Elkill I am filled with joy! It is still dark out, early I remember lighting a candle for you and putting it on the porch when we were friends and you would come over early
I loved those times
you were a wonderful friend
but now I know what I want
wanted from you
and from others
in the past
I want to be seen and loved
I want to be seen and loved
deeply
all of me
the dark parts too
all on me
and that is why
I could love you
and my patients
and even people who hurt me
because
most people are afraid to be seen seen and loved deeply the flaws, the sad parts, the broken bits all of it
Elkill I am filled with joy I know what I want I want to be seen and loved deeply
I do not think it will happen
on this earth with a human
though I am open, open
But the Beloved sees me
the Beloved sees me
deeply
and loves all of me
the flaws, the sad parts, the broken bits
all of me
Thank you for helping me see you for helping me see what I want
My friend M is twenty years older than me. A friend of my parents since college. When I went to college in Madison, WI, I got to know her and her husband and their two sons. I lived with them my third year of college and it was a ball! I loved the family.
I visited over the years and more often when her husband had lung cancer and died. She wanted me to come out for her younger son’s fiftieth birthday. Her daughter-in-law said, “It’s nice to meet the daughter.” Apparently M considered me a daughter. I was delighted, since both of my parents had died by then.
A year ago M was feeling less well. She started losing weight. A work up was done, finding no cause. She had a rare cancer that had been treated two years prior. But by July, she had lost thirty pounds.
Thirty pounds! As a primary care doctor, RED FLAG! Very high likelihood of dying, if that went on. She was eighty years old.
I flew out in September. We took a road trip, just the two of us, from Michigan back to Wisconsin. We visited multiple old friends of hers. She thanked me afterwards, because one friend had Parkinson’s and died ten days after our visit. We saw her sisters-in-law and we did a circuit around Madison.
Afterwards, she said that was her last time driving on highways.
By December, she had dropped another ten pounds. Then she had difficulty walking. The daughter-in-law called me. She was having trouble getting any medical attention. They had had trouble for a year! Over a week, M went from walking to not being able to support her weight or stand up. I flew up right after New Years.
Something was wrong, clearly. She’d carried her own bags in September. I was the out of state doctor. The daughter-in-law, B, was moving her from bed to chair alone. I couldn’t. I am 5’4″ and M was 5’10” and now my weight. B found a private practitioner.
On my third day there, M had chest pain. We took her to the Emergency Room. The Emergency Room did the usual things. Then the ER doctor came in. “She is not having a heart attack and she doesn’t have pulmonary emboli. So you can take her home.”
“No, something is wrong! She can’t walk! She could walk two weeks ago! We did a road trip in September!”
The ER doctor shrugged. “What do you expect me to do?”
“Figure out what is going on!”
“She is eighty.” he said. As if eighty meant we stop caring.
“No, we won’t take her home. It isn’t safe. We can’t move her. M, do you want to stay?”
“Yes,” said M.
The ER doctor looked annoyed. “All right. I’ll admit her for placement in a nursing home.”
The inpatient doctor was scarcely more interested.
“What do you expect me to do?” he said, knowing he was dealing with an annoying out of town doctor.
“Steroids.” I said, “Maybe it’s a weird form of polymyalgia rheumatica. She deserves a trial of steroids.”
He too shrugged, and started steroids.
The next day she was stronger, and the third day she could stand. It was SOMETHING, but not clearly polymyalgia rheumatica. The hospital was small and did not have a cancer doctor and did not have a neurologist. They were sending her out on steroids. Follow up outpatient.
We looked at a nursing home, but went to a private assisted living instead. The staff were minimally helpful. We took turns sleeping there. Physical therapy and occupational therapy were started. M was a bit better but not the miraculous return to normal that steroids cause in polymyalgia.
I flew home. The private physician saw her. M was set up to see the U of Michigan. B kept asking if it was lymphoma, because that can be a side effect of the treatment for M’s cancer. M’s cancer doctor said no. M got covid and the appointments were delayed two weeks.
In February she went to the U of Michigan. The neurologists came through and said, nope, not polymyalgia rheumatica, and not neurological. The cancer doctor came through. The GI doctors did an upper endoscopy and biopsied. Cancer. Lymphoma.
M said no to treatment. She was discharged to hospice. She died within 24 hours of reaching the hospice.
The cancer doctor sent an apology to B, who was right all along. This was a particular lymphoma that responds to steroids for a while. M had said that if it was another cancer, she would refuse treatment.
“These people who live a vigorous life to 70, 80, 90 years of ageβwhen I look at what those people βdo,β almost all of it is what I classify as play. Itβs not meaningful work. Theyβre riding motorcycles; theyβre hiking. Which can all have valueβdonβt get me wrong. But if itβs the main thing in your life? Ummm, thatβs not probably a meaningful life.”
Ok, so now some doctors don’t care once you reach 75. That’s it. They define everything as “useful and productive” and if you are not doing meaningful work, well, you’d might as well die. I hope that doctor does die. Slowly. And that everyone around him refuses to do any tests to see what is happening. And who the hell defines what is meaningful work? That can be helping raise grandchildren, like, hello!
I have another friend who is going through the same thing. She is failing and the medical community in my town is shrugging their shoulders. She should have a head MRI, says the cancer doctor. So that was a month ago and it still isn’t scheduled.
Some of this is pandemic fatigue and backlash. People refusing to get vaccinated, people refusing to believe that Covid-19 exists, doctors and nurses dying of Covid-19, people refusing masks. If everyone is exhausted, what do you let go?
Apparently people over 75. But NOT everyone over 75. If you are wealthy, you will get care. Our Senators and House of Representatives certainly get care after 75. It is the isolated, the rural, the poor, the ones who don’t have an advocate, who will be sent home to die.
I took my friend here to her primary. “What do you want me to do?” he says.
“Here is the Home Health paperwork and she needs disability tags.” My friend is falling, five times that week.
“Ok,” says the primary. “I will set those up.”
When Home Health arrived, she had fallen. She had been down for 15 minutes and unable to get up. Home Health called the fire department. The fire department helped and also came back to put no slip pads on the steps. If she can buy the wood, they will build a ramp for her.
And I will go with her to the cancer doctor and I will rattle cages. She lives alone, she has no children, she has a brother in Alaska. But she also has an advocate. One who knows the medical system and who is not in an ethical stupor.
And no thanks do I get
for thirty years in medicine
for thirty years of rural work
for working alone without a net
not a whisper from officials
The thanks I get are on the street
in the shops, at live music
at Gallery Walk, at thrift stores
walking through town, from friends
from patients or spouses or mothers or fathers
who thank me and update me
Thank you, Beloved, for my odd career
for leading me rural, leading me to primary care
endless learning daily and people
they are all interesting, all different
all have depths that none would guess
all of your beautiful people, Beloved
This is one of those poems where I started grumpy and did not know where it was going until it went there. The light at the end of the tunnel photograph is on the Metro in Washington, DC last week.
In clinic, a very common complaint was, “My body has changed!” This was often with shock or annoyance or betrayal. Weight up, a knee hurting, headaches, menses behaving badly as menopause approached, gentlemen with their own problems.
My muscles are getting stronger but are really grumpy. I am starting to rebuild muscle and endurance but my muscles and joint complain. I think that pain is the pain of wisdom. I am clearly very very wise, if that pain is wisdom pain. It feels better to frame it as wisdom than as “Oh, I am old.” Also it’s fun to watch people when I say, “My wisdom is really acting up today.” They get a funny look on their faces.
Medicine changes all the time too. Isn’t that a little unsettling? Science changes, ideas change, frames change. A treatment that I used 15 years ago would not be done for the same problem now. And we can treat hepatitis B and C! Hepatitis C was still named “Non A, non B hepatitis” back when I was in residency in the early 1990s. Hoorah for some things getting better.
It’s been interesting watching the changing ideas about Long Covid. Over the last year they’ve said, “Better in nine months.” “Mostly better by a year.” “Better by two years, mostly.” Also the estimates of people affected in the US have ranged from 3% to 7.4%. There is not even agreement about the definition, with the CDC talking about symptoms staying present after four weeks. Meanwhile the World Health Organization says, “It is defined as the continuation or development of new symptoms 3 months after the initial SARS-CoV-2 infection, with these symptoms lasting for at least 2 months with no other explanation.” Here: https://www.who.int/europe/news-room/fact-sheets/item/post-covid-19-condition. CDC here: https://www.cdc.gov/coronavirus/2019-ncov/long-term-effects/index.html.
I hope that we vote grown ups into office. I hope we aren’t tempted by the childish want to be dictators who say, “I can fix anything, I can do what I want, I am so great. I can make YOU great too.” I think the pandemic was very frightening and the temptation is to try to hide in an imaginary past or freeze the future or think that if we make everyone behave a certain way, no further pandemics will come. I do not think that will work, people. Vote for adults.
The photograph is from the US Botanic Gardens. Here is the model, inside:
The sculpture faces are over each arch. Here is a close up.
I think the carved face will last the longest, then probably me, then the one on the model. The model looks like it would be delicious for various smaller creatures.
“Make new friends but keep the old, one is silver but the other gold.” My parents taught me that round. We sang lots of rounds growing up.
What does the picture have to do with knitting? I knit the hat! I got to hike with old friends from the 1980s last week. They are old friends, not old! Well, we might be getting a little grey.
It’s nice to handle emotions with fantasy. “No it’s not,” you shout, “that’s horrid! We should think nice thoughts and feel nice feels!”
I do not agree. I think that we feel what we feel. Emotions are a rainbow and a sunny day and a huge storm and a tornado. Let them all through. However, we do not have to share them or inflict them on others or act them out in person. We can satisfy that anger, that grief, that hurt, that wound, with fantasy. And let the hurt heal through fantasy by acknowledging it.
There is tons of stuff on the internets/books/magazines about how we have to think nice thoughts, we are what we think, and on and on and on. But now wait a minute. Our Creator thinks up some really really horrible things which play out, right? The world has the full range of emotions from really really dark to beautiful and kind. I am like the world, like the ocean, like the Creator. I have the full range too. It is not the feeling that is evil. It is the acting it out in the world. If it’s acted out in fantasy, does that truly harm others?
Perhaps if it’s PTSD, there is harm. But PTSD is not acting out a fantasy, it’s being unable to deal with something terrible, terrible events, horror, war and violence. Those feelings must be dealt with too and it is no shame to need help, to need a listener, to need a safe place. The same with depression and anxiety: sometimes feelings are overwhelming and we are afraid, afraid, afraid. There is help.
I think that JalΔl ad-DΔ«n Muhammad RΕ«mΔ«’s Guesthouse poem gives a path.
The Guesthouse
This being human is a guest house. Every morning a new arrival.
A joy, a depression, a meanness, some momentary awareness comes as an unexpected visitor.
Welcome and entertain them all! Even if theyβre a crowd of sorrows, who violently sweep your house empty of its furniture, still, treat each guest honorably. He may be clearing you out for some new delight.
The dark thought, the shame, the malice, meet them at the door laughing, and invite them in.
Be grateful for whoever comes, because each has been sent as a guide from beyond.
translation by Coleman Barks
_____________________________
I read this poem as being about our feelings. A meanness, a dark thought, malice. I think that there is a translation that says that we want each guest to take a good report back to the Beloved, so we must treat each with kindness and hospitality. When a friend dreams of a bear attacking his brother, I ask, “Did you invite the bear in?” “No,” he says, “It’s a bear! They are dangerous!” “But it’s a dream bear,” I say, “I would invite the bear in and listen to it.” “You don’t understand bears,” he says. “It is a dream bear, not a real bear. I always invite the dream monsters to talk to me.” Don’t you? There is a story about a dreamer who dreams about being chased by a monster, a horrible monster, over and over. He runs and runs. Finally he is sick of it and stops. “What do you want!” he shouts at the monster. “Oh, I am so glad you stopped. I was so scared and hoped that you would help me,” says the monster. And the man wakes up.
The giant fruit bat is part of the outdoor pollinator exhibit this holiday season at the US Botanical Gardens.
Discover and re-discover Mexicoβs cuisine, culture and history through the recipes, backyard stories and other interesting findings of an expatriate in Canada
Engaging in some lyrical athletics whilst painting pictures with words and pounding the pavement. I run; blog; write poetry; chase after my kids & drink coffee.
Refugees welcome - FlΓΌchtlinge willkommen I am teaching German to refugees. Ich unterrichte geflΓΌchtete Menschen in der deutschen Sprache. I am writing this blog in English and German because my friends speak English and German. Ich schreibe auf Deutsch und Englisch, weil meine Freunde Deutsch und Englisch sprechen.
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