Monthly Archives: July 2016

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Art at Quimper Family Medicine

I change the art at clinic, these for the summer. We had four reproductions up before, of alchemy paintings from the 1400-1600s. I thought they were creepy but also interesting and beautiful.

The painting on the left is by my mother, Helen Burling Ottaway, of my sister, Christine Robbins Ottaway. On the right is an oil by an artist that I don’t know. It looks like my father. I inherited art, but I keep finding beautiful pieces. At least I can display a little and rotate them with the seasons…

 

 

 

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Black lives matter

My family moved from upstate New York to Alexandria, Virginia when I started high school. My mother, Helen Burling Ottaway, took life drawing classes at the community college to meet other artists and because she would have a model. More than one.

She met Michal Platt and took classes with him. He pushed her. My mother did tiny etchings and fantasy drawings and big drawings and watercolors. Micheal wanted her to do powerful drawings. So she did. When he had to be gone for a day from the class, he would have my mother fill in teaching.

I have this picture hanging in my clinic. The title is “One fist of iron”.

The stages of grief for the recent deaths include denial, anger, bargaining, grief and acceptance. It is not a series one goes through. We do them over and over, going from one to another, like a spiral, a whirlpool, a tornado. Black lives matter, police lives matter, I wish my mother were still alive.

 

 

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Night light

This is for photrablogger’s Mundane Monday #66, night lights! This is a light show with a band at the Palindrome, a summer solstice fundraiser forΒ  BOOMFEST.

I danced on the porch because it was too loud and smokey inside. The High Council was playing… I wanted to catch the laser show and I liked the frame of the doors. Worked on the third try!

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Break your own rules

If I say “Food fight.” you may think of Animal House.

I think of my mother.

I am in high school in Alexandria, Virginia. My sister is three years younger. We are in the kitchen, it is hot. 99 degrees F and 98 percent humidity and the back door is open. We do not have air conditioning. We are eating watermelon. The old kind: with seeds.

My mother holds up a seed, pinched between her fingers, looking wicked.

My eyes narrow. “If you shoot that, you started it.” …. not in the house, is the unspoken rule that echoes.

She shoots it at me.

We all three start pinching the slick black watermelon pits at each other, laughing like hyenas. In a large kitchen with open shelves and dishes placed on all the shelves, often nested. It devolves into small chunks of watermelon, hurled at each other. No rinds, because of the open shelves. At last we all run out of pits and watermelon and stopped

There is silence while we survey the very impressive mess. There are watermelon seeds everywhere. And the floor is pretty wet.

Watermelon is STICKY.

We laugh more and start cleaning up. I leave for work or school or something.

Later my mother says, “I washed the floor three times before it stopped feeling sticky. And I kept finding watermelon seeds in the dishes on the shelves for the next two years.”

And: “It was worth it.”

The photograph is of my mother in high school.

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Beast Cthulhu and bone metastases

In 2011, when my sister wroteΒ  Beast Cthulhu and bone metastases,Β  about her breast cancer being a treatable chronic illness, I was so sad…..

….because it was not true, even though I wished it was.

The perils of being the doctor sister.

It was clear that her cancer was progressing. Yes, she could request to continue treatment. Yes, they would keep treating her….

….but it wasn’t working.

The hematologist-oncologist chooses the best treatment first. Chris Grundoon was 41 and very strong and healthy so they hit the cancer as hard as they possibly could. Chemotherapy, mastectomy, radiation therapy, a second degree burn on her chest wall. It was stage IIIB to start with. Cancer is staged 0 to IV. Zero is “carcinoma in situ”, cancerous cells that have not even invaded their neighbors. Stage I is very local. Stage IV is distant metastases. Stage IIIB of ductal breast carcinoma means multiple lymph nodes, but not the ones above the collarbone, and no cancer in bone, brain, lungs or liver.

She had two years in remission.

The cancer recurred with a metastasis above the collarbone. The cancer had morphed as well, as it often does. Most, most, most of the cells were killed… but those that survived… were different. Now she was estrogen receptor negative, progesterone receptor negative and her2 negative. All genetic markers which help decide which treatment is best and how to target the cells. More and more are being found.

Our mother died of ovarian cancer. I went with her to her oncologist only once. My mother said that her CA 125 was rising, and of course she could do more treatment if she needed to. The doctor said something positive. I followed her out of the room. Once the door was shut I said, “My mother is talking about another clinical trial! She can’t do that, can she?”

“No,” said the oncologist, “Of course not. She is too advanced. But we will treat her for as long as she wants.”

Whether it works or not. Because she wants to be treated. In spite of diminishing returns.

My sister passed her five years from the day treatment ended. So technically she is in the five year survival group even though then she died. When she was diagnosed, the five year survival for her type of breast cancer and stage was about 5%. It had improved to 17% by 2011.

Her oncologist told her “I am referring you to hospice.” in the spring of 2012. She went to San Francisco to talk to another group about a clinical trial. But it was too far and too late. She refused hospice until about two weeks before she died. Fight to the end, she was willing to fight even when the oncologist said, “You are dying.” She had promised her daughter and promised her husband.

I saw her three times in the last two months before she died. She seemed angry to me on the last visit, glittering, knife edged. I tried to sing a lullaby, but she wanted something else. “Samuel Hall?” I guessed. She smiled and I sang it. My name is Samuel Hall and I hate you one and all. To the gallows I must go, with my friends all down below. Hope to see you all in hell, hope to hell you sizzle well, damn your eyes, damn your eyes. Then she trusted me to be present whether she was angry or sad or confused or once even happy, glowing, transported, transformed….

Some people do not go gentle. That is their right. It is their death, not ours, not mine.

The photograph is from the memorial here… My father had end stage emphysema, on steroids and oxygen, and I was hospitalized with strep sepsis the weekend of her first memorial in California. We could not go. Many people from our chorus Rainshadow Chorale came and we are singing the Mozart: Requiem Aeternum. My father died fourteen months later.