Work again

I have been wondering whether to try to work again. It’s risky.

I asked the pulmonologist from Swedish Hospital if there was any way to keep from getting pneumonia number five. “We don’t know.” Is it safe for me to return to work? “We don’t know.” I like the plural in the answer, is he speaking for pulmonologists or Swedish or what? Anyhow, the risk is pneumonia number five and death or ending up permanently on oxygen or needing a lung transplant or something stupid like that.

It’s not raining yet and I promised not to even attempt to return to work until it rains.

I saw my cardiologist yesterday. He thinks I should return to work. Early on he said that I am smart, “like one of those old fashioned internists who read everything.” I laughed, because yes, I am a science geek. At the next visit he said, “The family doctors aren’t always as thorough as they could be.” I replied, “I don’t know, after all, I’m a Family Practice Doctor.” “Oh.” he said, “I thought you were an internist.” Which made me laugh because it’s a sort of back handed compliment. Cardiologists do a three year internal medicine training and then more years of sub specialty to become a cardiologist. Most specialists seem to scorn Family Practice a bit, though not all. And I have definitely had specialists ask me for help. A perinatologist: “How do I help people stop smoking?” I laughed at that, too, and replied, “Do you want the five minute , the ten minute, the thirty minute or the one hour lecture?” A med-peds doc asks me to put a cast on a child’s arm because even though she is board certified in internal medicine and pediatrics, she has almost no orthopedic training. I was at that clinic to see obstetric patients that day, but was happy to do the cast too. I love the broad training and the infinite variety of rural Family Practice. It is SO INTERESTING and OFTEN FUN THOUGH NOT ALWAYS. Sometimes it’s sad.

Here is an article about a physician doing what I want to do: https://nymag.com/intelligencer/article/long-covid-treatment-lisa-sanders.html. She thrives on complexity, she thrives on diagnostic puzzles and she writes the column that the television series “House” was based on. When I watched House, what I noticed was the nearly all of the patients on the show were either leaving something out or lying. In reality, I think it’s just that sometimes we need a lot of time to pull together the complex picture and clues. I always pay attention to the pieces of the puzzle that do not fit and sometimes those are the key to finding a diagnosis that is unexpected. Dr. Sanders spends an hour with a new patient. That is what I did in my clinic for the last decade, because that hour gave me so much information and it allows people to feel heard. A ten or fifteen minute visit doesn’t let people speak. It’s slam bam here is your prescription ma’am. What I see in the multitude of notes from all the doctors I’ve seen since 2014 is that they leave most of the conversation out of the note. Things I think are important. I think most of the clinic notes about me are crap and the physician is not listening and doesn’t know what to do. I include the stuff that doesn’t fit and doesn’t seem to make sense in the notes I write. Patient appreciated, when I gave them their note at the end of the visit. “You got all that?” Oh, yes, I tried.

One of the Long Covid symptoms that Dr. Sanders mentions is people “feeling like they are trembling inside.” I’ve seen that before Covid-19. That was a symptom that I did not pin down in a particular patient, but now there is more than one person complaining of the same thing. Really, why don’t physicians include those complaints? It’s egotism to cut out anything you don’t understand and most patients want help so are motivated not to lie. Ok, they might admit that they’ve been out of their blood pressure medicine for two weeks and that’s why their blood pressure is too high, or they’ve been drinking mochas and that’s why their blood sugar is way too high, but they are really in to get help. I think it is a terrible disservice not to document what they say, even if it’s not understood and the physician thinks it’s unrelated to their specialty and they don’t know what to do.

So: I want to do a Long Covid Clinic, with an hour for the first visit, and longer than usual follow ups. Part time because of my lungs and the fatigue. We shall see, right? I am going to look for grants to help set this up.

Think of how much work went in to this statue and this church. The Basilica di San Marco took at least 400 years to build and decorate!

Comfortable with angles

I am thinking about monsters
That I am comfortable with the monsters
in my dreams
but terrified by the angels.
Though I type angles.

But I also dream that all the angels fall
all are made to fall
they fall down then back up
when they fall down they burn
if they fall here
burn in the atmosphere
then they are red or black and burnt
and we think they are devils: monsters.

If angels are monsters
and monsters are angels
and they go back and forth
and I type angles
because everyone makes mistakes
even angels
and to make something perfect
is an offense to the Beloved
because only the Beloved is perfect
and ineffable.

Still the angels.
I am afraid.
So was Mary, sore afraid.
Monsters are easy: at worst they can kill me
and they never have
in my dreams.
And they are sad and alone and weep.
I comfort them. Which makes them afraid,
because they are not used to being loved.
I wonder if I frighten them
like the angels frighten me.

And then I can understand
a little
of why the angels frighten me so much.
I too am not used
to feeling loved.

written September 13, 2023

For the Ragtag Daily Prompt: bread winner. But I can’t eat gluten any more and my lungs are too vulnerable for the work I love. So how bread and how winner? Maybe the angels and angles and monsters will tell me.

The DSM Stew

Pyschosis
Neurosis
Babeiosis
Psittacosis

Medicine shifts
out the old, in the new
neurosis is gone
from the DSM stew

https://www.nimh.nih.gov/health/publications/understanding-psychosis

https://www.cdc.gov/parasites/babesiosis/

https://www.cdc.gov/pneumonia/atypical/psittacosis/index.html

The DSM V is the Diagnostic and Statistical Manual of Mental Disorders, volume V. The DSM III was published in 1980, DSM-IV in 1994 and the DSM-V in 2013. Some disorders are dropped or combined with others or the criteria are changed. In the DSM-V, tolerance and overuse (formerly addiction) were combined from two disorders into one spectrum.

Medicine is always changing and updating. Before h. pylori was recognized as a cause of stomach ulcers, there was much more ulcer surgery and ulcer bleeding deaths.

I don’t know what will come out of Covid-19, but the research on the immune system and Long Covid (now called PASC) is formidable.

The DSM-V and the ICD-10 are humans categorizing things, defining diseases. They will continue to change.

For a history of the DSM, read here: https://www.psychiatry.org/psychiatrists/practice/dsm/about-dsm/history-of-the-dsm.

____________________

For the Ragtag Daily Prompt: neuroses.

The photograph is taken in September 2021, with my camera. Hypoxia and a fast heart rate makes me really anxious, but neither is considered a psychiatric disorder.

Keeper

Here is my lovely momento.

I write a poem called “In my parents’ house”.

In 1995 my mother, Helen Burling Ottaway, makes teapots with the poem on the pot. She gives me one for Christmas.

She dies of cancer in 2000. My sister chooses my poem to read at her memorial.

A friend then reads the poem at my sister’s memorial in 2012 (also cancer), because I missed the California memorial. I was sick at home with pneumonia #2.

After she dies, I am sent a box of a few things from her house. Yarn and a second teapot. My sister had one.

I give the teapot to my niece, my sister’s daughter, telling her her grandmother made it.

My mother signed things with an H inside an O.

Here is the poem:

In my parents’ house
love is dispensed in teacups

When they notice you
Pacing in some empty mood
Or with that blank deserted face
Eyes shutters into an empty mind
They say, “Would you like a cup of tea?”

The warmth of the cup in your hands
And the hot liquid, sweet and milky
On your tongue works wonders
And binds your soul to your body

When my sister is twelve
She embroiders a patch for a quilt
In yellow flosses, a cup
with steam curling upwards
And the words, “Such a comfort. TEA.”

____________________

I think my maternal family still has the quilt, with jeans patches. My grandmother Katy B handed out squares to everyone at the cabins in Ontario and we all made squares. She and my cousin sewed them together and tied the quilt.

For the Ragtag Daily Prompt: momento.