afraid or not?

Photo credit to Dr. W. Strang, with my camera. That is me in front of an truly amazing quartz crystal from Arkansas in the Smithsonian Natural History Museum.

I was back in the DC area with my daughter, visiting my son and future daughter in law. Hopefully after this year I won’t say future any more. This is round three after two postponements due to Covid-19.

Dr. Strang and I wanted to go to the Smithsonian but we got snowed in. The Smithsonian was closed Monday, Tuesday and Wednesday. We went on Thursday. We got to the Museum of African American History and it was CLOSED. They were opening late, at one pm. It was 10:30.

We promptly diverted to the National Gallery, which opened at 11:00. We spent a good 3-4 hours there. We went back to Natural History. I worked in the shop there years ago and wanted to buy a rock. I was underwhelmed by the rocks available currently. More expensive and a lot less of them. On the other hand, I suppose there are only so many rocks.

What about fear? I chose fear for the Ragtag Daily Prompt today. I was not terribly afraid at the Smithsonian, but I was careful. After my fourth bad pneumonia last year, this time on oxygen for months, I did not want to get Covid-19. We have used fear before, but I think some words can be reused.

Neither am I

you are so beautiful
I love you so much
and I see you

so clearly

I look at you
I wish
you could see me

you see the darkness
the bear
you carry with you
and project
on me

you hold the bear
at a distance
you see it
all the time
in other people

when the bear comes
I hold open my arms
and welcome it
and I don’t yell

the bear roars
with dripping teeth
tries to terrify me

and I reach for it

me too
I say
come meet
my monsters

all my monsters
anger fear grief
shame
come out

the bear
stares at them

they hold out
their arms

the bear bows
his head
and we surround him
and welcome him
and love him

the bear cries

because you don’t love him

the bear cries
and cries and cries

we hold the bear
and cuddle him
and feed him
and try to warm him
and do the best we can

but we are not you

you come towards me
seeing the bear
fortified by my monsters
you attack

and my monsters hide
and hide your bear

and you stand
sword ready
to split us apart

confused
where is the bear?

you are sure
you see a bear
but it is gone
and I am a little girl

the naked sword is raised
the gun is loaded
you and weapons ready

no bear

you lower the gun
the sword
and make excuses
and leave

and the bear
hugs us all
thanks us

as you leave
the bear walks faster
nearly a shambling run
and dissolves into you

we wave
my monsters and I
we wave goodbye again
send love
to you and your bear

Over the Rhine: All of My Favorite People are Broken, credit: https://www.flickr.com/photos/31683793@N07/collections/72157628647320299/

For the Ragtag Daily Prompt: myopic.

bird view

I took this from up on the bluff at Fort Worden on December 22, 2021. A grey and cloudy day, but I think it is still beautiful, the fort and the town and the sound laid out.

There is a hike that one can take. It seems to end in a clearing. After my first decade here I learn that one can walk out the ridge. At the sketchy dangerous end of the ridge, if it is clear enough, we are looking down at the Quimper Peninsula, Marrowstone Island, Indian Island, Port Townsend Bay, and the Cascade Mountains across the Salish Sea. It is an amazing view. It is a 2 mile hike, mostly up, and you have to drive up a fire road first. Forget about cell service up there. It is gorgeous.

Lullaby of Birdland

Today’s Ragtag Daily Prompt is flute.

I have played flute since fourth grade. This pastel was done by my mother, Helen Burling Ottaway, in 1980. We lived in Alexandria, Virginia. I am playing flute and Johnny Johnson is on trumpet. My father played trumpet too. Johnny was trying to teach me to improvise. I had not listened to much jazz and was not very good at it. I was well trained in classical flute and could read music. Johnny said, “No, just LISTEN.” I did learn it and can still play it.

One night the three of us were playing. We had a knock on the door. It was an Alexandria policeman. “We have had a complaint about the loud party.”

We looked at him blankly. My father says, “Well, you are looking at it.”

“Three of you?” says the policeman.

“Two trumpets and a flute.” says my father. “We can make a lot of noise.”

“Hmm.” says the policeman. “Well, um, could you keep it down a little?”

“Yes,” says my father, “It is after 10, so we will play more quietly.”

The policeman left and we did.

My mother’s pastel is titled “Lullaby of Birdland”.

adult doll house

When mom leaves in the car with the kids, dad gets trashed on beer and destroys the living room. Yes, there is an enormous black panther in the background. Will it eat dad? Maybe it will wait until some of the alcohol wears off. He won’t taste as good drunk.

_______________________________

For the Ragtag Daily Prompt: Tiger.

Damaged or blessed?

Am I damaged or blessed to have PANS?

Damaged because it has put me out six times? Four times with pneumonia, once with preterm labor, and once with mononucleosis. Plus getting really sick with strep A as a kid, an earache that had me crying with pain at age 8, coughs in medical school that would hang on for six weeks and not respond to albuterol. Only rest would help. A year this time and not better yet, 6 months out last time and then seven years working half time. In 2012 out two months. 2005 out two months. Preterm labor out 6 months. Mononucleosis: dropped ten pounds and did not feel better or gain it back for two months. How much income have I lost? A lot. Am I damaged?

Blessed because I am not dead? My sister dies of cancer at 49, my mother at 61, my mother’s father at 79. All three married people who had “anger issues”. And all three got cancer.

I think that they had anger that they could not reach.

I do not think that ALL cancer is buried, unexamined, unresolved anger. But I am starting to see a medical pathway that could lead from buried anger or other buried emotions to illness and death. The buried emotions are stressful. The body tries to hold the stress. The body works very hard at it. The conscious mind is not aware. This is the realm of the unconscious. The stress, the unresolved trauma, anger, grief, whatever, triggers antibodies. Heightened sympathetic nervous system, higher adrenaline and higher cortisol. Cortisol is the steroid system. Steroids help to lower inflammation but they also impair the immune system. The immune system is chronically suppressed, trashed, and then it can’t do its job. Anti lysoganglioside antibodies form and block the lysogangliosides. The lysogangliosides are supposed to clean house in the brain. They can’t clean house, they are paralyzed. And the brain forms plaques: dementia. Or some other antibody forms that blocks cancer removing cells in the immune system: and there it is. Cancer.

We all have cancer all the time, that our immune system is removing. That’s a little weird to think about, isn’t it? So we need healthy immune systems, we need the parasympathetic nervous system, we need to relax, we need to play, we need to laugh ourselves silly at stupid cat videos, we need to make ridiculous memes go viral on TikTok, we need to use the power of the internet to drive the cost of a share up just to fuck with the rich Bosses, because we are tired of them fucking us over.

So, says my sig other, or he who used to be. You need to avoid stress, in order to not get sick again.

Well. I stopped eating on Saturday a week ago and ate minimal calories and mostly high protein and fat. Because I was pretty sure he was breaking up with me. He felt the same about me. I was terrified when we walked two days ago, so I wore the dragon shirt. Most of all I wanted not to yell.

Neither of us yelled. We both listened. He doesn’t know why he has shut me out of three areas of his life, and the three most important ones. It isn’t me. He is aware that it is him. He was not really aware that he was doing it. I am trained to hide emotions, from childhood in my crazy family and then physicians are trained as well. I cry with patients sometimes, when we find that their cancer is back, or other things like that. The child dying. But I can hold a calm expression even when a person tells me that they are hearing voices telling them to kill themselves and would I please take out the antenna in their tooth. So I sat hard on my emotions for ten months. Until I thought the right time had come.

Even then, I did my best and screwed up. We’d opened up one thing and I thought the rest would be ok. I sent an email. Whoa, boy, it was NOT ok, and I got yelled at. I burst into tears. I didn’t feel like yelling at all, I was crushed. But it is ok, it had to come out. The Year of the Ox is almost over. I hope the Year of the Tiger is less horrible. But at the same time, I would not trade the time with him for anything.

Damaged or blessed? Cursed or blessed?

Both, I think. All of us.

I am submitting this to today’s Ragtag Daily Prompt, though it is not a hawk.

Adverse Childhood Experiences 13: unsense

As a child in an alcoholic/addict household where you can not trust adults, who do you trust?

You either trust yourself or you buy in the alcohol story.

If you buy in, you have a high probability of either becoming an addict or marrying one, depending if you prefer the enabler or the enablee role.

If you trust yourself, you develop certain senses. You pay attention to people’s emotions. You pay attention to what people FEEL, what people DO and not what people SAY. You do not care what they say: what matters is what they do. My sister said she used to walk my parent’s house during high school and try to feel the mood. Did she need to hide?

The enabler role is trying to control the other person. There are amazing variations on this. I cared for a person whose sister would not take care of herself. Every time the sister is hospitalized, the person goes and cleans tons of garbage and rotted food from the apartment.

“Stop doing that,” I say, “You are enabling her. Call Adult Protective Services to go look at it instead.”

It can be very difficult to stop and can take years. People can change.

I have noticed that the enabler role is lethal. The enablers seem to die before the enablee. Certainly in my immediate family and with many patients too.

Enablee is the person controlled. Alcohol, drugs, gambling, anger, emotions. It is very very interesting to watch. I have read parts of my mother’s diaries. She was the enabler, with my father as the enablee. However, the diaries document them fighting in the middle of the night when he is drunk. And I remember high school, putting the pillow over my ears, because they were screaming at each other.

But wait. Why would she argue with her drunk husband? Why would anyone argue with a drunk person? You have to wait until they are sober.

And slowly I realize that my mother too was an alcoholic. I remember her drinking. Best cover for an alcoholic is a worse alcoholic, right? It’s fairly horrid. But it explains some stories and my food insecurity. They would not get up in the morning to feed me. My mother told stories of me trying to feed myself: cheerios and laundry soap. If my father was hung over, ok, but, why wouldn’t my mother get up? I think they were both hung over. That or else she really did not want a child. Especially a nine month old with opinions while she was trying to get over tuberculosis. She never got to hold me after birth until 9 months. And then I did not want her. I wanted her mother.

Trusting yourself, life can be a bit complicated. You sense the emotions others are hiding. Being a physician allows me to ask about the hidden things, very gently. Sometimes they come out right away. Sometimes it takes months. Sometimes years and sometimes never. My sister and I discussed going to parties and thinking, oh, that person is the child of an addict/alcoholic. This person is in pain. This person is quite happy but hiding stuff.

I told a counselor I do not know how to turn it off. She replies, “Why do you think I am a counselor?”

I don’t see auras. I feel things: like a cloud. Like a tiger, like a bear, like a whale, singing.

I think I will go with the whale.

Hurricane Ridge

This is my mother’s biggest watercolor painting. I have it hanging in my guest room. It is huge and gorgeous, nearly the width of the double bed.

I miss her. Helen Burling Ottaway. I will put more of her artwork up. She died in 2000, but I still have the art.