing a rotation. Guess what it is.”
“Don’t know, what?”
“Nursing home.”
I laugh.
“I LOVE these OLD PEOPLE.” he says. And he DOES. He is wonderful with them. He works in a nursing home for years. He gives scholarships to the medical assistants when they leave for nursing school. He brings coffee to his medical assistants and the other staff. He drives by on his day off because one elderly woman will only take her medicine if he gives it to her. He gets pianos for the nursing homes. He does memory loss concerts, where he tries to engage memory loss folks. We store music as entire songs, or entire albums, so if someone starts a song, they can often go through the whole thing. He can sometimes get someone singing who no longer can string a sentence together. Families love it.
Early in covid he calls me. “I have covid.”
“Sh-t.” I say. “Are you ok?”
“Oh, yeah. Everyone at the facility has it. Two staff didn’t so we sent them home. We are working sick because there isn’t anyone else.”
“Holy crap.”
“Yeah, it’s a little depressing. My memory loss folks can look ok at the start of the shift and are dead by the end.”
A quarter of the patients die. This is before the vaccine. My ex sails through covid, says he doesn’t feel bad, for him it’s just a cold. He says, “I miss some of them.” Yeah, holy crap.
So another hero. And he paid the child support every single month and stayed in touch with his kids in his own odd way. “Mom, he tells me about his golf shots,” says my daughter. I laugh, “Yeah. Well, he loves you.” “I don’t care about golf.” she says. “I know, me either,” I say.
The photograph was taken with my camera by my friend Amelia in 2014, I think. It is me and my ex, seven years after the divorce was final.
I read this to my ex prior to posting. Posted with his approval.
I took this on my trip in March 2022. So far no one has guessed where I was correctly. There is a wonderful Zoology and Science Museum. A mystery for you to consider, where was I?
A friend has a dog that sheds in the spring in great piles. On first glance the yard looks like rabbit murder, until you realize that it is dog fur.
And why would it be in my car? I’m not sure I want to say. It has something to do with rocks and eggshells and feathers and a project that is forming in my mind.
A physician says to me, βYou might have had more friends and been more successful in your career if you had been put on medication a long time ago.β
I think, βYou f—ing bitch.β Nothing shows on my face. The doctor face is pleasant on the surface and the stone face that guards my feelings is deeper. I could show you the snakes and you would turn to stone but I would go to jail.
Your words donβt go away. They fester, a deep deep wound. I ask my other doctor, βIf my only symptom of pneumonia is my mood, no white count, no fever, how would I know if I had pneumonia if I were medicated?β
I think back. Age twenty five with belly pain, emergency room, CT scan and then a sigmoidoscopy. I couldnβt eat, it hurt so bad. The emergency room offers me valium. βNo,β I say, βmy father is an alcoholic. I wonβt take that.β I am sent to counseling. The counselor, smug, blonde, polished, wants to send me to her husband, a psychiatrist, for drugs. βNo,β I say, βmy father is an alcoholic. I want talk therapy not drugs.β I am very very afraid.
Things get better. I tell the counselor thank you. βYou canβt stop now,β she says, βYou must continue the counseling. Or you will have problems later on.β I go once more. She says I must keep coming. I speak to a family friend, a PhD psychologist, who encourages me to say no. I cancel. No regrets.
I am not an alcoholic. I donβt smoke. I donβt use pot nor CBD. I never tried cocaine or meth or opioids or crack. I can tell an addict by their charm: the sick people are not charming nor the people in for maintenance. The moment a person tries to charm me I wonder what they want.
The physician is wrong and cruel besides. Valium is addictive and is still overused. I could have taken the path of psychiatric medicine but I chose not to.
I will find another doctor who is less stupid and cruel. They do exist. I know, because I am one.
Discover and re-discover Mexicoβs cuisine, culture and history through the recipes, backyard stories and other interesting findings of an expatriate in Canada
Engaging in some lyrical athletics whilst painting pictures with words and pounding the pavement. I run; blog; write poetry; chase after my kids & drink coffee.
Refugees welcome - FlΓΌchtlinge willkommen I am teaching German to refugees. Ich unterrichte geflΓΌchtete Menschen in der deutschen Sprache. I am writing this blog in English and German because my friends speak English and German. Ich schreibe auf Deutsch und Englisch, weil meine Freunde Deutsch und Englisch sprechen.
You must be logged in to post a comment.