Tag Archives: music

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BIRGing in Memories

Let’s see, I am thinking of famous people, not just that I’ve seen (from a distance) but that I know or knew:

Frankie Manning, one of Whitey’s Lindyhoppers who danced lindyhop at the Savoy Ballroom in Harlem in the 1920s and 1930s. He came to teach at the Savoy Swings Again dance weekends in West Virginia in the 1980s. He came to Port Townsend, too, for the dance camps here. I got to dance with him years ago and took classes and watched demonstrations. Hooray for him!

Bernice Reagon Johnson PhD, both for being an historian at the Smithsonian and for being the leader of Sweet Honey in the Rock for 40 years, and it’s still going! Ok, I don’t know her, but she is from my Washington, DC stomping grounds and I love that group.

Darryl Davis, for being an African American man who made appointments with KKK Grand Dragons to talk to them to try to understand. And some have quit! And he’s a fabulous Baltimore blues man and he and his band played at our wedding in 1989. He ran the Centrum Blues Fest for years too.

Ted talk here and music website here: https://www.daryldavis.com/.

Musicians and activists and dancers, that seems to be who I want to BIRG about!

And the photograph is from our wedding.

For the Ragtag Daily Prompt: BIRGing.

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Sophisticated

We have the best deer. Really.

I took the photograph Tuesday night, from the garden behind the Bishop Hotel. “So what?” you say, “She’s just lying there.”

Let’s pan out.

She is on the hill up to the right. She is listening to the jazz, Johnathan Doyle and friends, first time this year playing outside on Tuesday night. She has at least one fawn, too. I spotted it in the garden on the other side of the band. Mom deer came behind the band, stopped and considered whether the jazz was up to her standards or not, and then she went to the hill. The fawn stayed hidden, back to the left of the dancers.

Mom deer stayed close to keep an eye on everyone and she listened to the jazz.

We really do have the most sophisticated deer.

Maybe next she’ll dance or try the saxophone.

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Garden

This is the Bishop Hotel in Port Townsend, yesterday evening. Next week we hope they will move the Tuesday music to the garden, though it was wonderful indoors too yesterday. The garden patio is lovely, foxglove and iris in this shot.

Inside: Jack Dwyer and George Radebaugh playing wonderful jazz.

For Cee’s Flower of the Day.

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Working theory

I attended two Zoom one hour programs on Long Covid this week.

Thursday from the University of Arizona, 330 people logged on, hard science with thirty minutes of information about Mast Cell Activation Syndrome. They said 17% of the population, which is huge, if it’s correct. This is not mastocytosis, the cancer. This is the immune system going rather batshit. Though I would frame it differently, as the immune system fighting a really difficult battle.

Friday from the University of Washington. I don’t know how many were logged on. This was at a much more aimed right at the physicians level. People sent in questions and they collated and gave answers. They promised to answer some of the questions later on. My question was whether a high Adverse Childhood Experience Score predisposed to Mast Cell Activation and they did not address that.

So mast cells apparently can produce over 1000 different signals: cytokines, histamines, proteases and I don’t know what all. They are all over our bodies (are you creeped out? I am a little.) near the boundaries: skin, nose, gastrointestinal tract, genitals. They produce different signals depending on what is happening. The Thursday researcher basically said that they could affect nearly any system in the body.

I’ve heard of mastocytosis and even had a patient with it, but Mast Cell Activation Syndrome was barely on my radar. I am not sure if 17% of the population is at risk or has it. It is tricky to diagnose, because the best lab test is a rather tricky and rare one, and it is sort of an orphan illness: few doctors know about it and it does not fit neatly into any specialties. Patients have seen an average of ten specialists before they get diagnosed. Hmmm. Sounds familiar.

This researcher has a ton of papers out, that I have not started reading yet. MCAS is implicated in Ehlers-Danlos, a connective tissue disease and in ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome) as well as POTS (postural orthostatic tachycardia syndrome) and can get triggered by Covid-19. Well.

The good thing is that treatment is quieting the sympathetic nervous system to let the parasympathetic take over. The sympathetic is the fight or flight hyper one. Parasympathetic is the rest, relax, mellow out, slow heart rate, blood pressure down, digestion and quiet one. I think United States culture is crazy fight or flight most of the time (We’re number one!– so what?) and the pandemic has put the whole world into fight or flight mode. Crazy.

Back in Family Medicine residency, 1993-96, I had a number of ME/CFS, chronic fatigue patients. They tended to be hyper sensitive to medicines and have all sorts of symptoms which were fluid and changable and difficult to pin down. What I noticed though is that many of them had been super high acheivers or working multiple jobs or crazy high stress, until they hit some sort of wall. Often an infection but not always. The ones I saw wanted to go back to working 18 hours a day. I said, “Um, that’s how you got this, I do not think that is a good goal.” This often pissed people off. Even back then, I thought that chronic fatigue was a body reset, where the body rebels, some sort of switch is thrown, and people rest whether they want to or not. Some do recover but it can take ages. The Thursday speaker seems to think it’s the mast cells doing this.

The UW speakers were careful. They said we do not know how long Long Covid lasts. One said they do not like to diagnose POTS, because POTS is usually permanent and the Long Covid tachycardia usually resolves. They are seeing people who got sick 2-3 years ago and are still sick, but they also have people who have recovered in 9-12 months. They do not know if patients are entirely recovered or whether there will be other problems later. They also aren’t sure that the chronic fatigue like symptoms are the same as the rest of the ME/CFS. Remember when dementia was Alzheimer’s? Now there are all sorts of different dementia diagnoses, Lewy body, frontotemporal, Huntington’s, stroke dementia, alcoholic dementia, Parkinson’s, Alzheimer’s, and others. When I was in residency, we had hepatitis A, hepatitis B and non A non B. Now we are up to G or beyond. Medicine changes and it’s moving as fast as possible for both acute Covid-19 and Long Covid.

The mast cell reasearcher talked about getting the sympathetic and parasympathetic nervous systems back in balance. I think maybe we ALL need that. Every person in the whole world. One way to quiet the sympathetic nervous system is to slow your breathing. Try it. For five minutes, or three minutes. Slow breath in for a count of four or five and slow breath out for a count of five. Let your brain roam around and fuss, but let go of each thought as it passes by and return to counting and breathing.

Slow in, slow out.

Practice and heal.

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The musicians are Johnathan Doyle and a friend. They were fabulous, last Tuesday at the Bishop Hotel.

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Holding a sing

My parents did not do karaoke. They held sings.

In college, late 1950s and on, they would have a sing. My father played guitar, they would invite all their friends, and sing folk songs. They used the book in the photograph, Song Fest, edited by Dick and Beth Best. Last published in 1955, I think.

I have no memory of the book itself. However, a friend of my father’s bound his copy in 2003 in leather. When I saw it, I searched on line and bought my own. It has words AND MUSIC and a chord progression. When I opened it, I know a song from about every third or fourth page.

My sister and I memorized the songs. We both had hundreds of songs memorized, many from this book, or from records. We photocopied a Beatles record insert and memorized all the words on a long car trip once.

I don’t know much about the Intercollegiate Outing Club Association, but there are still copies of Song Fest on line. My parents had to edit a number of the songs for two small children, since we were picking them up. They chose silly songs, “Dead Girl Songs” (Banks of the Ohio, Long Black Veil, My Darling Clementine, Cockles and Mussels) and work/protest songs. They rarely sang sentimental songs, except for lullabies. I loved to sing. We used to have reel to reel tape with my little sister singing a fifth off when she was three or four, but it disintegrated.

My father, Malcolm Kenyon Ottaway, was a fabulous musician. He sang in prep school, in college, in choruses on the east coast, in Rainshadow Chorale from 1997 until his death in 2013. He loved Bach and the Band and loved to encourage other people to sing. He was in our Community Chorus for years, to help new singers. People must try out for Rainshadow Chorale, but Community Chorus is for anyone who wants to join and sing. After my father died, men would say, “I would try to stand near your father in Community Chorus, to help learn the part. He was so good.”

Here is one of the lullabies from Song Fest:

At the Sings, my parents would start with a song and then go around the room, asking other people to pick songs. Sometimes people were shy, but my folks were really good at getting people to sing. Sometimes we’d have multiple guitars and other instruments. My sister and I had favorite songs too!

For the Ragtag Daily Prompt: karaoke.