Category Archives: food

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Tulips

Yesterday I pick up my Community Supported Agriculture box from Reddog Farm. The box was ready on Wednesday but I forgot! I thought it started next week! At the beginning of the season, the box contains tulips. Though the tulips are not in the box. There is a sign: choose five tulips from the cooler. I love the tulips!

I love my CSA too. I have been in a CSA for all but two of the last 23 years. The first one was Collingwood Farms. My children loved the potatoes. They would look at me with sad sad eyes and say “These aren’t Collingwood potatoes!” when I would substitute ones from the grocery store. I could tell too. The local potatoes are much sweeter and more delicious.

A friend came with me to get my box and then we had sauteed leeks and kale at lunch. And Elwha likes to help with photographs.

We are blessed with choices of a variety of CSAs. They come to the Farmer’s Market, which also started last Saturday. I missed the goat parade, but went a little later and it was packed with people and produce. Hooray for the local farms and all the people supporting them in different ways.

For Cee’s Flower of the Day.

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Food needs two

Ok, so what menu did I choose for my friends with food needs, as listed in the previous post.

First course: Sweet Pea soup. The color is vivid and almost lurid. My guests look worried until they taste it. It tastes like spring! Butter, onions, broth and frozen sweet peas, just cooked. My guests go from worried to asking for seconds.

Second course:

Lentils baked with sausages. This is also not a gloriously pretty dish. Again, my guests love the taste. Lentils, a little red wine, butter, onions, bay leaf, sausages, thyme and baked. Yum.

As well as:

Roasted Ronde de Nice Squash with California rice and Early Girl tomatoes. Except I did not make the rice, I couldn’t get farmer cheese and the tomatoes were varied and from the store. And a different kind of squash! This is from a cookbook new to me: Community Table, Recipes for an Ecological Future. The sweet pea soup is from a cookbook that I’ve had for forty years and the lentils are from memory, a recipe a friend taught me in the 1980s.

Dessert is fruit salad and chocolate. With tea.

No liver, gluten, shellfish, giant rubbery cooked mushrooms, anchovies, dried fishies or grubs.

Voila! Food needs satisfied!

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Food needs

I am having a few friends over and am checking to see if there are any food needs. Since my March 2021 pneumonia, I can’t eat gluten. Weird, huh? But antibodies tend to rise as we get older, darn them. And there can be a rising baseline. Double darn.

Anyhow, I have some funny friends. My query “Is there anything you don’t eat?” got these responses:

“I don’t eat anchovies or dried fishies or grubs.”

“We eat everything in moderation.”

“shellfish, giant rubbery cooked mushrooms….”

“liver”

They crack me up! I think I invited the right people.

Now, let’s see, what is my menu, with no liver, gluten, shellfish, giant rubbery cooked mushrooms, anchovies, dried fishies or grubs? Tough, huh? Pretty narrow range left.

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I took the photograph at the Great Port Townsend Bay Kinetic Sculpture Race in September 2022. Pretty earnest discussion going on among an interesting group.

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Fancy hammock

Previous.

I am Elwha, cat.

Mother got us a hammock, a two story structure. Our food can be in the lower section and I can sit above and keep an eye on it. Even when the bowl is empty. I am still hungry, but she is being a little more generous. She still feeds us in separate rooms. My sister and I race to check each other’s bowl when she opens the doors again. I like the wet food. My sister likes the dry food. Mother gives each of us some of both. We trade.

I am still doing offerings in my bowl in hopes that Mother will be more generous with the food. My sister had her head in the food bag the other day but Mother saw her and closed it up. I wish I had hands. I would open more cans.

Meanwhile I do like the fancy hammock.

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For the Ragtag Daily Prompt: fancy.

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DIY FUD: more

I am Elwha, cat.

Day three of offerings. My Mother did not even take a picture of day two. I do not understand why she scorns my offerings. This is a precious mouse that I extracted from the Tower.

This was a difficult operation. I stood on the sheep that warms and carefully tried to remove the tangled mouse. Mother interfered a little, but at last I could jump down with it. And I have offered it in exchange for more food! This precious toy!

Many thanks to all who made suggestions the other day. I still do not understand how a sub would help, but I will watch for one. Perhaps if I continue to make offerings and observe, I will be able to communicate with Mother. She seems loving, even though she is also obtuse. I am still hungry and lose weight. I fear starvation. My sister laughs when I approach her, but she is smaller and does not have the same needs. Mother feeds us in separate rooms. It is frustrating.

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Long Covid healing crash

I have a friend with Long Covid. Eight months now.

My friend describes blood sugar crashes. She does not have diabetes and was tested before Covid. She has not been tested again.

“Sometimes I eat dinner, feel better, and then an hour later I feel terrible again. I have to eat again. And I ate extra in November and all that happened is I gained ten pounds. So eating extra doesn’t work.”

I suspect that as the clue: the feeling terrible an hour after she eats.

I call her the next day: “Spread the carbohydrates out. It could be that your body is producing too much insulin, storing the glucose and carbohydrates, and then your blood sugar gets too low. That can happen early in type 2 diabetes, but this could also be a healing mode.”

I write about carbohydrates to her. Anything that is not a fat or a protein is a carbohydrate. So all the grains and all the vegetables and fruits have carbohydrates, sugars. Glucose, fructose, maltose, lactose. Milk products contain lactose, but also fat and protein. Avocados are weird fruit and mostly fat. Sugar beets and peas are high sugar vegetables. A small apple is 15 grams of carbohydrate and a large one is 30. A tablespoon of sugar is also 15 grams of carbohydrate. A coke had 32 grams and a Starbuck’s mocha has over 60 grams. I quit drinking them when I looked that up. Empty calories.

A cup of kale has only 7 grams of carbohydrate for our bodies. The rest is fiber that we can’t break down into sugars. Fiber doesn’t raise our blood sugar. I wonder about cows with their four stomachs: they can break grass down into food and we can’t.

At any rate, my friend is going to try 3-4 meals a day with only 30-45 grams of carbohydrate and three snacks, at 15-30. This is an athlete and young. Most of my patients were closer to 70, so would need to do the lower end of those numbers.

I had crashes after my second and third pneumonias in 2012 and 2014. Strep A pneumonia and strep throat of the muscles. It hurt, like all over Strep A. After the 2014 one, it was six months before I could go back to work. When I did, it was exhausting. I was only seeing 3-5 patients a day at first and could barely do that. I ate one meal a day because food crashed me. As soon as I ate I went to sleep. My MD did not believe me. I saw a naturopath too. She claimed it was a food allergy and I said, “I don’t think so. I think it is a healing crash. I think my body is doing a ton of repair work and wants me asleep and not moving much.” Over the next six months it slowly improved. I went to 2 meals a day. Since then I really do not eat until I have been up for 4-6 hours. Expect tea with milk. And yes, I am getting a little nutrition through the milk, fat and protein and lactose.

I had one patient who said eating made her faint. I didn’t know what to do, but she was in the ICU, ate lunch and then fainted into her tray. The nurse was standing right there and immediately did a blood sugar and called me. Her blood sugar was in the low normal range. We transferred her to Virginia Mason in Seattle. She came back with a diagnosis that seemed pretty much like hand waving. Idiopathic (meaning the doctors dunno why) central (ok, brain) something syndrome, which meant yeah, she faints after she eats and doesn’t have diabetes and that is weird.

I am reading about similar neurological symptoms with Long Covid and also POTS: postural orthostatic tachycardia syndrome. This translates to heart rate goes faster than it should when the person stands up. Again, the cause is not clear and it’s not clear how to fix it.

Once an older patient went to the neurologist to discuss getting dizzy when she stood up. She returned grumpy. “He said that I just have to stand up slowly because I am 80. I don’t feel like I’m 80. I want to hop out of bed like I always have. But if I do, I nearly faint.” Her body was taking longer to equilibrate blood pressure after she stood up. The neurologist said no medicine: stand up slower. She grumpily complied.

I told my friend that maybe the pancrease is stressed and producing too much insulin. To store food. But another possibility is that her body wants her to lie down and rest so that it can do healing work after eating. This would make any young person impatient, but sometimes we have to listen to our bodies. I have learned THAT the hard way.

Blessings.

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The photograph is of a Barbie ambulance/clinic. It does have a gurney, but the back opens up to be a fairly well appointed clinic, with lots of details, including a television in the waiting room. Today the doctor has wings. Fairy? Angel? We are not really sure.

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PANS/PANDAS and diet

I have been thinking about PANS and diet.

When I am sick with pneumonia, I have to keep my carbohydrate intake as low as possible, or I get much much worse. I am attributing this to the lysoganglioside antibody. I have been puzzling about the lysogangilosides because a conference last year says that in some children with PANS/PANDAS, the antibodies cross the blood brain barrier and then macrophages appear to be killing ganglion brain cells. They described a truly awful case. I completely understand children refusing to eat or only eating one or two things when they are having a flare. And everyone may have different food issues because we all make different antibodies. This makes it darned tricky to sort out.

But back to ganglion cells. These are the β€œnerve” cells. They make up the brain but there are also nerve cells all over the body. And more recently we have started calling the gut, the digestive system, as second β€œbrain”. This is because the gut turns out to have tons of ganglion cells.

So, my lysoganglioside antibodies do not appear to attack my brain. But something attacks my gut. It could be any or all of the antibodies, actually. Ganglion cells in the gut would have receptors for dopamine, the gut has smooth muscle that is powered by tubulin and my understanding of lysogangliosides is that they clean up dead or damaged ganglion cells and should not bother healthy ones. Studies of patients with lyme disease are showing the same four antibodies with a rising baseline for people who have more infections, so my guess is that my baseline has risen enough that I do not tolerate gluten. I may try it again, because my good news is that my muscles feel normal again. No more tubulin blocking antibodies, so I have fast twitch muscles again. They are weak but functional. I am starting to exercise them. Hoorah! If I am super lucky, whichever antibody screws up gluten for me has also dropped, but it may not have. The antibodies do not all do the same thing at the same time. This flare started for me when I had my influenza vaccine and then 5 days later, my fourth Covid-19 vaccine. The shots SHOULD get an antibody response but it was annoying to have the muscle dysfunction again. I managed to avoid getting pneumonia, so the response is shortened, about two months. I had very little of the dopamine 1 and 2 effects, so it was a relatively mild effect. The annoying bit was that I was improving in exercise at pulmonary rehab and the vaccines knocked me back down.

When I have pneumonia, eating carbohydrates makes my breathing worse. That’s weird. Well, not really. This fourth go around I realized that I could mitigate the effect of rising blood sugar as I improved by drinking bicarb with each meal. Sodium bicarbonate, baking soda in water. Why did that help?

Bicarbonate is a base. If it helped the symptoms, then it was balancing out an acid. Rising blood sugar was making me acidotic. When we are acidotic, our bodies will try to increase bicarbonate by speeding our breathing. If I have pneumonia and am hypoxic anyhow, then additional pressure on breathing is definitely not a good thing. So adding a glass of water with a teaspoon of baking soda reduced the acidosis. Then food did not affect my breathing.

Would this help all children with a pandas flare? Again, everyone has different antibodies, so the answer is probably NO. I think it is enormously important to listen to children with a PANDAS/PANS flare and give them an assortment of simple foods to choose from. No pressure for a balanced diet at the height of a flare, because some food or food group may make them feel terribly ill and actually may affect their acid/base balance and MAKE them more ill. I would offer something mostly fat: avocado or bacon or a high fat salami or cheese. Some steamed or raw vegetables, ranging from the high carbohydrate to low. Peas are high, kale is low. No sauces or dressing. Some protein sources, chicken breast or meat or beans. A grain or grain source. Offer fruit but do not push. Let the child figure out what they can eat and roll with it. Try to find more things in that food group. Remember that the main food groups are fats, proteins and carbohydrates. There are a bunch of different carbohydrates, which are sugars. Glucose, fructose (in fruit and corn syrup), lactose (in dairy), maltose, dextrose and others. I would avoid junk food and anything prepared. When I am sick I do fine with lactose, but all of the other carbohydrates make me feel very very ill and mess up my breathing. This is individual and will differ from person to person. If eating makes you feel very very ill, it’s easy to understand why some children stop eating. The obsessive compulsive traits are understandable too: if you suddenly don’t tolerate the foods you love and you do not understand what is happening (and your adults don’t either), you might try to behave in ways to bring back the good old days. Do everything the one right way and maybe things will return to normal. It’s a terrifying illness for children and for parents, but I have hope that my experience will help other people.

Blessings.

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Frosted

Ok, it’s not frost, is it? It’s snow.

I went out each morning to get the frozen feeder and wrap a hot towel around it until TicTok could drink. TicTok would yell at me if I didn’t fix it as soon as it was light.

The Anna’s hummingbirds can overwinter here. It got well below freezing. They can slow their metabolism and do an overnight mini-hibernation. They are hungry as bears when they wake up!

Taken in 2019.

For the Ragtag Daily Prompt: frost.