unbearable

each time
I think
I can’t bear it

it hurts too much

you are hitting me when I am down

but then I know
that I have come too close

icarus to the sun

you melt the wax from my wings
impassive
as I fall
from the sky

you forget
I forget
that the sea is my true element

not the air

I fall into the sea

I am safe
no wings
no air
no burning sun
just the depths
my tail is back
and the painful split is healed

I swim
down to the depths

I remember
that you torch me
because it is unbearable
to be loved

you stand on shore
apollo
bright and beautiful

I wonder if you will call me forth
from the froth

I wonder if I will come
forth

Adverse Childhood Experiences 4: Psychophysiological Illness

I went to the 46th Annual OHSU Primary Care Review, held at the Sentinel Hotel in Portland, Oregon last week.

It was excellent. It was surreal since the Sentinel Hotel started as a 1923 Elks’ Club and the satyr cupid friezes kept distracting me with the marble penises and war chariots during the lecture updating us on urinary incontinence.

Three lectures that I went to talked about Adverse Childhood Experiences.

This is the first conference that I’ve been to that anyone has talked about that study since I heard about it, in about 2005. I have not been to a lot of big conferences over the last few years because I opened my own clinic and money was tight.

Anyhow, the study is creeping into consciousness.

In the mornings, we had the big lectures in a large hall. There were three break out sessions in the afternoon, held in the main meeting, billiard room, club room and library. We all joked about Colonel Mustard and candlesticks.

A gastroenterologist, Dr. David Clarke, gave a two hour session titled “Hidden Stresses and Unexplained Symptoms II”.

Objectives:
1. How to uncover the cause of an illness when diagnostic tests are normal.
2. How to find hidden psychosocial stresses that are responsible for physical symptoms.
3. The process used to achieve successful outcomes in stress-related illness.

He talked about childhood stress. That if someone had a really difficult childhood:
“Surviving a dysfunction home is a heroic act and produces individuals who are:
a. reliable and get things done
b. detail-oriented
c. Perfectionist
d. Hard-working
e. Compassionate”

So what is the down side? “Surviving a dysfunctional home also produces emotional consequences that may lead to :
a. Long-term relationships with partners who treat you poorly.
b. Addictions to nicotine, Alcohol, Drugs, Food, Sex, Gambling, Work, Shopping, Exercise.
c. Quick Temper or being violence prone
d. Anorexia and/or bulimia
e. Mental health problems such as nervous breakdown or suicide attempts
f. Sacrificing your own needs to help others
g. Self-mutilation
h. Learning not to express or feel your emotions.”

Got that? Right. Not everyone, not all the time, but the adverse childhood experiences add up. These reliable individuals may eventually get enough positive feedback to decide that they deserve a relationship that is actually good. They may get angry about their childhood or past bad treatment. “They may have a really hard time expressing that anger because they spent years learning how to suppress emotion and the feelings may be directed at people for whom there is still some caring. When there is enough of this anger present it can cause physical symptoms that can be mild or severe or anywhere in between.”

Let me give two examples from my own practice. I can’t remember their names or the details, so I am making those up: no hipaa violation.

The first was an elderly woman who came in with her husband for stomach pain. We started with a careful history. We tested for helicobacter pylori. We tried ranitidine. We tried omeprazole. We studied her diet and did an ultrasound to rule out gallbladder disease.

At the third visit I was starting to talk about an upper endoscopy. This was more than 15 years ago, back when we did not start with a CT scan. Her husband said, “Doctor, is there anything else it could be?”

I was surprised. “Well, yes. Depression is on the diagnosis list. Sometimes depression can present as stomach pain. Could you be depressed?”

My elderly lady covered her face with her hands, started crying and said, “I try not to be!” while her husband nodded.

We cancelled the endoscopy. I said it really was not something to be ashamed of and we talked about therapy. She did not want talk therapy and we tried paxil. She came back in two weeks, and already she and her husband were brighter and relieved.

Second case: again, stomach pain, this time in a four year old. Mom brought her in.

I did a history and did a gentle exam. The exam was normal. Her stomach was not hurting now. She wouldn’t say anything.

We established that the stomach pain occurred on week days only, not on the weekend. In fact, usually at the after school daycare, not in school.

“Is there a time at the school daycare that she has stomach pain?” Mom was shaking her head when big sister piped up.

“It happens before recess.” Mom and I turned to stare at the six year old.

I said, “What happens at recess?”

“The big kids knock her down,” said big sister, pissed. “I try to stop them, but they are bigger than me. She’s scared. The teachers don’t see.”

“Oh. Thank you for telling us!” Little sister was crying and mom hugged her and big sister. Mom did not need instruction at that point. She called me a few days later. She talked to the daycare, they watched and the four year old was protected. Her stomach stopped hurting.

Dr. Clarke also described a case, where driving through a town would trigger four days of nausea and vomiting that required hospitalization. This had been going on for 15 years. He figured out why that particular town was a trigger: when the patient recognized the why, he was able to go for therapy.

People aren’t lying about these illness, they are not making them up. Doctors have called it somatization, but really it is the body holding the emotions until the person is safe enough to deal with them. Doctors need to learn how to recognize this and help with respect instead of stigmatization and dismissal.

I hope that more doctors learn soon…

Dr. Clarke’s list for further reading is below. I don’t have any of these yet, but they are on my wish list.

They can’t find anything wrong!, by David Clarke, MD. See also www.stressillness.com

Psychophysiologic Disorders Association: www.ppdassociation.org

Caring for Patients, Alan Barbour, MD

Unlearn Your Pain, Howard Schubiner, MD

Pathways to Pain Relief, Frances Anderson PhD and Eric Sherman PhD

Ted talk about ACE scores: http://www.acesconnection.com/blog/nadine-burke-harris-how-childhood-trauma-affects-health-across-a-lifetime-16-min

Lentils with wilted spinach

Made this up yesterday:

dried lentils
onion
2 cans organic garbanzo beans
garlic
salt
pepper
olive oil
butter
sesame oil
white balsamic vinegar*

Boil the dried lentils until just tender.
While they are boiling, chop the onion and sauteed it in the olive oil and butter. Leave out the butter for vegetarian/vegan folks. Caramelize the onion a little. Add the garlic for the last minute.
Drain the lentils, place in a heat proof bowl, add the onions and garlic, add the two drained cans of garbanzo beans.
Put washed spinach in the heated frying pan and cooked it until it is just wilted. Add that to the salad.
Add vinegar, sesame oil, salt and pepper to taste.
Enjoy!

* I used white balsamic because it was in front. Use whatever vinegar you like!
Published on everything.com today too.

 

Molting

I am growing
My shell hurts
It hurts it hurts!
I cannot shed it
I try and try and try
I fight
I seek allies and help
I fight
One year, two years, nearly three

I’m free
My shell suddenly releases and slides off
I can feel my soft body expand
To my real size
Bigger
Joy!

Oh!
They’re attacking!
Why why!
My brothers! My sisters!
No!
Your claws hurt!
They are cutting me
Ow ow stop why!

I run
Scuttle sideways
Soft and clumsy
Hide
In the mud

Why why?
Oh, my wounds ache
Stabbed
By multiple claws
Deepest pain
In my heart
At this betrayal.

I hide
I sit
I think

It was so hard
To shed my shell
Why would they attack?

Oh!
Their shells hurt too!
Their words
They were grabbing me
To try to see how I’d shed my shell
They were desperate
Oh they must be in such pain!

Can I forgive them?
Do they know not what they do?

I hide
I sit
I think
I heal

My shell is strong now
I am bigger

I will go forth
And see who is trying to shed their shell
I will try to protect the newly molted.

Between trapezes

Two and a half years
Between trapezes

Letting go is hard
Enough
But then to hang
Wait for the next
On Faith
When you can’t see your way
After a while you aren’t
Flying through the air
But falling

Falling
And screaming inside

Free fall
For hours
Days weeks years

In the company of angels
Letting go
Calls the angels
I dream of angels
Falling in a black void

And after a while
You don’t want to fall anymore
And you understand
Those who end it
It takes great strength
To hold on to the idea
That it will end.

Two and a half years
And suddenly my hands are solid
Not falling
Swinging

Joy wells up
My mind is freed
From the hard work
Of falling and screaming
And I am swinging in the air
Safe

Color is back
Sensation
Sound
Music
Taste
Food melts in my mouth

Who would not be manic?

previously published on everything2.com in 2010, written in mid-2000s.

Dark sky with stars

Yesterday I had my “Armour suit”Β  massage at 4:00.

Sometimes during the massage I space out and go elsewhere. I don’t know if it is falling asleep. My practitioner knows when I am gone, because he is telling me to roll my leg to the left against resistance and I will just stop in the middle. I usually see pictures and tell him what I saw.

Yesterday I saw a dream that I had years ago.

I dreamed that I was looking through a window and the sky was black, with stars.Β  The stars started to fall. The stars were all angels, all falling, slowly, down. I wanted to ask the angels, “Why do you have to fall?” but I was frightened. I was terrified. Because all of the angels were falling: every one. Slipping slowly down the sky.

Then I saw their faces. They were not afraid or angry or resisting. They all had expressions of acceptance and peace.

In the dream then there was no window between me and the angels. I was in the dark too and falling slowly. I did not resist. I knew I needed to let myself fall, like the angels. We all must let go and fall. I was crying even as I accepted it.

I wonder why the angels were made to fall. I think they fall for us, to show us acceptance and love.

Demon Chainers

And you thought the hard work was over
Finding your demons
Facing them
Adopting them
Comforting them
Learning to love the parts that no one loved
That you hid as a child
Mothering your own unloved self
Fathering the parts he couldn’t love
And to surface knowing that you are a child of God
And lovable
Only to be attacked
With a concerted effort
To return you to what you were before

Don’t be frightened enough to give up
You are right
You are still a child of God
Lovable
In your wholeness
Talents and faults

Those who attack
Feel their demons
Clamoring at them
Clawing
When you learned to love your demons
Theirs want to be loved too
So badly
But their keepers are frightened
They are pressing their demons back into the depths
Desperate
Attack you for you have made them feel their sorrows
All unaware

Seek those who have also
Dealt with their demons
And they will welcome you
You are not crazy
To feel the euphoria
Of surfacing
But do not get carried away
And be kind to the demon chainers
Remember where you were before.

8/16/05

Trust in the dark

Writing201’s prompt today is trust. This article in the NY Times about how there is no right way to grieve moves me: http://opinionator.blogs.nytimes.com/2015/01/10/getting-grief-right/?_r=0

Trust in the dark

Oh Beloved
   Help me to trust in the dark
      Help me to take each step
         Down into grief
            As needed
Oh Beloved
   Help me walk in the caverns of despair
      Each step slow
         As if I walk through molasses
            The air is thickened
               My chest hurts
Oh Beloved
   Help me to trust you
      That just as I descend into grief
         That just as I move through despair
            That the steps will someday lead up again
               That I will rise and spring will come
Oh Beloved
   Help me to thank you
      For tears and joy