path

The Ragtag Daily Prompt is morass, which I had to look up to be precise about the meaning. Sometimes I think I know how to use a word, but there are meanings that surprise me. An area that doesn’t drain. Here are photographs of Poulsbo’s Fish Park, from February 2022. There is a lovely boardwalk through parts that are not consistently dry and could be a morass. There is a stream too.

https://www.visitpoulsbo.com/business/poulsbos-fish-park/

Awfully pretty for a morass, isn’t it?

It isn’t spring yet, but it will be soon!

Covid for Christmas

Muscles aching all month then are worse
two more days I ignore the pain
one night I get chills and want to curse
morning testing confirms fears from my brain
sniffles and headache, muscles ache more
text the clinic and call when they’re open
plans upset, friends go to the store
daughter diverted, not what I was hoping
the days count down, I have enough time
glad to get notice before she came here
might as well try to tell it in rhyme
isolate my estate appetite queer
it’s covid for Christmas, not what I’d planned
but women can flex and can’t be unmanned

Reconcile

I have been thinking about family a lot this week. My mother’s family has been gossiping about me now for a decade and not one of them has ever talked to me directly about my father’s will. They have a story. They never checked it. It stars me as a villain. They seem to think I controlled attorneys, which is laughable.

I forgive them.

However, I think a decade is enough. I forgive them but I no longer want to reconcile. For ten years I hoped that they would talk to me. I have asked them to, more than one person, more than once. They say that they want to believe what they want to believe. I offered to send copies of bank statements to back up what I said. No. And a cousin silenced me by saying, “Don’t make me hate my sister.” The message is that I can be part of the family for some of them, as long as I remain silent as a tomb on this topic.

No. I won’t. And it’s just like all the silencing that goes on over the world. People say they would not stand by while someone is hurt, but my family sure seems to enjoy having me be the silenced gossiped about villain. I am sick of it. They can go to where ever it is that karma will take them: gossip, after all, is a sin.

And so I am reconciled. I am reconciled after a decade to adding these people to my list of dead. Our friendship is dead, my family feeling towards them is dead, I am not asking or waiting or hoping any more.

Forgiveness is a solo job. We forgive others.

Forgiveness is NOT reconciliation. You should not take an abuser back. You should not let someone treat you badly and refuse to listen to you and refuse to apologize. I know one person whose apologies run something like “I am sorry that you took offense to what I said/did.” Um. That is not an apology. That is putting it on me, it’s my fault for taking offense. The person has no intention of changing and does not actually care how I feel. I am not okay with that. The person is forgiven but there has not been a reconciliation.

With my maternal family, I am letting it go. I would like there to be more peace in the world but as long as people cling to having villains, to believing gossip, to perpetuating gossip and hatred and meanness, I do not think we will have peace in the world.

But in letting this go, I have peace in my heart.

Peace you and please peace me.

Paths

I am reinventing myself now. After my fourth pneumonia, oxygen continuously for a year and now my fifth pulmonologist since 2012. He did not have much to offer. An inhaler but “We can’t be sure that it will keep you from getting pneumonia.”

Well. So with ME-CFS, myalgic encephalopathy chronic fatigue syndrome, now what?

I am at a fork in the path. At least three forks.

  1. Try to do a micropractice, working with Long Covid people. Who either wear masks or I do not see them. I would have to convince the hospital district that it needs me.
  2. Write. I am doing that, but really focus on it and work on publishing. I have so much art from my mother. She did not really enjoy selling it though she loved having shows and would dress up.
  3. I could focus on publicizing and selling my mother’s art.
  4. There is a trunk from my grandfather. I could focus on that. He states that he wants it published. Grandfather, you were a piece of work.
  5. I could just lie around and travel and play with the cats and make music.
  6. Focus on music. I have written a number of songs. Apparently being hypoxic makes me write songs. I think they are peculiar and wonderful too. Flute, voice, guitar, piano, bass. Hmmmm.
  7. Something else. Who knows what will appear? I am doing art too, the two large sculptural pieces in my yard. A fellow doctor scolded me about one. It’s the one with a logging chain and an oxygen tank, attached to a tree. The title is “Tethered”. Now, why would a local doctor object to that? I have some small pieces too that involve found objects and especially feathers and small stemmed glassware.

Many forks! Now I just need more spoons of energy!

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For the Ragtag Daily Prompt: reinvent.

The photograph was taken in September 2021. Where is the path? I got to hear Jonathan Doyle last night, with George Radabaugh on piano. FABULOUS!

Catch and release

The chances of you changing are quite small.
I know from very early in our time.
Why God makes angels that will one day fall.
We could be sent to teach each other rhymes
or something else. I wonder at it daily.
My heart opens like a flower even so.
The candle just at dusk burns quite palely.
I wonder what excuse you’ll use to go.
It’s a comic denouement I see at last.
You denigrate my knowledge and my skill.
After exposure you refuse to wear a mask
or test. I rise in anger at ill will.
It’s comic that I’ve liked your busy mind.
Respect for mine is nil: you elk’s behind.

Yesterday

A triple play: a loss, a gain, a change.

Yesterday

Yesterday our friendship died for good
A small death that won’t be noticed
I want to place a small cross on the day
to mark this death and life
life because my small child is gone
she grew up, now part of the quiet woman
who came to me in a dream
when you left
you move on and tell me you won’t change
so you will find another to draw close
and push away, terror
that you will be trapped
you already are, in your own mind
you say you want freedom
in refusing change, that is death
slow and alone, is lonely different from alone?
call it freedom as you wish

I want to grow, I want to learn always
you want your past, your dead
you tell me I am keeping you from your life
you have it back I say as music restarts
I don’t, you say, my brother is dead, my wife
I did not cause those
they happened before we began to walk
and yet you blame me
like an angry child

I am in the gardens wandering
I am in the gardens wondering
the gardens of the world
everything is a garden
though some are planted with skulls
and young people fighting
It is strange to feel whole
I do not know what to do with it yet
but I will

_______________

I have fallen for this band. I am really enjoying them.

For the Ragtag Daily Prompt: triple.

In the box

Wednesday was interesting and frustrating and part was beautiful.

The beautiful part was arriving at the Kingston, Washington ferry dock early. I took photographs of the quite gorgeous light display while I waited for the 6:25 ferry.

On the other side, I drove to Swedish Hospital, Cherry Hill. There I had another set of pulmonary function tests. The technician was very good. She said that since I have a normal forced vital capacity it does not look like asthma. However, a ratio was at 64% of normal, which is related to small airways.

“Have you had allergy testing?” she asks, “And a methacholine challenge?”

“Yes,” I say. “Both. In 2014. No allergies at all and the methacholine was negative.”

“Hmmmm.” she says.

Afterwards we call pulmonary. I have an appointment on this next Wednesday but we call and ask if there is a cancellation and I can get seen today, since I am two hours from home already.

Yes, there is, but I have to hurry to Issaquah, Washington.

There is an accident on the I90 bridge, so I do not think I will make it. But I am there by ten and the pulmonologist will see me. I check in, fill out paperwork, wait, go in the room, a medical assistant asks questions.

The pulmonologist comes in. He is nice and is able to pull up the chest CT from 2012, two of them since the first one “couldn’t rule out cancer”. Since I am referred for hypoxia without a clear cause, he questions me about my heart. Echocardiogram, zio patch (2), bubble study, yeah, it has all been normal. I describe getting sick and tachycardic and hypoxic and coughing.

“Do you cough anything up?”

“No.”

“Do you cough now?”

“Yes, if I exercise or get tired.”

He is like many physician specialists that I have seen. He has a number of pulmonary diagnoses, or boxes. Emphysema, COPD, lung cancer, bronchiectasis, chronic bronchitis, the progressive muscular disorders. All of those are ruled out in the past. So he puts me in the asthma box.

“I thought asthma was ruled out with the methacholine.” I say.

“Well, you have SOMETHING going on in the lower airways, and it was present in the 2021 and the 2012 pulmonary function tests. Maybe an asthma medicine will help.”

I mention ME-CFS and my muscles not working right, but he only deals with lungs. He won’t say a word about those disorders.

Sigh. I do not get the improvement with albuterol that diagnoses asthma on the pfts and never have. The formal reading of the pfts is that I do not meet criteria for asthma but there is something in the lower airways.

Monsters, maybe? I’ll try the inhaler, though with skepticism. Antibodies seem like a better guess, but antibodies are outside this pulmonologist’s set of boxes.

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The photograph is from Swedish, Cherry Hill, bird’s eye view from the balcony.

Methacholine test.