I went to the 46th Annual OHSU Primary Care Review, held at the Sentinel Hotel in Portland, Oregon last week.
It was excellent. It was surreal since the Sentinel Hotel started as a 1923 Elks’ Club and the satyr cupid friezes kept distracting me with the marble penises and war chariots during the lecture updating us on urinary incontinence.
Three lectures that I went to talked about Adverse Childhood Experiences.
This is the first conference that I’ve been to that anyone has talked about that study since I heard about it, in about 2005. I have not been to a lot of big conferences over the last few years because I opened my own clinic and money was tight.
Anyhow, the study is creeping into consciousness.
In the mornings, we had the big lectures in a large hall. There were three break out sessions in the afternoon, held in the main meeting, billiard room, club room and library. We all joked about Colonel Mustard and candlesticks.
A gastroenterologist, Dr. David Clarke, gave a two hour session titled “Hidden Stresses and Unexplained Symptoms II”.
Objectives:
1. How to uncover the cause of an illness when diagnostic tests are normal.
2. How to find hidden psychosocial stresses that are responsible for physical symptoms.
3. The process used to achieve successful outcomes in stress-related illness.
He talked about childhood stress. That if someone had a really difficult childhood:
“Surviving a dysfunction home is a heroic act and produces individuals who are:
a. reliable and get things done
b. detail-oriented
c. Perfectionist
d. Hard-working
e. Compassionate”
So what is the down side? “Surviving a dysfunctional home also produces emotional consequences that may lead to :
a. Long-term relationships with partners who treat you poorly.
b. Addictions to nicotine, Alcohol, Drugs, Food, Sex, Gambling, Work, Shopping, Exercise.
c. Quick Temper or being violence prone
d. Anorexia and/or bulimia
e. Mental health problems such as nervous breakdown or suicide attempts
f. Sacrificing your own needs to help others
g. Self-mutilation
h. Learning not to express or feel your emotions.”
Got that? Right. Not everyone, not all the time, but the adverse childhood experiences add up. These reliable individuals may eventually get enough positive feedback to decide that they deserve a relationship that is actually good. They may get angry about their childhood or past bad treatment. “They may have a really hard time expressing that anger because they spent years learning how to suppress emotion and the feelings may be directed at people for whom there is still some caring. When there is enough of this anger present it can cause physical symptoms that can be mild or severe or anywhere in between.”
Let me give two examples from my own practice. I can’t remember their names or the details, so I am making those up: no hipaa violation.
The first was an elderly woman who came in with her husband for stomach pain. We started with a careful history. We tested for helicobacter pylori. We tried ranitidine. We tried omeprazole. We studied her diet and did an ultrasound to rule out gallbladder disease.
At the third visit I was starting to talk about an upper endoscopy. This was more than 15 years ago, back when we did not start with a CT scan. Her husband said, “Doctor, is there anything else it could be?”
I was surprised. “Well, yes. Depression is on the diagnosis list. Sometimes depression can present as stomach pain. Could you be depressed?”
My elderly lady covered her face with her hands, started crying and said, “I try not to be!” while her husband nodded.
We cancelled the endoscopy. I said it really was not something to be ashamed of and we talked about therapy. She did not want talk therapy and we tried paxil. She came back in two weeks, and already she and her husband were brighter and relieved.
Second case: again, stomach pain, this time in a four year old. Mom brought her in.
I did a history and did a gentle exam. The exam was normal. Her stomach was not hurting now. She wouldn’t say anything.
We established that the stomach pain occurred on week days only, not on the weekend. In fact, usually at the after school daycare, not in school.
“Is there a time at the school daycare that she has stomach pain?” Mom was shaking her head when big sister piped up.
“It happens before recess.” Mom and I turned to stare at the six year old.
I said, “What happens at recess?”
“The big kids knock her down,” said big sister, pissed. “I try to stop them, but they are bigger than me. She’s scared. The teachers don’t see.”
“Oh. Thank you for telling us!” Little sister was crying and mom hugged her and big sister. Mom did not need instruction at that point. She called me a few days later. She talked to the daycare, they watched and the four year old was protected. Her stomach stopped hurting.
Dr. Clarke also described a case, where driving through a town would trigger four days of nausea and vomiting that required hospitalization. This had been going on for 15 years. He figured out why that particular town was a trigger: when the patient recognized the why, he was able to go for therapy.
People aren’t lying about these illness, they are not making them up. Doctors have called it somatization, but really it is the body holding the emotions until the person is safe enough to deal with them. Doctors need to learn how to recognize this and help with respect instead of stigmatization and dismissal.
I hope that more doctors learn soon…
Dr. Clarke’s list for further reading is below. I don’t have any of these yet, but they are on my wish list.
They can’t find anything wrong!, by David Clarke, MD. See also www.stressillness.com
Psychophysiologic Disorders Association: www.ppdassociation.org
Caring for Patients, Alan Barbour, MD
Unlearn Your Pain, Howard Schubiner, MD
Pathways to Pain Relief, Frances Anderson PhD and Eric Sherman PhD
Ted talk about ACE scores: http://www.acesconnection.com/blog/nadine-burke-harris-how-childhood-trauma-affects-health-across-a-lifetime-16-min
Important post, thank you for putting it on The poetry Commons! How else would I have found it. The TED talk was excellent. Change is very slow. Way back in 1990s I worked on a diploma course called Human Relations and Counseling – not a course for counselors but for doctors, teachers, even bank managers, any professional willing to recognize that emotional life has real effects. It seems very difficult to convince people that such an integrated approach is the strong option, not an add-on. I liked how Nadine Burke Harris said she thinks we marginalize the issue because it does apply to us. Now will look at the other links too.
thank you
Very interesting, and brings many questions. Wishing there were actual doctors here that treated patients as you seem to do.
Hopefully there are, just have to find them….
True. Easier said than done. But I’m thinking the further away from the urban and suburban settings I go, the more likely I’ll find that good old country doctor.
Thank you for commenting on my poem. I can relate to your post. Well written. I am now following your blog.
” but really it is the body holding the emotions until the person is safe enough to deal with them”
I had just started working with a young lady a couple months ago. She had been in foster care and now was living with distant family members. She was “well behaved” and polite, eager to please, but extremely shy. Our first few meetings she could only manage to write responses to my questions for me to read. She progressed to being able to write and then read her responses to me. One week she joked about burning herself with an iron on accident. A couple of weeks ago I happened to be at her school and she sought me out. She told me that she had been seeing hallucinations for two years and had been self mutilating in various ways for a while. The girl was hospitalized for a few days and is back home. There is a good deal of work for her to do but she has a safe enough place now to do it in. Most of the time in my work it is not about me being brilliant or figuring out the perfect response. It is more about just letting people be who they are and me not try and fix them. Their souls already know what they need. One of my teachers used to caution that many times the hardest work is making yourself do nothing. Very nice Good Doctor!
I think that listening is the most helpful thing I do. And thank you for the comment and the work you do!
It is it think. There is so much healing power it just being seen an listened to by someone.
Thank you for posting your article. It will go a long way toward folks who like to believe that everything is in our heads and a positive attitude will make the aches go away. I believe in therapy. You just can’t suppress an unhappy/traumatic childhood without it leaking out later physically or mentally.
Thank you!
What an alarming/enlightening/sad/revealing/hopeful post. I hope that more doctors learn soon, too, although I think there would have to be a major overhaul of medical education for that to happen. I think I read all your posts on this subject and find myself having an “aha!” moment. I grew up in a family like yours, too, and would be curious to do this test you spoke of in one of the posts, under medical guidance of course. It might explain a few things. So interesting and as you said in one of your other posts, so sad that the sins of our fathers/mothers truly are visited on their children.
I found the original survey on the CDC website, but not the rules for scoring. There is a simplified one on the web, but it is much simpler and doesn’t replicate the original.
I have always just wanted to protect kids and really you can’t do that without helping the adults….
Here are the original surveys:
http://www.cdc.gov/violenceprevention/acestudy/questionnaires.html
hi doc yes I too have turned my tears inward, outward and for 6 yrs on Lucy the elephant. I was going to therapy cuz i cry a lot. now here http://barbaragreenemannand lucy.wordpress.com what would your patients feel about this? I say excommunicate edmonton, they are haunted by aliens.
b
Your link won’t load for me…..
https://barbaragreenemannandlucy.wordpress.com/ well I gave you a star so cheer up one dat I’ll tell; you the grewsome Dr. story so remain pure and send out love b
ko let me know if it works thanks wizer
it works, thanks.