Category Archives: cancer

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Emergency preparedness

In Venezuela now
some people get water once a week
and sicken from it

First, withdrawal
When we have our eathquake
Tsumani and roads and bridges are gone

If one in three adults in Utah
Got an opioid prescription in 2014
What are the numbers here?
Opioids
Alcohol
Benzos
Caffeine
After the first wave of death
and grief, withdrawal begins
Not just addictive drugs
from insulin
from blood pressure meds
anticoagulants
seizure medicine
chemo ground to a halt
I read that alcohol is best to trade in disaster
and chaos and loss
Guarded by guns in small gangs
We are told to store water
Where?
If the house falls down
and I can get out, where would I put water?
A bunker in the ground?
I stock straws for water
I wish I could buy 9000
for my town
I stock books for when the computers
go silent
I stock songs in my head
memorized all
I fight for all my patients
Who would I not fight for?
Maybe it would be better to die
or be captured early
I stock love not guns.

http://www.nytimes.com/slideshow/2016/05/26/world/americas/desperate-times-in-venezuela/s/27VENEZUELA-SS-slide-3ZIT.html?_r=0

http://www.theguardian.com/us-news/2016/may/26/utah-mormons-prescription-painkiller-addiction

http://www.newyorker.com/magazine/2015/07/20/the-really-big-one

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Advice to young people

My biggest piece of advice to young singles and young couples is: put half of each take home salary away. Married or not married, and I don’t care how committed you are.

I know people who lose their house when one half of a couple is sick, and the other can’t pay all the bills on one salary. We don’t want to think about illness or cancer, but it happens. Young parents, with one very ill and the other with a job, children and a sick spouse. Having a reserve is way more important than keeping up with the Joneses, unless you happen to inherit like Mr. Trump.

If you each put half of your take home salary away, then when life throws surprises at you, you will have a reserve. A big reserve if the surprises hold off for a while. Divide that half into retirement and half into money that you have access to in emergencies.

I listed the top ten causes of death in the US in 2012 here, but lets look by age: http://www.cdc.gov/injury/wisqars/pdf/leading_causes_of_death_by_age_group_2012-a.pdf.

From age 1 to 44 the top cause of death is accidents, unintentional injuries.

Suicide is second from age 15 to 44.

Cancer takes over as number one, malignant neoplasms, at age 45 to 65.

After 65, the number one cause of death is the heart, and that is where the biggest numbers are. But if a younger cause of death affects your family, it feels unfair, wrong, as if we all expect to like to age 78 or beyond.

Untintentional injury, that is, accidents, are broken down here:Β http://www.cdc.gov/injury. When I do physicals on teens, I ask them what the number one cause of death is for teens. They all know the answer, even if they have to think for a moment: motor vehicle accidents.

But lets look at accidents in the age 25-65 age group: poisonings. What? Poisoning? And NOT intentional…. what is going on there? It is drugs, legal and illegal, but more legal. Sedating drugs in combination are effective at sedating people enough to stop breathing and die. Alcohol with benzodiazepines (valium, ativan, etc.), opiates and opioids, sleep medicines such as ambien and sonata, withdrawal from methamphetamines, cocaine, crack….people die. And supplements may be contributing as well.

75 years of US mortality data: http://www.cdc.gov/nchs/data/databriefs/db88.pdf#x2013;2010%20

At birth now in the US the life expectancy averages 78, but not everyone reaches that….some people still die younger and some live longer.

The age of death is rising, world wide. In the US, many of us have a world envied standard of living and yet we have a significant number of people who are anxious and depressed and way too high a rate of substance abuse, alcohol, opiates and opioids, benzodiazepines and yes, marijuana is addictive. How do I reconcile this? How do you reconcile this?

Keep your reserve, young singles and young couples…..

http://www.worldlifeexpectancy.com/usa-cause-of-death-by-age-and-gender
As of the day I am writing this on 5/2/16:

POPULATION
318,857,056

Numbers to be corrected, first set was wrong, wrong, wrong.

I took the photograph yesterday evening: there were the most amazing Maxfield Parish clouds…. life and death are a mystery.

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sing for the girls

Sing for the girls who grow up in war zones.
Sing for the girls who grow up scared.
Sing for the girls who grow up abused.
Sing for the girls unprepared.

Sing for the girls who grow up with alcohol.
Sing for the girls who grow in broken homes.
Sing for the girls who don’t tell anyone.
Sing for the girls alone.

Sing for the girls who grow up beaten.
Sing for the girls who grow up raped.
Sing for the girls who care for siblings.
Sing for the girls who learn to hate.

Sing for the women who now look frozen.
Sing for the women who now look old.
Sing for the women who survived it anyway.
Sing for the women who told.

Sing for the girls who grow up broken.
Sing for the girls who break everything.
Sing for the girls who break the silence.
We are broken and breaking: sing.

I took the photograph at the US Synchronized Swimming Nationals in 2012.

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M is for mourn

M is for mourn. We mourn for losses. Mourning is part of being human and we have to give grief room and space. How can we love and feel intimacy without also feeling grief and mourning?

M

I wrote a poem the day my sister died. I had flown home four days before, after seeing her in hospice, 7 years of cancer. I flew home the day before her birthday. My birthday is three days after hers. She died the day after my birthday. It has now been four years.

An apology, a love note and a remembrance

I step outside into a fine mist rain.

I am enfolded in cloud.

The dog still wants to be walked.
The cats want their treats.
The bunny rattles her cage.
The fish will want feeding at the usual time.

My heart lies stunned in my chest.
The dog does not pull.
I walk measured.
He waits.

The rain comes harder.

I hope that where you are, is joy.

The crows harsh caws comfort me.
I answer.
They watch from the tree tops as we circle.

I am enshrouded in cloud.

We are back to the house.

I try to remember.
I have the birds.
I have the trees.

We go in.

first published on everything2.com with other poems for her here: http://everything2.com/title/An+apology%252C+a+love+note+and+a+remembrance

I don’t know who took the photograph. Probably my grandparents.

 

 

 

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Costume 8

This is the last in this costume series and now it’s revealed. My sister was not wearing a costume but she contributed to the festivities by showing off her ballet skills. Her daughter was more interested in dinner than ballet at that particular moment, even though they performed together. My sister loved to dance and loved the costumes there too.

Taken in 2009, Lake Matinenda, Ontario, Canada. My sister died of breast cancer in 2012.

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Songs to raise girls: My name is Samuel Hall

The last time I visit my sister in hospice, my cousin is sitting by the bed when I arrive.

My sister looks terrible and like she is suffering. She is in renal failure and her eyes are slitted against the light. She is in a hospital bed and barely eating. It takes me three days to figure out how to make her comfortable.

But when I first arrive, I say hello and hug her. She laughs and it is dark.

She doesn’t want to talk. “Shall I sing to you?” I ask.

She nods.

I start singing a lullaby: I gave my love a cherry.

She shakes her head: no.

I study her. “How about Samuel Hall?”

She smiles and nods.

“My name is Samuel Hall,
Samuel Hall, Samuel Hall.
My name is Samuel Hall
And I hate you one and all
you’re a bunch of buggers all
damn your eyes, damn your eyes
you’re a bunch of buggers all
damn your eyes.”

Another song to raise girls. We adored it, because it is unrepentant, horrible and had swears.

I killed a man tis said
and I left him there for dead
with a bullet in his head
damn his eyes

My cousin’s eyes widen. “I haven’t thought of that song in years.” he says. He starts singing along, remembering.

They took me to the quod
They left me there by God
With a ball and chain and rod
Damn their eyes

My cousin has two children. I guess he is not raising them with the dark songs we were raised with….

The preacher he did come
And he looked so goddamn glum
As he talked of Kingdom Come
Damn his eyes

My sister is smiling, eyes slit against the light, angry.

The sheriff he came too
With his boys all dressed in blue
They’re a bunch of buggers too
Damn their eyes

To the gallows I must go
With my friends all down below
Saying “Sam, I told you so.”
Damn their eyes

I see Nellie in the crowd
I am shouting right out loud
I shout “Nellie, ain’t you proud!
Damn your eyes!”

“Let this be my parting Nell
Hope to see you all in Hell
Hope to Hell you sizzle well
Damn your eyes!”

And my sister laughs and then she sleeps for a while, angry, angry at death.

My name is Samuel Small: http://www.wtv-zone.com/phyrst/audio/nfld/02/sam.htm
My name is Samuel Hall: https://www.youtube.com/watch?v=iSpk1t4WYNY
My name is Samuel Hall: https://www.youtube.com/watch?v=pxiPCw21T-w
and Johnny Cash: https://www.youtube.com/watch?v=Ss_KyPfM1es

This is not the suffering photo. I can’t bear to post that….

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I will fight no more

I am tired of fighting
I am tired of fighting for justice
I am tired of fighting discrimination
I am tired of fighting for health care for all

I am tired of fighting insurance companies
I am tired of fighting medicare’s contractee
I am tired of fighting for prior authorization
I am tired

I will fight no more forever

I heal
I am a healer
I am trying to heal patients
I am trying to help patients heal

I am a healer
I help heal cancer
I help heal heart disease
I help heal PTSD
I help

heal cancer
heal heart disease
heal PTSD
heal addiction

I am a healer

heal the insurance company
heal the medicare contractor
heal the pharmaceutical company
heal

heal anxiety
heal depression
heal addiction

I will fight no more forever

I heal

The legs in the photograph don’t look delicate, do they? They are strong and beautiful and powerful. I took this at the National Junior Synchronized Swimming Competition in 2009. Those girls on the edge of being women are strong, they are a team, they work and play together. They have the skills and the strength to lift their bodies out of the water that far using their arms… think about the practice and strength needed to do that. We all want to heal and create fun and play and beauty. Let’s work as a team.

also on everything2.com

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Songs to raise girls: Pack up your sorrows

This song interests me. It is the fourth in my series about the songs that my sister and I learned growing up.

When we recorded our family songs, my sister said she liked it. I said, I think it is creepy, with that juxtaposition of a sweet tune and then words that are not so sweet.

No use cryin’
Talking to a stranger
Namin’ the sorrows you’ve seen

Oh, ’cause there are
Too many bad times
Too many sad times
Nobody knows what you mean

If somehow
You could pack up your sorrows
And give them all to me

You would lose them
I know how to use them
Give them all to me

The line that bothered me was “I know how to use them”. What does that mean? Use them for what?

No use ramblin’
Walkin’ in the shadows
Trailin’ a wanderin’ star

No one beside you
No one to hide you
An’ nobody knows where you are

Ah, if somehow
You could pack up your sorrows
And give them all to me

You would lose them
I know how to use them
Give them all to me

And how could you give your sorrows to someone else? The singer is offering to listen to sorrows but also take them away. “You would lose them.” And then the singer “knows how to use them”.

No use roamin’
Walking by the roadside
Seekin’ a satisfied mind

Ah, ’cause there are
Too many highways
Too many byways
Nobody’s walkin’ behind

Ah, if somehow
You could pack up your sorrows
And give them all to me

You would lose them
I know how to use them
Give them all to me

I never got around to asking my sister if it was the tune she liked or the words or what it meant to her. I chose to play that recording at her Washington memorial. I could not go to her California memorial because I was too ill. My father had terrible emphysema and was on oxygen. I thought I had pertussis but it turned out to be systemic strep A, which hurts. At any rate, I was too sick to travel. Her Washington Memorial was a month or two later, when I was well enough to organize it…..

You would lose them
I know how to use them
Give them all to me

It is by Pauline Baez. The version by Richard and Mimi Farina is the one I’m familiar with, so my parents probably had the record:Β  https://www.youtube.com/watch?v=U4LbU8w7Th4.

Joan Baez, Pauline and Mimi Farina were sisters. Joan Baez recorded it https://www.youtube.com/watch?v=NAMe1bRW8Ao. So did Peter, Paul and Mary: https://www.youtube.com/watch?v=IVxNleqVpx4.

And so did Johnny Cash and June Carter: https://www.youtube.com/watch?v=_ctVhDEuTYE

The picture is a music party at my house in 2009, my father seated and Andy Makie on harmonica, Jack Reid standing with the guitar.