Category Archives: Beloved

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my love is so sweet

my love is so sweet
my heart sees him and skips a beat
my heart feels like it trips
how many beats do you think I’ll miss?

(all count the skips out loud)

you’ve got it really bad
it’s pathetic, you’re so sad
all day long I hear your sighs
guess how many times I roll my eyes

(all count the skips out loud)

 

The photo is mine from the 2015 Wooden Boat Festival

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what I miss

what I miss after 8 years of divorce and 14 years of marriage is sleeping with a warm body not you but anyone after you fill the U-Haul and are surprised because you think that I am the packrat and all the stuff is mine but you have a piano and bicyles and a motorcycle and clothes and music and books and really you are one too, it’s just that I am worse and you drive away and I can’t sleep though really it did start before then we did over a year of couselling and I slept alone some and then kick you out and sleep alone more our daughter moves into the room across the hall up from the basement when you leave and in the middle of the night she comes up with me because you are gone to Colorado and now 6 years later she asks about it and I say you came in with me and she says she didn’t know that and would wonder why I would steal her in the middle of the night and I say I didn’t but as she is older and moves back two flights down to have that distance that one needs from a parent when one is in puberty and growing up and away and I wake at four am and now that same sex marriages are legal I wonder about buying an asian bride and then I would have a body a warm body to sleep with but it wouldn’t work and yes I miss sex too but not in the same way it’s the warm breath and heartbeat and movements and I am the monkey longing for a mother to cling to and I too make do with a pillow I could make a scarecrow for my bed a body not an inflatable too cold but something warm and I could put a watch in its chest an old one that ticked it doesn’t actually help to be in love because I am not sleeping with my love and that makes it all the worse I long for a warm body really no I long for my warm love this particular body and breath and heartbeat and I wake often longing for my warm love

the picture is my sister, who died in 2012 of breast cancer. I made her stuffed animals and puppets for years starting when we were little. I made the red eared puppet and bought her the puppet with legs that year….

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Adverse Childhood Experiences 6: Reactivity

I hear people say, “Why is this person so reactive?” “They are suspicious.” “They just aren’t nice. Why can’t they be nice?”

When I get a new patient in clinic who is not friendly and looks suspicious at my questions and is not warm, I do not react. I assume that this person has been hurt and has a past that has a lot of dark in it.

Recently I was talking to a person about chronic pain. We were nearly out of time and I was describing Adverse Childhood Experience scores.

“I have the highest possible score,” he said.

I said, “I believe you.” and waited. He had my attention.

He did not want to tell me about it and he knew we were out of time. “I ran away to live on the streets when I was six.” he said flatly.

I said, “Yes, if things were that bad, I think you would have the highest possible score.”

That was the end of that visit. I gave him the link to the CDC website about ACE scores and studies and set up a follow up.

But think about that. He ran away at age six and lived on the streets. Not with a sibling or a parent or an adult. He was by himself.

He told me a little more on the second visit. I knew he could read. I pictured street classes under bridges. “How did you learn to read?” I asked.

“The authorities kept picking me up. I would run away from foster care as soon as they placed me. Usually the same day. When I was fifteen, a judge said “If you get your GED, I will emancipate you.” It took me a year and three months, but I got my GED.”

So is this your image of a street person? All losers? All crazy? This is a man who left because the street was safer than home and got a GED living on the streets.

He said, “My life has all been like that.”

I said, “Chronic pain is not exactly surprising then, is it?”

There is a song by The Devil Makes Three with this line: “I grew up fast and I grew up mean, there’s a thousand things inside my head I wish I ain’t seen. Now I just wander through a real bad dream, feeling like I’m coming apart at the seams.” That song speaks to me and speaks about the people who view the world with suspicion and fear and whose porcupine defensive spines are quickly raised if they feel threatened. I do well with them because I am the same way and I mostly don’t react to them. I don’t tell them to calm down. I don’t get scared or angry. I stay present and wait. And sometimes they will tell me what happened to them.

How can any of us blame an adult for their fearful terrible childhood? Instead we need to give them space and not reject them out of hand. All that does is reinforce the damage. I think that people can heal, but we must make room for them and behave ourselves and not react.

The photo is my daughter at the Wooden Boat Festival in 2009.

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Thank you for this

Oh Beloved

Oh thank you from my deepest being from all of me from every cell for this touch this kiss this day this cat this daughter this son this family this work this rose this farm box these vegetables tomatoes in my yard and deer outside the fence in town crossing at the crosswalk

the motor working the sailboat flying across the water my aunt laughing my uncle hanging the hammock up in the house the farmer’s market the panda trailer friends new bunnies who barely have fur and sniff at my alien scent in my hand teen bunnies who delight in celery patients and patience and enough

books a box from Wisconsin with a vintage suit fake fur collar and cuffs that unbutton and a woman in a wheelchair laughing when I show her the collar and cuffs and getting through another week and catching up on some of the paperwork a massage to look forward to music and song and a photograph of my father at 6 and my aunt at 3 and my great grandfather and great grandmother in about 1900, he was born in 1881 showing the photos to my daughter and my niece

physical delight that morning comes the wind in the sails of the boat hugs hands touching me and me touching the taste of the tomatoes blueberries a cream puff with whipped cream and strawberries soft cashmere yarn on sail in downtown and my daughter wants just the right hat knit of this yarn just so and it must not come down to her eyebrows we all laugh

loons mink crows raccoons deer a flock of cedar waxwings by the church who stop curious when I try to do their call cat fish frog nuthatches snapping turtle small bunnies

I am afraid to feel happy happy doesn’t stay I hold it away how can I be happy what disaster will strike next but little by little Oh Beloved I let the feeling rise and feel happy

Oh Beloved thank you for this and all

My photograph of common mergansers on Lake Matinenda, Ontario, Canada, 8/2015

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Talking about death 2

“But,” you say, having read Talking about death, why should I do a POLST form if I am young and healthy?”

Because of accidents and comas.

How do you feel about comas? Would you want to be fed and kept alive by a machine if there were an accident? Let’s make it an accident where you are the heroine or hero: a bank robber is escaping with money and a child hostage and your best bud trips her (the robber is female) and you grab the little boy and run with him to safety. The ceremony where the mayor pins medals on both of you is really fun but even though the robber was caught, the getaway driver wasn’t. You are leaving the ceremony and a car driven by the getaway wench hits you and you are in a coma…..

The fourth and last question on the Washington State POLST form is the key one for this: do you want long term feeding or not? Would you want short term if you were going to get better? Does long term fill you with horror? Ok, the odds of ending up in a coma are really really really small, but not zero. Most of my patients choose the middle road but some say “No tube feeding or iv feeding EVER!” They may have had family or a friend that were kept alive for longer than they think was right. I do have the rare person who wants feeding and everything forever….and that is ok too. It helps to know that.

Back to question one: for a healthy fifty or sixty or seventy old, I advise them to ask to be resuscitated. That is the default anyhow, to do everything. You don’t have to do a POLST if you want everything done. But if you DON’T, then it is worth filling out and it’s helpful to talk to your family as well as your doctor. And I am often surprised by what people want. It helps me to know a bit more about them as their doctor.

One woman in her upper 80s said, “I don’t want to think about this.”

I replied, “If you don’t want to you don’t have to. But, if you don’t say what you want, your daughter and I will have to guess when something happens.”

She then said what she wanted. In her age group I talk about stroke: some strokes are lethal. Some are not and the person looks horrible. However, they improve after the first 48 hours, as brain swelling goes down. The key that makes a stroke survivable is whether the person can swallow or not. If they can’t protect their airway, they aspirate and get pneumonia.

Think if all our elders knew that, that after the stroke they will improve in 48 hours. Wouldn’t it be less terrifying? And we aren’t going to “unplug” them in the first day, because the amount that they improve is not totally predictable. Nothing in medicine is, really….

I am careful to say to a healthy sixty year old that this form is to be filled out as if something were to happen NOW, this week. Not to think of the form as for being when they are much older and very sick. The form has update slots on the back: we are supposed to revisit it at intervals when a person’s health changes. And people change what they want.

I had a lady in her upper 80s who was on coumadin for atrial fibrillation, to prevent stroke. The family was going through a rough patch with the death of a small child. She said, “I don’t want to take this.” She denied depression but she didn’t want to do the regular blood tests. We switched her to aspirin. Coumadin lowers the stroke risk by 1/2 and aspirin by 1/4.

A year later she said, “I think I want that coumadin again. Things are better.”

Sometimes things are better.

http://www.polst.org/programs-in-your-state/
http://www.wsma.org/wcm/Patients/POLST.aspx
http://americanhospice.org/caregiving/coma-and-persistent-vegetative-state-an-exploration-of-terms/

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On the nature of love

love is not one love is longing for one love is two
love is the other longing for the other longing for union longing for one longing for the Beloved seen in the face of the other
do not forget nor lose nor submerse yourself in the other remember there are two not one you are longing to be one that is the longing for the Beloved you must be two and remember both while longing for union while longing to be one
you can love and yet not accept abuse yet not accept ill treatment yet not accept being walked on in the name of love
you can love even one who is behaving badly and treats you ill yet you should not accept ill treatment you are to remember that there are two and you are longing for the Beloved seen in the face of the other longing for union but that does not require that the other long for the Beloved nor see the Beloved in your face
you can love even one who does not want union with you yet they long for union with the Beloved
you can love even one who is behaving badly and treats you ill you should not accept ill treatment and there may be a time when you still love and walk away still loving and longing

for there are two
not one

I took this picture of my sister and our neighbor and friend in the late 1970s, probably playing pong…

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let go

For Ronovan’s weekly haiku challenge, the words are hope and luck.

I saw my doctor yesterday, still on half time and it looks like it will stay that way until January or longer. Slow healing. I am finding it hard though I am healing and often people don’t or aren’t or won’t…..

I let go of hope
for love my luck is to be
alone writing love

the picture is from my garden

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Any day now

any day now

I will be going going to the lake to the rocks to the place I went to when I was five months and in the womb too

any day now

no electricity and the cell phones don’t work we filter the lake water now as the coliform count rises but still the water I taste it and memories rise like fish like turtles like lake trout from the depths my sister wants her ashes there but no worries there are bits of all our skin my uncles ashes were scattered there last time I went I burned a little of my hair my father’s hair my daughter’s hair my son’s hair so that our ashes would be there too

any day now

forwarded email as I’ve left the cousin email in protest of the emails about my father’s will circulating behind my back the propane delivery has closed down and we must go out of Blind River for propane the 100 pound tanks have to be carried upright which makes the rental car more of a challenge we used to get 60 pound tanks but they are harder to replace we are all always getting older

any day now

my cell used to work on one cabin porch when it was overcast but that was tmobile and I have another now so probably it won’t work and we are all still broken in the aftermath of my sister I will look in the cabin and donate all the shoes that none of us will every wear hers her daughter’s her husband’s that cabin is a castle a monument of dreams and I have not been there for three years and I hear the roof is going we don’t have enough money or cooperation I thought the Trust we fail at that by the way was 30 years but it is 40 and we are now half way and I am thinking about how to handle it

any day now

because I love this land this lake and I will not give it up oh Beloved help us heal

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Not yet adequately adored

I am wandering in the forests of emotion I am comfortable now mostly I don’t talk about it much though occasionally I am irritable I am thinking about love I have had my children going commando could also be going postmenopausal because there is no longer bleeding or if there is I would have to get checked for uterine cancer but it is hot and why wear underwear of course apparently things can still get wet which is a bit of a surprise since so many women complain of less libido once the hormones drop I as usual do everything ass backwards and want sex more than ever but not when I am working hard and tired and cursing the new server laptop printer program and the keyboard is spaced differently and more sensitive all this fucking equipment when what we really want is to be loved as we are I have only seriously dated two people in the last seven years and one said that what I want is to be adored he said he couldn’t and I thought why not and Rumi says the depth of the longing is our depth of longing for the Beloved and really it’s not a forest for me it’s the ocean it’s the deepest part of the ocean those rifts and I dive all the way and don’t care if I run out of air Beloved I am not yet adequately adored

I will go for coffee instead.

the photo is from 2006, one swimmer carrying the younger swimmer