Category Archives: words

by

Disorientation

Oooo, I put orientation up as the Ragtag Daily Prompt today. Then I wondered if disorientation is a word and it is! A mouthful!

This is a series of poems or meditations or arguments I had with myself last week. I was thinking about love and how to handle people that I love that have stopped behaving in a loving way or have actually been cruel or cut me off. Do I stop loving them and hate them? Do I love them anyhow? What would that love open me to? Abuse? It is disorienting to think about. Here is the series.

___________________________

The Fall

I am small. The adults love me and give me away. I grieve each time. It doesn’t matter if I behave well or not: they leave me. I decide that the adults are confused. They do not know how to love. Why don’t they know? I want to understand! Babies should be loved! We are innocent!

All babies should be loved and protected. I do, with my sister. The adults continue their mysterious crazy doings. I recognize that alcohol does not help, nor other choices.

All babies should be loved and protected. All adults were babies once. Sometimes they were not loved and protected and they are damaged. I train and then I doctor them. Healing is slow.

All babies should be loved and protected. All adults were babies once. All adults hold a baby that should be loved and protected: themselves. I try for a long time.

All babies should be loved and protected. All adults were babies once. Each adult makes their own choices, to heal or not. To grow or not. To love themselves and the Beloved or not.

All babies should be loved and protected. All adults make choices. The Beloved loves them all.

I am not the Beloved. Nor an angel. I dream of falling.

I am not the Beloved. I let go. I fall.

I do not love them all.

Rise

Yesterday I fell. I let myself dislike four people that I loved.

But no, I choose not. Angels fall and rise again. I choose love. If that means distance, then I choose distance. For now I will love the cruel ones from a distance. No contact.

The Buddhas laugh at the needy ones, the angry ones, the ones who press. Some will be enlightened, some wait for the next life. The Buddhas laugh because they do not control it. It may be the quiet one who says nothing who rises, while one who wants and wants and wants may have to want for longer. Why, Beloved? Isn’t wanting you enough? Isn’t longing enough? How much must one want? How deeply must one long?

I choose love.

Prayer to Kwan Yin

Kwan Yin, I am sorry. I cannot be a Bodhisattva. I am tired. I grieve. I want to love everyone. They hate it. If I love the small child within they are reminded of the hidden hurts and they lash out. I am tired. I don’t want to be the target of that. Kwan Yin, how to do you return and return again, loving these? I am not strong enough. I give up. I throw myself on your mercy, I bow to your infinite love and strength, I abase myself. Forgive me, I am not strong enough. I give up. I do not have enough love in my heart and I am so tired.

Beloved, I am sorry. I tried.

Every Being (Sonnet 9)

Keep the cruel ones at a distance far.
Hold your enemies close in love’s embrace.
None to hate, yet cruelty glints like stars.
I hide quiet with cats in this home space.
My heart opens like the universe.
Projections batter me from head to toe.
Why tear at me with their deep hurts?
They project their pain: inside they know.
They know, don’t know, choose not to learn.
Dark rooms and texts and staring at the screen.
My skin scalded, heart black with new burns.
I think they’d like me too to turn out mean.
I will hide here with Beloved’s dove.
Each tear I cry sends every being love.

In spite of want

Sol set in my heart and rises again. I can love whoever I want. There are no boundaries to love. But I will not be abused or used, I will love quietly and silently and without letting my love know. And I will love who I want. No, I will love in spite of want, though I do not want to, though it is not deserved. But I honor my stubborn heart that does not let go of love.

Blessings, Beloved.

by

Rain song

Thoughts coalesce, precipitate
wet earth soaks rain and turn to mud
snow melts and soaks the bosom of the earth
sun warms, worms break down tattered leaves
what stirs beneath wet brown muddy ground
we listen for spring’s soft slow moving sound

_______________________________

For the Ragtag Daily Prompt: precipitate.

Taken in December 2021 in Maryland.

Lichen song: https://www.youtube.com/watch?v=t0MvY6m_5yI.

And another:

by

Release the Kraken!

I chose measly for the Ragtag Daily Prompt because there is a measles outbreak. Great. Another outbreak? Yes. Parents are behind on bringing kids in for Well Child Checks and kids are behind on immunizations, so measles.

Measles is way more infectious than Covid-19 and is spread by coughing and droplets. Per the CDC: “Measles is one of the most contagious diseases. Measles is so contagious that if one person has it, up to 90% of the people close to that person who are not immune will also become infected.” Read here. Immunizations are at 18 months and age 4-6, two shots. That will make the vast majority of children immune but not quite all. No immunization reaches quite 100%. Measles unfortunately can have some awful and serious complications including death. If your child is behind, get them immunized as soon as possible!

If some has the measles, the rash, they are measly. That is one of the definitions of measly.

Measly weasely
You are so teasely
Your heart has a rash
Our friendship is hash
You toss me like trash
Your heart just smashed
You are so measly
Weasely teasely

___________________

I keep wondering if the earth is annoyed at the way people are behaving. Perhaps she has said, β€œRelease the Kraken!” But the most efficient Kraken turns out not to be a giant monster attacking New York City, but Covid-19, influenza, measles and strep A. Invasive strep A is out there too. Having had strep A pneumonia and borderline sepsis twice, I very much do not want invasive strep A.

It’s the little things that get us, right? Viruses, bacteria. Measles is a virus, like influenza and Covid-19. Strep A is a bacteria. I had very bad influenza in 2003 that put me out for two months. I read about influenza and thought, oh, we will have another pandemic and in fact we were overdue. They come about every fifty years. My children heard quite a bit about it. My daughter said she wondered if I was a little nuts until the ebola outbreak and then she decided that I was probably and unfortunately correct. The only surprise for me was that it was a coronavirus instead of influenza. That and that humans behave in very interesting and often dysfunctional ways when they are stressed: and the same ways as in the 1918-1920 influenza pandemic. Logic flies out the window replaced by panic, magical thinking and rumors and people happy to take advantage of others. Selling fake cures, refusing masks, refusing immunizations and denying that it is happening at all.

For the Ragtag Daily Prompt: measly.

by

swamp robin

I took this in my front yard two days ago. They are called swamp robins here, but another name is varied thrush. I have never seen one in my yard before and there was a pair! I think I saw a fox sparrow as well, who are large, red brown and have lots of spots on the breast.

If it was a sunny day, the colors would be brighter, but you can see the blue and orange and black! Very dramatic! I need my kodachrome! It would also help to not be shooting through a window, a storm, in clouds. Oh, well.

For the Ragtag Daily Prompt: chrome.

by

pulmonary rehabilitation

I am fractious and grumpy when I first go to pulmonary rehabilitation at my local hospital.

This is because I have local hospital PTSD because of past treatment. However, there is only one hospital in my county.

I am anxious and tachycardic when I first arrive. I have sent patients to cardiac rehabilitation and to pulmonary rehabilitation, but it’s the first time I’ve gone. My doctor did not refer me until I ask her. I thought it up while I was talking to my insurance company’s chronic care person. You know you are desperate when you call your insurance company for ideas. The insurance company is motivated to pay for pulmonary rehabilitation because I am expensive. I have had loads of tests this year and cost a bunch of money. They would like me well. Me too. So yes, I qualify for pulmonary rehab by virtue of four pneumonias in nineteen years and this time a year on oxygen continuously and still part time now.

I have two people to help me. One is a respiratory therapist and the other a physical therapist. I am an unusual referral. Many of their patients have chronic obstructive pulmonary disease and/or emphysema, usually from cigaretes, but also from things like asbestos or alpha-1-antitrypsin disorder or progressive muscular disorders.

They explain. There are 24 visits, over 12 weeks. I come in twice a week. I am weighed, they ask about symptoms, and we go to the small gym. It has three treadmills, three stationary bikes and three of those semi-horizontal not really a bike things. I pick the treadmill. After I describe my lung weirdness, that a fast heart rate preceeds hypoxia, they put a wrist pulse oximeter on me. Unlike the little finger ones, it can pick up heart rate and oxygen rate even when I am walking on the treadmill. My blood pressure and pulse is checked and I start the treadmill. I go slowly the first time. My heartrate is over 100 to start with, but that’s partly the PTSD reaction. I can slow my heart rate just by slowing my breathing and not talking, into the 80s.

Here is how I looked the first time:

https://www.reddit.com/r/FunnyAnimals/comments/zadptv/this_is_whats_happened_in_gym/

Ok, not really. I start walking on the treadmill and go for 30 minutes. Blood pressure and heart rate are checked mid way through. The only time I drop my oxygen level is when I walk AND talk and then I drop it to 87. I stop talking.

After the treadmill, there is another 15-20 minutes of “patient education” about the lungs. This is usually a video, discussion and handouts. They can have up to 3 people simultaneously. At first there is another woman, but she finishes her 12 weeks. She is still on oxygen. I am doing the treadmill without oxygen. “What is your goal?” asks the respiratory therapist. “I want to ski this winter.” I say. She blinks.

The patient education alternates with lifting hand weights. The physical therapist does that with me. There is a stretching session each time too. The weights are slow twitch muscles so that is easier for me to push.

On the third day on the treadmill, I start pushing myself. My heart rate before starting was 81. I get to 120. “Um, don’t push it further than that.” says the therapist.

“Why not?” I say.

“Well, the guidelines are that we’re supposed to not have the person exercising at a heart rate of more than 30 over their baseline.”

“Oh,” I say. I am at 40 over. I slow down a little, aiming for a heart rate of 115. My blood pressure is between 90 and 115 systolic to start with, even anxious, and goes up to the 140s or 150s in the middle of exercising. If I talk too much while I am on the treadmill, my oxygen level starts to drop. It drops the third time down below 88 and the therapist says, “Shall I get oxygen?” “No,” I say. “I just need to shut up.” I do and my oxygen level recovers.

I steadily improve on the treadmill. I can enter my weight and it will measure “METS”. I start out at only a few mets. My goal is as high as I can go. By week 8 I am pleased to be alternating walking and running and I am averaging over 8 mets. Bicycling takes 7-9 mets, and more if you race. I want to return to bicycling.

Then I get my flu vaccine. I feel terrible the next day and cancel my rehab. I see my doctor for a routine visit the next Tuesday and she gives me the covid booster. That hammers me. I go back to being tachycardic much more easily and my fast twitch muscles are not working again. I contact my cardiologist and primary, do I put pulmonary rehabilitation on hold?

I decide to go and I do not drop my oxygen. However, I get tachycardic much more quickly, I can’t get up to over 8 mets, and it feels truly terrible. And my muscles give me hell and hurt horribly for the next two days. I put pulmonary rehab on hold and wait and do slow twitch exercises. The working theory is that there are antibodies to my fast twitch muscles, so the vaccines have activated my immune system. Not just antibodies to influenza and covid, but also the ones that make my muscles not work and hurt. A fibromyalgia/chronic fatigue flare. I start sleeping 12 hours a day again, as I did when I got sick over a year ago. I am really anxious at first but there are no signs of pneumonia, I am not hypoxic, and it’s mostly muscles and fatigue.

After three weeks I return and do my last four pulmonary rehab visits. It hurts way more than the first 8 weeks and it is way more exhausting. I don’t like sleeping 12 hours a night. It could be worse, though. Some people have chronic fatigue where they have to lie in bed most of the time. I don’t have that, so I consider myself lucky. Mine is fast twitch muscles only. Presumably theirs is fast and slow twitch muscles. I have an annoying but relatively mild version of chronic fatigue.

I graduate from pulmonary rehabilitation. Many thanks for the help with my muscles! I want a wrist pulse oximeter, but they cost $700 and I dont’ really need it. By now I can tell when I have a fast heart rate and I can tell when I am getting hypoxic. It makes me goofy and silly, though I normally have that anyhow.

Many thanks to Jefferson Healthcare’s Pulmonary Rehabilitation Department. And if you have had pneumonia more than once or long Covid, consider asking your doctor to refer you. It makes me much more confident about exercising and pushing myself and what is safe. And eventually these stupid antibodies will fall off the receptors again. I hope.

________________

For the Ragtag Daily Prompt: fractious.

PS: The Rehabilitation Department was closed then open then closed then open during the last two years. They did not have many people when I was there. Get in soon, because there are limited spaces!

by

Nanowrimo

I have finished my first try at Nanowrimo.

I do NOT have a coherent novel at the end. I have pieces and sections and chapters and questions. I have to look up a bunch of microbiology and also how the goblets cells in the stomach work, because I don’t remember and anyhow, I am sure it has changed since I was in medical school.

BUT I DO have 50,000 words.

I got stuck twice at the beginning and had two days where I didn’t write anything except this blog. And then another two. I kept dreaming about an ogre who wanted to be in the novel. Well, ok. I finally decided that the goal was to write the 50, 000 words, not stick to an outline. I added the ogre and have not missed a day since. To finish 50,000 words in 30 days, it breaks down to 1667 per day. If you miss four days it is more. I had two days where I wrote over 5100 words. That helped a lot.

Now I think I will rest for a day or two and then start looking it over. Write a list of questions, work on some needed research, think about it. That ogre is interesting. Unexpected.

I think it was fun! At least, some of it was. I got stuck writing about something based on when I was ill, so that was difficult. It brought up the fear and the deep loneliness of that time. I learned to skip to something else when I get overwhelmed.

Anyhow, HOORAY!