Tag Archives: Beloved

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Love tale

An older couple comes to me in clinic. She is losing her memory, they explain. They are looking for a doctor who will respect her wishes. Once she goes in the nursing home, no intervention. No antibiotics, no shots, no iv, no hospital.

Yes, I say.

It is about a year before she goes in to the nursing home. I do my regular visits.

After a number of years I happen to meet her husband in the hall. “She is talking about her twenties.” he says. “She lived in an apartment and ran errands for her uncles. I am hearing all sorts of stories I never heard! I go home and type them and send them to the family.”

“That is wonderful,” I say. He visits daily.

I go on to her room. She says, “That man comes to see me. He says he’s my husband. I don’t remember, but he is such a nice man!” I think she falls in love with him again daily. He visits and is where she is in her memory.

Some time later the nursing home calls me. “She has a fever of 101 and has not eaten for two days.” I go visit and call her husband. “Should I do anything?”

“No! She’d kill me!”

“Ok. She might die.”

“I know.”

She doesn’t die. The fever comes down and she gets out of bed and is thirsty.

There is a year between my years at the hospital and setting up my private clinic. We send out postcards, trying not to send them to anyone who has died.

Her husband comes to the clinic opening. “She died last year,” he says.

“I am so sorry! We tried not to send postcards if people had died!”

“It’s ok,” he says, “I wanted to come and thank you.”

He dies about a year after she does. I hope they are together again.

For the Ragtag Daily Prompt: true love.

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Volunteer

I wrote this thinking about the increasing number of homeless because of housing costs and that incomes aren’t keeping up. And even if the income has kept up, a lay-off and an illness can put people so far behind that they can end up homeless. In Denmark, they rent rooms to students in nursing homes. Part of the payment is that they have to spend time with some residents. When will we set that up here?

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Volunteer

A man I know slides into kidney failure.
He’s already there when I meet him,
care for him
for a number of years.
He’s a really nice man.
Over time a bit more disheveled
unkempt
dialysis twice a week.
Even so, once on dialysis,
people die younger
than the rest of us.
Over time he is in and out of the nursing home.
loses touch with friends,
in the home so much
that even when he isn’t there
he goes there
and volunteers.
They have become his family and home.
At last he is so tired
he stops dialysis
and goes to the nursing home for the last time.
The staff call me, crying.
“He is hurting,” they say, “Do something.”
He can’t swallow.
I see him and place a fentenyl patch.
He mostly sleeps then
but is no longer in pain
He dies a few days later.
I haven’t seen this before:
The nursing home staff cry
for this man
this volunteer
this friend
and I do too.

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One reason that he did well at the nursing home was that they understood how frail he was and that he couldn’t do very much. They gave him very gentle volunteer jobs and enjoyed his company. Sometimes when people are very frail or ill, others avoid them or just do not understand.

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Happy

Happy

May Sarton writes of happiness, in the quiet at home.

I am so happy when I dance that I smile with joy.
I wonder about the Sufis spinning
and if it is the same.
The poetry has that joy
and anyone who calls God/Dess the Beloved
has my attention.
One who was almost a friend
would laugh with me at restaurants.
Twice strangers thank us for having so much fun.
say our laughter gives them joy.
Thinking about happiness,
I think of my son’s capacity for joy
and wonder where he got it.
Surprise: from me, I think.
From me.

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Painterly

Two evenings ago we were waiting for dark for a kayak tour. The sky was painterly, with clouds that look like the old masters, shades of white and pink and grey. It was gorgeous color in the reddening light as the sun set.

For the Ragtag Daily Prompt: color/colour.

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Not immune

I am attending multiple Zoom conferences on Long Covid and Chronic Fatigue and PANS/PANDAS and fibromyalgia. The speakers are talking hard science, digging in to the immune system to figure out what is wrong. Then they can find a drug to fix it.

Maybe it doesn’t need to be fixed. I think the immune system is smarter than we are and it knows that Covid-19 is a really really bad virus. What the immune system wants is to keep from getting any other infections so it shuts us down. It hits the chronic fatigue button, so we stay home or in bed. It hits the fibromyalgia button so that it hurts to move: we stay home or in bed. It hits the PANS button so that antibodies seriously change our behavior and we stay home or in bed. Anyone see a theme here? I think that the immune “over-response” is not an over-response. It’s not broken. It is trying to reduce exposure and just maybe we should pay attention. I thought that in residency, in the early 1990s, when chronic fatigue patients would interview me to see if I “believed” in chronic fatigue. Heck yeah, I said, but I don’t know what it is or how to fix it. My chronic fatigue patients had something in common: they were all either working 12-14 hour days continuously when they crashed, or they overworked and had insane stress, deaths of loved ones, car wrecks, accused of a crime, something horrible. The workers all wanted “to get back to where I was.” I would ask, “You want to work 12-14 hours a day again?” “Yes!” they’d say, “I want to be just like I was in the past!” “Um, but that’s what crashed you. Do you think maybe your body is not up to that?” “FIX ME.” I would try to improve things, but fix them back to what crashed them? No way and anyhow, that is not really sane.

There are some levels of illness where we have to intervene. In really bad PANDAS, antibodies to the brain are followed by macrophages that destroy brain cells. I was horrified and wanted to run around screaming “NOT MY BRAIN!” when I heard that. Then I thought, don’t be silly, I am in my 60s and if I had brain eating cells it would have happened by now. I consider myself really really lucky to have the mildest version. At least, that’s what it seems to be. (Officially we don’t believe in PANS or PANDAS in adults in the US but we do in Europe and Canada. Ironic.) With that version, especially in children, I am all for intervention, as soon as possible. And it’s not that I do not think we should intervene in these illnesses. I just think we need to step back and think a little and just maybe listen to our bodies and listen to the immune system. Slow down. Breathe. Watch some stupid cat videos. Whatever makes you relax and laugh. Reduce stress. Limit stupid hyper news to 15 minutes a day and not before bed, ok? Reduce the drama.

I am liking movies less and less. The drama bugs and bores me. I might last an hour. I have nearly quit going to our downtown movie house because it’s always “moving” and art films. Bleagh, drama. Also when it’s about illness or addiction, I want to argue with it. Easy lying endings which are nothing like reality. I like cartoons and sometimes superheroines, but it’s all drama too. I am tired of people behaving badly and don’t want to watch it on tv or a movie. There’s enough for me in the real world. I think it’s time to bring back musicals. I would watch them. Maybe. My father’s last movie was Blazing Saddles. He refused to ever go to another movie. I think I understand that now.

None of us are immune to stress or immune to infection. A person might be immune to Covid-19, or they might be immune until the tenth or hundredth strain shows up. I chose Family Practice for my specialty because I wanted to have children and be able to see them. I thought about Obstetrics-Gynecology or General Surgery, because I loved babies and loved surgery, but the Ob-Gyn residency was 4 years and General Surgery was 7 years and I was starting medical school five years out of college. Choose the more flexible and portable specialty and go rural.

Doctors and nurses are burning out because hospitals and administrators “maximize production”. Hospitals and administrators are stupid and destroying medicine. It’s not about money, it’s about helping people and science and healing. Having it be about money is soul-destroying and causes moral injury to any ethical provider. If we’d prefer unethical ones, keep on the present path. Otherwise we need single payer health care so that any physician or nurse can take care of whoever shows up. The system is breaking down more and more and it is hard to watch. Another nail of stress in the coffin of ethical medicine. I suppose when enough people die, change will come.

My working theory is that anyone can get one of these immune system illnesses: chronic fatigue, fibromyalgia, PANS/PANDAS and so forth. Medicine says that Hashimoto’s Thyroiditis, antibodies to the thyroid is the most common autoimmune disorder, but that may change. The evidence is mounting that Long Covid and these other “vague” illnesses are immune system shifts. Immune systems in “Code Red”, let’s not catch anything else. Are they an illness or are they our immune system trying to keep us quiet to protect us? I think the latter. Time may tell. I am listening to the science and listening to my body, both.

The photographs are from 2016, when a flock appeared in my yard. They demanded money to be moved to the next house.

For the Ragtag Daily Prompt: fiddlesticks. Oh, fiddlesticks, we have to figure out the very very complicated immune system. Or listen to it.