Tag Archives: grief

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On death and feelings

When my mother was dying of cancer, she did not want us to cry.

So we didn’t. We had her at home in hospice for nearly six weeks and we did not cry. Almost.

My sister called me. “I started crying today, at the kitchen table.” My mother was in another room in the hospital bed. “Everyone left. No one stayed with me. Everyone left.”

I didn’t cry but when people called to say how were things, I couldn’t speak. I sat there with the phone, silent. Because what I wanted to say was my truth and I knew very well that that was not what they were calling to hear. So I did not speak.

After my mother died, time passed. I felt…. many things, but the strongest one was “I wish my mother had let me cry.” We did what she wanted. But I wanted to cry.

My sister got cancer and fought it ferociously. She refused hospice until the last week. I flew down three times in the last two months.

Six days before she died, her friend and I were helping her. “I’m sad!” said my sister.

“Don’t be sad.” said the friend.

“It’s ok to be sad.” I said. “What are you sad about?”

My sister started crying: “I won’t be at my daughter’s high school graduation! I won’t see her get ready for prom! I don’t want to leave her!”

“You won’t leave her.” I said. “You will be there. Not in this form.” I meant it absolutely.

“I want to stay!” she said.

“I know.” I said. “I am so sorry.”

With my sister, I did not do what she wanted. I thought of my mother and that I wished she had let me cry. With my sister, I tried to listen to what she wanted and listen to what I wanted. I tried to be honest with her. She even got mad!

But… I watched her go in the cancer bubble. Where fewer and fewer people were being honest. They were afraid. They did what she wanted. They wanted her to be happy. And she tried so hard….

When I had arrived for the last visit with my sister, she was sitting with my cousin. I hugged her. She was not speaking much. I asked if she would like me to sing something and she nodded. I started singing “I gave my love a cherry”, a sweet lullaby. My sister shook her head, angry and fierce. I studied her. “How about Samuel Hall?” I said. My sister smiled and nodded. I started singing “My name is Samuel Hall.” It is about a man who is going to the gallows for killing someone and he is entirely unrepentant and angry. My cousin looked at me, startled. “I haven’t thought of that song in years,” he said. We both sang it to my sister. “To the gallows I must go, with my friends all down below, damn your eyes, damn your eyes.” That was the right song, angry, resisting, raging. “Hope to see you all in hell, hope to hell you sizzle well, damn your eyes, damn your eyes.”

I flew back to work three days before my sister died. I am told that she was scared when she died. “I said, don’t be scared.” said a friend.

Why not? I thought. Why can’t the dying be scared, be anxious, be angry? Why are we afraid to let them? I would have said, Why are you scared? And I would have said, I am scared too. And sad. And angry.

I told my counselor once that my husband was on the couch, angry, and I had to leave the room.

“Why?” she said.

“I am afraid.” I said.

“Why?” she said.

“I am afraid he’s angry at me.” I said.

“So what?” she said.

I thought, so what? “I want to fix him. I want him to not be angry.” Even if it isn’t at me.

“Why can’t you stay in the room?” she said.

I practiced. I stayed in the room. He was angry, grumpy, acting out. It’s not my anger. I don’t have to fix it. It may be just or unjust. Does it really matter? It is his anger not mine. I can stay present.

A friend said that his friend was dying leaving small children. “He was so angry that almost all his friends stopped visiting.”

A man and his sister are not speaking four years after their father died because they disagreed so strongly about how his lung cancer should be treated.

An elderly woman in the hospital agrees to go home for care with her son when he is present and with her daughter when she is present. When neither is present she will not make a decision.

A woman says to me that she is angry that hospice didn’t tell her which drug to give at the end to keep her friend from being anxious.

I hope that we learn to stay present for the dying and for the living. For all of the “negative” emotions. I see most of my hospice patients want LESS medicine rather than more. As their kidneys fail, the medicines last longer. They do not want to be asleep. They may cry. They may be angry. They may be unreasonable. Why should they be reasonable or nice or peaceful?

We want most to be loved entirely. Even when we are sad or whiney or angry or anxious. Who wants to be left alone when they are afraid? I hope we all learn to stay present.

And when we were alone, in that last three days, my sister said “I’m bad!” I said, “You are not bad. You’ve done some really bad things.” She said, “I’m sorry.” I said, “I love you anyway.” And she lit up like a buddhist monk, like an angel. And we both cried and I am so glad I was there.

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Loved

It’s ok

I just want you to know

even if I never see you again
even if I never touch your hand
even if I never hug you again
even if you don’t answer
even if you don’t let me in
even if you are deaf to anything I say
even if you forget the moment you stop reading
even

I just want you to know

you are loved you are loved you are loved

always

even if

for my lost ones, living and dead 9/15/16

The photograph is from 2004, in the Hoh Rain Forest.

I am submitting this to the Friday Night Music Prompt #62 : Never too late for love & Keep me in your heart

 

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End of Life Plan

My End of Life Plan and Wishes are as follows:

1. My plan is that my life should end after a half day of skiing for free at age 125 or 126.
2. My wish is to ski quite brilliantly, smoothly and gracefully, though not as aggressively as at age 110 and below.
3. My plan is that other skiers will ask who that brilliant skier is and that all the lift operators will know.
4. My plan is that I will have a delicious lunch, with a glass of champagne, in a condo overlooking the slopes.
5. I plan to have a hot tub and then a massage from one of the many handsome men who flirt with me.
6. My plan is that I will sit in a comfortable leather armchair with my feet on a foot stool, while three of my male friends vie to be the one to bring me the second glass of champagne.
7. My wish is that I will not need any cosmetic surgery or false eyes or ears or teeth or joints or heart valves and will retain my spleen, teeth, gall bladder, appendix and brain in full operating order.
8. My plan is that I will not be on prescriptions, medicines, vitamins, supplements, medical foods, or nutraceuticals nor under the care of any quacks of any sort.
9. My wish is that my male flirts will all think that I am not a day over 75.
10. My wish is that I will be listening to live music, a woodwind quartet or string quartet, just dropped in to say hello, along with three of my great grandchildren, showing off their olympic ski medals, summa cum laude graduation documents, or Nobel prizes.
11. My plan is that after the quartet leaves, I will fall asleep….
12. ….and not wake up, and that though my attendants are sad, none of them throws themselves off the balcony over the cliff and are all surprised at my true age and at the bountiful gifts I have left to each of them with proof that a long life and compounded interest have excellent results. My children, grandchildren and great grandchildren will live long and prosper as well.

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Art at Quimper Family Medicine

I change the art at clinic, these for the summer. We had four reproductions up before, of alchemy paintings from the 1400-1600s. I thought they were creepy but also interesting and beautiful.

The painting on the left is by my mother, Helen Burling Ottaway, of my sister, Christine Robbins Ottaway. On the right is an oil by an artist that I don’t know. It looks like my father. I inherited art, but I keep finding beautiful pieces. At least I can display a little and rotate them with the seasons…

 

 

 

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Black lives matter

My family moved from upstate New York to Alexandria, Virginia when I started high school. My mother, Helen Burling Ottaway, took life drawing classes at the community college to meet other artists and because she would have a model. More than one.

She met Michal Platt and took classes with him. He pushed her. My mother did tiny etchings and fantasy drawings and big drawings and watercolors. Micheal wanted her to do powerful drawings. So she did. When he had to be gone for a day from the class, he would have my mother fill in teaching.

I have this picture hanging in my clinic. The title is “One fist of iron”.

The stages of grief for the recent deaths include denial, anger, bargaining, grief and acceptance. It is not a series one goes through. We do them over and over, going from one to another, like a spiral, a whirlpool, a tornado. Black lives matter, police lives matter, I wish my mother were still alive.

 

 

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Unconditional 2

I think the hardest thing in the world is to love unconditionally. And we can’t love unconditionally unless we love ourselves in that too. Including our faults, our mistakes, our dark corners, our anger and grief, pettiness, unkindness, stupidity, jealousy, greed lust… if we only love our “good” side then we will attack others when they show the same weakness and faults that we know, deep inside, that we are capable of or have acted on. If we cannot love someone who is a sinner, we cannot love anyone, because we are all guilty. Love people anyhow and wholly and yourself too.

I went through a period after my mother died, where I felt I’d entirely failed. My marriage was disintegrating, and I was looking at myself very carefully. How had I gotten here? What mistakes had I made? I felt unlovable and stupid.

I found a letter from my mother written to herself when my father asked me to clean out her clothes. It was two or three years after she died. Here is the letter, with a few things left out for the privacy of the living:

____________________

Sept 18, Friday
1987
Seattle

I don’t want to go home. I want to stay here in Seattle. With the mountains that lift my heart. And clear air and only good memories. What is there to go home to? Struggling with X and his alcohol. I don’t want to try to do something about it. I don’t think it will work if I do. I think will only go on as it is and trying to get help will only lead to fight. I don’t think I have the strength, the courage or the wisdom to help myself or him.

What else am I going to? A house that needs a great deal of work that I only moderately like. A climate I loath. A landscape I find boring. I’m tired of living in a crowded suburb. And that house needs so much work.

People. What people do I go home to? Nearly all have problems. Y, wounded bird, so foolishly enamored of Z or thinks he is. And I have little sympathy or patience with it. And his propensity to failure which I’m tired of also.

A who I dearly love but her household is such chaos with those ill-behaved children and one crisis after another.

B who I like very much but really have so little in common with. I fear all that spiritual stuff may eventually bore me. Maybe not.

C. Another wounded bird, really. And not dependable.

D, barely around, anymore.

Mother, older and frailer. Who needs my care and patience.

E. There is one person to go home to. Thank God she’s there. Not wounded anymore. But so busy and it isn’t fair or wise to dump my troubles on her.

Who else? Why don’t I know any successful (in the best sense) sane people. People who are intellectuals, interested in ideas. F is. But not a fully successful human being and not when G is with him. Ugh. Besides he lives far away and he and X don’t like each other.

I don’t really want to have that show at H’s Church. I don’t like H very well. Oh dear.

I maybe have a job which if I get will be very hard work and if I don’t will be a great disappointment.

Winter’s coming and things cost more and we don’t have quite enough to live on. So that means digging into my inheritance.

I am sick of D.C. I am sick of being a struggling, unsuccessful artist. I am sick of worrying about X, about his moods, his acting the fool when half drunk and acting cruel and crazy when fully drunk. I’m sick of being afraid, of his depression, of his refusal to talk to me about anything of importance.

Of doing dishing. Of all the mess in our house. The mess on my desk, the mud room, the kitchen, the study, the basement. The dirty paint. The back yard. Oh God! How can I change things? Well there are a lot of bad things.

Oh, & I’m sick of being anxious, 10 lbs overweight, biting my nails, having bad teeth/gums. Life get tedjous, don’t it?

Any good stuff?

____________________________

For me, this letter was the key to finding myself lovable. My mother wrote to herself because she felt that she could not share these feelings with anyone. Terrible feelings. And I thought about it for a long time: I thought: my mother was charming, loved and an entertainer. But a child knows the parents’ hidden feelings. So I knew about my mother’s darkness and the letter confirmed it. And I thought, my mother didn’t need to hide that because I knew about it and I loved her anyhow. I love her more knowing that she was human too.

And if she is lovable whole, so am I. So are you. We all are. And we all make mistakes and are guilty of anger (sometimes appropriate but sometimes not!) jealousy, greed, lust, sloth and pride. Love people anyway and wholly and yourself too.

 

I have a view of Puget Sound if I stand in the road in front of my house. I took this with a zoom lens on solstice morning at sunrise.

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Frail

I wrote this two years before my father died. I did find him…..

Frail
We are going sailing
My partner says to me
β€œInvite him if you want.”

Then I am busy for a while

I think of calling, then forget

He was not at chorus on Monday

At last I say,
β€œI haven’t called. We’ll just sail.
Just us today.”

I haven’t called
because he was not at chorus on Monday

He is frail
55 years of camels
two packs a day
as if each cigarette
destroyed one alveolus
in his lungs
one tiny air/blood interface
built to exchange oxygen
and carbon dioxide
the loss is cumulative
He is frail
he is proud that the choral director
says, β€œI need you.”
He can’t sustain
but his entrances and time
are the best
among the basses.
They need him.

Chorus
is our winter link
two introverts
we hug at the start of chorus
sing for two hours
and talk for a few minutes at the end

Occasionally we go for a beer
I invite him for dinner
but he comes less and less
he often does not feel well at night

He looks smaller at chorus
this season
this is normal in emphysema
the body sheds weight
too much tissue to oxygenate
too hard for the lungs
and the heart, working overtime
to make up the difference
he is blessed with low blood pressure
genetic, from his father,
tough English stock,
otherwise I think he’d be dead

I didn’t call
before we went sailing
because I am afraid

I’ve driven out before
when he has not answered the phone
for a day or two
wondering if I would find him dead

I didn’t call
before we went sailing
because he was not at chorus on Monday
because if he didn’t answer today
I would not go

 
I took the photograph in 2009

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label

Quick: label

It is because he was (label)
but he really was (label)
and hated himself
so he killedΒ  (label)

the labels
create a safe distance

we think
we are not in those (label)s

drop the labels

a person
was sad and lonely and grieving and enraged

he took a gun
he shot many other people

bow our heads

and grieve

 

I took the photograph with my phone last night on the beach.

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T is for tender

T for tender, in this alphabet of feelings.

Look at the Webster 1913: such a rich variety of meanings. Dictionary.com seems to have toned them down and we have lost the quotations: from the bible, from L’Estrange, from Shak: I realized, oh, Shakespeare…..

Ten”der, a. [Compar. Tenderer (?); superl. Tenderest.] [F. tendre, L. tener; probably akin to tenuis thin. See Thin.]

1. Easily impressed, broken, bruised, or injured; not firm or hard; delicate; as, tender plants; tender flesh; tender fruit.
2. Sensible to impression and pain; easily pained.
Β Β Β  Our bodies are not naturally more tender than our faces. L’Estrange.
3. Physically weak; not hardly or able to endure hardship; immature; effeminate.
Β Β Β  The tender and delicate woman among you. Deut. xxviii. 56.
4. Susceptible of the softer passions, as love, compassion, kindness; compassionate; pitiful; anxious for another’s good; easily excited to pity, forgiveness, or favor; sympathetic.
Β Β Β  The Lord is very pitiful, and of tender mercy. James v. 11.
Β Β Β  I am choleric by my nature, and tender by my temper. Fuller.

When my daughter was two, my cousin visited with his wife and one year old. My daughter was delighted with this younger child and she was very tender and kind to him. On the third day I realized that she had interpreted “family” as they were now part of the family.

“Camille,” I said, “They are leaving tomorrow. They are visiting us and they have a home.”

She gave me a look of horror and then terrible disappointment. She revised the meaning of family: family doesn’t mean live together. That is how she interpreted family, which is completely understandable. I was sorry to make her so sad, but I didn’t want her to be shocked and sad the next day. She was still loving to the younger cousin and sad when they left. I apologized to her for the misunderstanding.

5. Exciting kind concern; dear; precious.
Β Β Β  I love Valentine, Whose life’s as tender to me as my soul! Shak.
6. Careful to save inviolate, or not to injure; — with of.
Β Β Β  “Tender of property.”Burke.
Β Β Β  The civil authority should be tender of the honor of God and religion. Tillotson.
7. Unwilling to cause pain; gentle; mild.
Β Β Β  You, that are thus so tender o’er his follies, Will never do him good. Shak.

What makes us feel tender? A sleeping child, a lullaby, a new baby, a very young animal, new plants or flowers…

8. Adapted to excite feeling or sympathy; expressive of the softer passions; pathetic; as, tender expressions; tender expostulations; a tender strain.
9. Apt to give pain; causing grief or pain; delicate; as, a tender subject.
“Things that are tender and unpleasing.” Bacon.
10. Naut. Heeling over too easily when under sail; — said of a vessel.

β‡’ Tender is sometimes used in the formation of self-explaining compounds; as, tender-footed, tender-looking, tender-minded, tender-mouthed, and the like.

I bruised my daughter’s tender heart when I told her that they were leaving, but I did not want to lie to her or take her by surprise…..

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7 Sins and friends

My blogging from A to Z this year is titled 7 sins and friends….. sins? I am thinking about emotions and how many our culture says are bad or that we should not feel. Men are encouraged to be strong and silent and women are encouraged to be nice. “Feel good all the time!” says our culture. But we can’t, won’t, don’t.

People say, “Try not to feel that way.” Now when someone says that to me, I think, that is a feeling that they are not comfortable with, but I am comfortable with it, enough to express it. We label feelings with value judgements. Happy is a good feeling, anger is terrible, but really it is all neurological information. It is part of our system for exploring the world, just as touch and taste and sight and hearing help us explore the world. Imagine if we could not feel fear: a toddler walking off a cliff because they have no idea to be afraid. And without pain, we would not pull our finger back from being burned. If we can’t grieve, we can’t truly love.

I sat down yesterday and made a list of emotions and feelings, from A to Z, and I have more than one for each. I will only choose one for each letter, at least that is the current plan, but think of the richness and complexity of human feeling. Why don’t we celebrate it instead of excoriating it? And doesn’t every human have the full spectrum of feelings? We may not be comfortable with a feeling or have a name for it, but I think we all have all of them.

The photo is from Halloween, 2005, dressed up for church.