I go out to take a nap in the yard one afternoon. I realize that I am not alone. A mother deer and two fawns are already napping under the magnolia. I reassure them that I am not a threat and lie down. I go right to sleep. They are still lying down when I fall asleep and are gone when I wake up.
I realized I had pneumonia for the fourth time on March 20, 2021. It has been a year and five months now. I do not have an “overarching diagnosis” for why I am so vulnerable to pneumonia, though not for lack of trying. I have seen twenty specialists since 2012, including four pulmonologists.
Most specialists dismiss me as soon as their tests don’t fit me into one of their boxes.
I have one now who is not dismissing me. He referred me to the Mayo Clinic. They did not call back when I did a self referral three months ago nor when my primary care physician referred me. However, they called within a week of his referral.
Mayo Clinic called yesterday. I may need a prior authorization or something, I have a number to call today.
I am healing. I still am on oxygen for singing, flute, night and heavy exercise, but pulmonary rehabilitation is working. I have built up steadily on the treadmill for 6 weeks. I have 5-6 more. Many of the pulmonary rehabilitation people are on oxygen and will not get off oxygen, so I am an outlier here too.
I feel better than I have in seven years, since the 2014 pneumonia. I had strep A pneumonia in 2012 and 2014 and really did not fully heal after 2014. I was tired all the time. I think I went back to work too soon and just did what I could. Not returning to work is helping immensely. I can’t return anyhow, unless the Mayo Clinic or someone figures out my “overarching diagnosis” and how to make me less vulnerable to pneumonia. Seems unlikely after 19 years. My first round was influenza in 2003. Maybe choosing a different career than primary care would have made a difference, though maybe I would not have survived a pneumonia without being a primary care doctor. We aren’t supposed to treat ourselves, but if no one believes us, well, there is not much choice, is there?
The photograph is from a beach hike in November 2021.
The tent in the center is mine. I took this two days ago as soon as I had it set up. The big deal is that pulmonary rehabilitation is WORKING.
My friend B from the east coast invited me to hike with him and two other friends. They were going up the Hoh River trail. The initial hike was five miles and then camp. They will go up to Glacier Meadows.
I looked the hike over. The first five miles starts at around 500 feet and stays near the river and fairly level. I bought a pass for the campsite and loaded my pack. I took the pack to pulmonary rehab on Monday and carried it on the treadmill. I went for 25 minutes at 3mph, loaded. My heart rate went to 110 (normal at rest is 60 to 100, though mostly cardiologists don’t care if it’s below 60 unless bad symptoms or heart block) and above, but I held my oxygen sats. I decided I could GO! We met in Port Angeles and then drove up. We didn’t start hiking until 3:30pm but got to the campsite, ate and set up tents.
The next day I hiked back alone. A couple coming in stopped me and said, “There is a bear. It went up a tree when we saw it.” The next trio said that the bear was on the ground and seemed undisturbed. I had my whistle out and kept hiking, a little cautious. I did not see a bear.
As I reached the parking lot, I reread the signs. “Cougar area, hiking alone not recommended.” Oh. Well, but I really was rarely alone. I counted the people hiking up and there were 147 in that 5 mile stretch. Some out for day hikes, some with packs headed to Glacier Meadows or beyond, some with almost no equipment.
Anyhow, I am so delighted that my lungs have recovered enough to hike! I don’t think they are ready for altitude and the climb to Glacier Meadows. Maybe by next summer. Hooray for lung pizazz!
Do mermaids go on vacation? I think they would come up rivers and explore. Lie around on the banks and talk about the ocean and whales and fish and annoying tourist boats.
Discover and re-discover Mexicoβs cuisine, culture and history through the recipes, backyard stories and other interesting findings of an expatriate in Canada
Engaging in some lyrical athletics whilst painting pictures with words and pounding the pavement. I run; blog; write poetry; chase after my kids & drink coffee.
Refugees welcome - FlΓΌchtlinge willkommen I am teaching German to refugees. Ich unterrichte geflΓΌchtete Menschen in der deutschen Sprache. I am writing this blog in English and German because my friends speak English and German. Ich schreibe auf Deutsch und Englisch, weil meine Freunde Deutsch und Englisch sprechen.
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