I’ve been reading journal articles about Long Covid. The three primary symptoms are fatigue, shortness of breath and brain symptoms. Mostly brain fog. Then there is a long long list of other symptoms.
For the fatigue, the journals are recommended graded increase in activity “without triggering a fatigue crash”.
Now, that is all well and good, except it’s a moving target. The amount of activity one can do is NOT static.
I have something that caused CFS-ME. My fast twitch muscles came back on line sometime between Christmas and New Years. GREAT! Then I was helping a sick friend until January ninth. I flew home and then there is all the unpacking and bills and catching up and sweeping up catfur dust elephants. Finally I got to exercise. I walked a couple miles on the beach one day and then around town with a friend the next.
Which crashed me. The third day I spent lying on the couch. My muscles basically were ALL hurting and saying, “We hate you.”
The fast twitch are back on line but they are weak as newborn kittens. For the first two days I felt strong and normal. The third day I felt like a steamroller had gone over me.
So did I do the wrong thing? Well, no. I won’t know what I can and can’t do it unless I do it, right? After four rounds (or more) of pneumonia with muscle weirdness, I can tell when it’s improving. Then I have to rebuild the working muscles. Also my slow twitch posture muscles are frankly pissed off and have been doing all the work and are not very interested in working with the fast twitch when they first come on line. “Where have YOU been? We’ve been doing YOUR work AND OURS.” I have to learn to walk again.
I was doing well with pulmonary rehab in the fall, building up on the treadmill twice a week, until I got my flu shot and then my Covid booster. Well, they are supposed to raise antibodies. Unfortunately they raised the ones that make my fast twitch muscles not work. Muscle blocker antibodies. I am just glad that my slow twitch work, because I sympathize hugely with the people who end up lying in bed. It’s still inconvenient, difficult to explain and annoying.
At any rate, gentle graded increase in activity is all very well as advice. But do you control everything that happens in your life? I don’t. Someone gets sick, the mail goes awry, a billing company changed their address and I didn’t get the memo. It all takes energy. Some days I am going to overdo, especially when I feel better. And it rather sucks to lie around the next day, but it is ok.
Over the last week I had a friend up from Portland. We walked three days running. On the third day we walked paths from my house to the lighthouse and back. About 5-6 miles. I was not quite limping when I got home, but I knew I could rest the next day. My muscles got HUNGRY and are continuing to improve.
So when your doctor tells you “graded activity to avoid fatigue crashes”, remember that it is not wholly controllable because life is not wholly controllable. Some days you will do great and others, well, hmmm. That was too much.
I used to tell my patients “everything in moderation…including moderation.” While you want to stay within your limits to build and not tear down, the only way to know those limits is to bump into them now and then. With most conditions, that means a minor and short-lived setback. With long COVID we are still learning and individual variations seem huge. Hang in there! You said it well.
Thank you very much! It is confusing that the energy levels vary day to day. Maybe they are affected by the tides and full moon! It is annoying to not know.
After six months I’m finally feeling like myself. Seriously, I woke up Saturday and I was me. Huh? It’s so true. There is no measure, little is known.
I am so glad! The literature is saying that some people get better around seven months.
That seems to be true for me. Probiotics seem to have helped me, too.
Well said. They is no measure.