Category Archives: love

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daily changes

Some days this beach is mostly sand. Yesterday it is rocks and more rocks, pebbles, stones, sand, beautiful. We are having lots of cliff collapse and new rocks are washing down. I was walking on North Beach last week when I heard bits of cliff fall. I turn and look and a nice one foot by 8 inch boulder falls from the top and rolls towards me, very fast. I stumble backwards and trip over a big boulder in the sand. I don’t hit my head and get knocked out and I don’t get hit by the falling rock.

The black toes are mine, so this is a stealthie.

I start back a little and another section of cliff rains rock. The tide is fairly far out, so I walk near the water until I am back where there is no cliff. Scary. Sometimes large sections collapse all at once. Death occurs by blunt trauma rather than suffocation.

I worry about seeing shoes or feet when I see a newly collapsed section. Happily none so far.

My emotions are like the beach. Some days clear and sun and sand. Other days LOTS of new rocks. Other days stormy and the tide is very high and pulling at the sand and clay cliffs.

I receive a valentine from my daughter. She says she loves me. She says she misses the beach and the water most of all.

I find agates and they are beautiful. Some are clear and some are not and new ones keep arriving.

This agate lights up when the sun is out or a light is behind it.

Let the light shine through, in spite of the weather.

________________________

For the Ragtag Daily Prompt: pebble.

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apprentice

Am I his apprentice
or is he mine?

Neither, love,
all is fine.

He says he’s not
in love with me.

Play, love,
climb a tree.

He’s traveled and home
and doesn’t come by.

No worries, love
you won’t die.

I am sad and I miss him,
I long for his face.

It’s just the tide, love,
it will leave no trace.

Why, Beloved, is love
not for me?

Because, darling,
you chose to be free.

______________________

For the Ragtag Daily Prompt: apprentice.

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his steady light

Dreaming of the Sun
whose warm rays surround her
and caress her
daily

she orbits him
and he pours his love on her
steady
constant
joyous

occasionally he flares up
and that might hurt
some of the small cells
on her surface

but she sheds
dead cells
they are reabsorbed
and she basks

in his warmth
with joy
ecstatic
orbit

she is alive
turning
whirling
so her small children
are not overcooked

like mercury

are not frozen

like uranus

mars is a rival
but the seas are dead
at least

her small children
think so

and venus
swelters
and is clouded
all the time
toxic

she turns
dancing
full of joy

in his steady light

___________________

written January 8, 2022

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Dinosaurs got colds too

https://www.abc.net.au/news/science/2022-02-11/dolly-diplodocid-dinosaur-pneumonia-disease-respiratory-illness/100817258

Dolly the Dinosaur shows evidence of a respiratory infection: aka a “cold”. And a chronic cold. She died at age 15, about half way through her lifespan. I suspect a little guesswork there. Do old dinosaurs turn grey?

There are dinosaur bone changes in Dolly from chronic infection. The scientist posted photographs on the internet and other bone experts said, that is infection. That is evidence of respiratory infection. “A lot of the times when any disease or trauma is found in a dinosaur skeleton, it’s often in limb bones where you expect it to happen,” Dr Poropat said. “Seeing it where the air sacs penetrate the vertebrae in a sauropod is quite unusual.” Also, she didn’t die of volcanic ash: “Inhalation of volcanic ash can cause a disease similar to mesothelioma.” Who knew? I haven’t kept up on my dinosaur medicine. The pattern of lesions also didn’t fit with lung cancer. Instead, Dr Woodruff and his colleagues think bacterial or fungal infections such as chlamydiosis and aspergillosis are prime suspects. These respiratory infections are common in birds today. “We don’t know for sure if the infection was bad enough to ultimately do Dolly in.”

Dolly, with her long neck, had neck arthritis from a chronic cold. She thought it was allergies.

Coronoviruses are colds. We are have a pandemic of a really really nasty killer cold and a cold that is doing long term damage in way too many people. That seems hugely ironic to me. I thought it would be influenza. After flu nearly killed me in 2003 I read about it and have enormous respect for it. And influenza is endemic and is always circling the world, in the colder regions.

My ideas about allergies and asthma are changing. We define asthma by whether people respond to albuterol. I do not respond to albuterol so I do not have asthma. However, I respond to other adrenaline like molecules: coffee caffeine and terbutaline. So do I have an asthma like illness? My allergy testing in 2014 was resoundingly negative. I tested for celiac in 2020, because I just did not feel well. Negative. I have not retested yet, but even if that antibody testing is negative, it was gluten that flared up diverticulitis in me. The thing is, there could be other antibodies. Loads of them. We all make different ones.

I am thinking about tubulin. Tubulin powers our muscles and cilia and flagella. It is mitochondrial. We inherit mitochondria from the mother only: it is in the egg but not the sperm. Mitochondria is matrolineal. My son and daughter both have my mitochondria. I have a photograph of my maternal grandmother’s mother. Her expression is amazingly like my daughter’s expression when she is thinking. My daughter has my poor spelling skills, my attitude towards work, and her father’s muscular endurance. During college, her father’s goal was five sports a day. In high school my daughter said that she “just didn’t feel good” when the pool was closed. She was used to swimming 3-5 miles a day and lifting weights. Her father can get on a bicycle and ride at the speed of talking all day. He also has pioneered “jog golfing” in his area. When the golf course is empty in the winter, he plays golf and jogs from one hole to the next with his bag. Yes, he is nuts, I agree. I am jealous of that endurance.

The inheritance of antibodies would be from both parents, because they are made by the white blood cells. Do parents and children make the same antibodies or are they entirely different? I do not know that. I took an immunology course when I worked at NIH in the 1980s. I also had some immunology in medical school, but not nearly to the level that I am interested in now. I think I am hunting for a really good immunology course. And maybe more information about dinosaur medicine.

RDP-SUNDAY-THREAD

For the Ragtag Daily Prompt: thread. This post follows the thread of my thoughts this morning

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pleasures

I put up the picture of my friends canoeing under simple pleasures.

Yet it isn’t that simple, right?

We have to get to the lake. My friends live in Virginia, I live in Washington State. I fly to Sault St Marie, US and they fly to Sault St Marie, Canada. I take a taxi across the border and meet them with their rental car. We drive to the Lake, after stopping for supplies. The motor boat is ready for us. There is no road to the cabin, we go by boat.

The canoe is a Penn Yan that belongs to my family. I don’t know how old it is. It is treasured and cared for carefully.

The family needs life jackets, paddles and instructions on getting in and out of the canoe. One friend is a very experienced kayaker, so he doesn’t need help. The other two are less experienced. Sun hats are found and put on.

We are not going that far. I will be in a second canoe, a very tippy small one. We have lunch with us and water.

Not so simple after all, but definitely pleasurable.

https://woodencanoemuseum.org/builder-history/penn-yan-boat-company

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Neither am I

you are so beautiful
I love you so much
and I see you

so clearly

I look at you
I wish
you could see me

you see the darkness
the bear
you carry with you
and project
on me

you hold the bear
at a distance
you see it
all the time
in other people

when the bear comes
I hold open my arms
and welcome it
and I don’t yell

the bear roars
with dripping teeth
tries to terrify me

and I reach for it

me too
I say
come meet
my monsters

all my monsters
anger fear grief
shame
come out

the bear
stares at them

they hold out
their arms

the bear bows
his head
and we surround him
and welcome him
and love him

the bear cries

because you don’t love him

the bear cries
and cries and cries

we hold the bear
and cuddle him
and feed him
and try to warm him
and do the best we can

but we are not you

you come towards me
seeing the bear
fortified by my monsters
you attack

and my monsters hide
and hide your bear

and you stand
sword ready
to split us apart

confused
where is the bear?

you are sure
you see a bear
but it is gone
and I am a little girl

the naked sword is raised
the gun is loaded
you and weapons ready

no bear

you lower the gun
the sword
and make excuses
and leave

and the bear
hugs us all
thanks us

as you leave
the bear walks faster
nearly a shambling run
and dissolves into you

we wave
my monsters and I
we wave goodbye again
send love
to you and your bear

Over the Rhine: All of My Favorite People are Broken, credit: https://www.flickr.com/photos/31683793@N07/collections/72157628647320299/

For the Ragtag Daily Prompt: myopic.

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Covid-19: long haul II

A few days ago my primary care doctor texts that she wonders if I have the autoimmune form of fibromyalgia.

Red alert. I have not heard about this.

I did a search last night and find this: https://www.sciencedaily.com/releases/2021/07/210701120703.htm.

Now, if you have been paying attention, you know that I was diagnosed with PANDAS in 2012, though Isuspect that it is really PANS. Both are autoimmune disorders. I also think that long haul covid is the same thing or something similar.

Meanwhile, they are now saying Covid-19 Long Haul may ALSO be an autoimmune disorder. Multiple sites below.

There is a paper in Nature that I don’t have access to, annoyingly enough. The fibromyalgia story in the above story is that they have spun antibodies down from human serum of affected and unaffected people and then injected them into mice. The mice get fibromyalgia symptoms from the affected antibodies but not from the unaffected ones. The symptoms in the mice go away when the antibodies fade out, in a few weeks. Aha.

The long haul story says that death from Covid-19 may be an autoimmune response, the antibodies going really nuts and making people bleed or their lungs close down. That is, swell shut. They have been drawing blood to study at different stages of Covid-19 and also checking autopsy patients. Usually autoimmune diseases are more prevalent in women then men but Covid-19 seems to be worse in men. This: “The mechanisms behind the production of such autoantibodies aren’t yet clear. Widespread and long-term inflammation during severe COVID-19 may cause the immune system to produce antibodies to pieces of the virus it wouldn’t normally recognize. Some of those pieces might resemble human proteins enough to trigger the production of autoantibodies.

Excessive inflammation could also boost production of autoantibodies that had previously only existed in the body at very low levels. Vaccination against COVID-19 is much less inflammatory than infection with the virus. In a separate study that looked at COVID vaccination, none of the healthy volunteers developed autoantibodies.” (2)(*)

Here is another fibromyalgia paper: https://www.verywellhealth.com/autoimmunity-neuroinflammation-in-fibromyalgia-5197944. That paper lists the autoantibodies that they are finding in fibromyalgia including gangliosides. The fourth antibody in PANDAS/PANS is anti-lysoganglioside. Aha! So this is sparking a serious revolution in medicine: it is looking like many of the mysterious and difficult to describe and quantify diseases may be autoantibody disorders. The anti-ganglioside antibodies were found in 71% of fibromyalgia patients. There are seven antibodies listed, including one to serotonin. In PANS, they are blaming two anti-dopamine antibodies. None of the fibromyalgia patients had ALL seven, but all of them had some of them. A different pattern in every patient, because we all make different antibodies. Fascinating.

One more: https://pubmed.ncbi.nlm.nih.gov/28339361/. People with lupus are more likely to have fibromyalgia and visa versa. “Increasing evidence indicates that N-methyl-D-aspartate receptors (NMDARs) play a major role in the induction and maintenance of central sensitisation with chronic pain. In this study, we evaluated the role of anti-NMDAR antibodies in the development of FM in patients with SLE.” Lupus and fibromyalgia share an autoantibody. Holy cats. NMDA is ALSO a neurotransmitter. Makes me wonder quite a bit about “psychiatric” disorders.

Remember that we make up all the words. So the autoimmune diseases are usually found by testing for a few antibodies. In the most common autoimmune disorder, hypothyroidism, we usually check the TSH and T4 level, so patient hormone levels rather than antibody levels. Over the last 30 years, we are able to test for more antibodies. Systemic lupus erythematosis, celiac, rheumatoid arthritis, juvenile rheumatoid arthritis. When I was in medical school in 1989, the rheumatology book was an inch and a half thick and there were loads of different patterns of disease. I am sure it is twice as thick now. Our initial test for autoimmune disease is for inflammation: an antinuclear antibody and an erythrocyte sedimentation rate. Some people have rheumatoid arthritis but their RF is negative: they have “sero-negative” rheumatiod arthritis, which is more likely “a different autoantibody that we have not tracked down” rheumatoid arthritis. In chronic fatigue and fibromyalgia, the antinuclear antibody and erythrocyte sedimentation rate are usually normal. I suspect both disorders of being “post” inflammation.

My prediction is a serious medical revolution, where we start regularly testing for autoantibodies. Whether that will be something like a pregnancy test but with hundreds of autoantibodies tested for, or whether there are some key indicator ones that we can find, is not clear. At any rate, trauma, stress and infection all increase the likelihood of getting one of these disorders and we have to figure out how to lower the load of all three.

Do you think people are instinctively quitting their jobs?

I had a phone visit with my pulmonologist yesterday. She was running about 35 minutes late, I sat on Zoom until she showed up. She looks exhausted. “We have less doctors and more patients.” she says. “I was on call for the critical care unit last week and I am on call Monday and Tuesday.” “Please take care of yourself,” I say, “We really need you.” She is smiling the whole time. She is worried about me dropping weight and I am worried about her.

Prayers and blessings all around.


1. https://www.cedars-sinai.org/newsroom/covid-19-can-trigger-self-attacking-antibodies/
2. https://www.nih.gov/news-events/nih-research-matters/autoimmune-response-found-many-covid-19
1. https://www.cedars-sinai.org/newsroom/covid-19-can-trigger-self-attacking-antibodies/
2. https://www.nih.gov/news-events/nih-research-matters/autoimmune-response-found-many-covid-19
3. https://thehill.com/policy/healthcare/591528-long-covid-study-author-explains-four-factors-that-can-predict-how-you-get
4. https://www.the-scientist.com/news-opinion/studies-identify-risk-factors-for-long-covid-69648
5. https://www.dailymail.co.uk/health/article-10436473/Is-people-sicker-Covid-19.html
*If that paragraph does not make people get the vaccine, they are living completely in a mad dream world, IMHO.
6. https://www.nih.gov/news-events/nih-research-matters/misdirected-antibodies-linked-severe-covid-19

For the Ragtag Daily Prompt: flickering. As in flickering hope.