betrayed by my own brain

I took a very long nap after pulmonary rehab yesterday, pushed myself on the treadmill. I was tired. So then at midnight I can’t sleep, feel sad and sappy, get up, write Sorrow.

Then my own brain starts making fun of me.

It plays a soundtrack:

Yeah, ok, so my OWN BRAIN is making fun of me feeling heartbroken. Ok, ok, I am over it for this night. Let’s move on, I think I will manifest this instead. Yeah. I need a skintight dress and some heavy makeup, so there.

The header photograph is from Centrum’s Blues Fest on Saturday. Fabulous and fun!

small part

there is a part of each of us
that we don’t control
a stubborn stubborn voice
inside that won’t do what we want

insisting: the person promised
we would always be friends
the person promised
so they could come back

yes, I say, but that doesn’t mean
they WILL come back
people can lie
people can refuse to change

they promised
insists that stubborn voice
which will not give up
ever

and no matter what I say
I can’t shake her

she waits
and waits

________________

For the RDP: understand.

Unexpected hero

When I first think about divorce, I call my sister.

I say, “I am thinking about a divorce.”

She replies, “YOU don’t want to be a single mom.”

I think, well, crap, that is true. Me: “I AM a single mom. It’s just that one of them is FIFTY.”

My sister proceeds to tell me how difficult it is to be a single mother.

I have to self examine my OWN prejudices against single mothers.

Then I wade in, to solo and couples counseling, for a year. My ex fires our couples counselor after a YEAR. He says the counselor is on my side. “We have been talking to him for a year!” I protest.

“I want a new one,” says my then husband.

I find a new one. I am filling out the paperwork. It asks, what is your goal?

That is the moment I decide: I write “Amicable divorce.”

The two years before that moment, I am not sure. I am trying very very hard to see if it can be fixed. But it takes two to tango and my then husband will not tango. Not one step.

We were each attracted to something specific in the other person. My then husband did not want to work at any sort of traditional job. His father would come home angry from work for years. I loved working, always.

I was a terribly serious child, growing up in an alcoholic family, and I have food insecurity. That is, at some deep level, I always worry about whether there will be food. When I meet my then husband he says that his goal is “To have fun every day.”

This slays me. Have fun? And he WAS fun. Biking, jitterbug dancing, he was a tennis and golf pro, he was smart, well read, divorced from a marriage of convenience to a lesbian to cover so she could be a small town librarian. Really? Yes, really. I demanded to see the divorce papers before we got married. My then husband thought I was very very funny and I thought he was too.

When we divorce, people tell me he will never pay child support. He won’t stay in contact with the kids. There are a lot of opinions.

Wrong, wrong, wrong. My ex returns to school, gets a “displaced homemaker scholarship” because he was a househusband (yeah, I said he was smart). He goes to nursing school and gets an RN. “You’ve yammered about medicine at me for fourteen years, I might as well.”

He gave me hell about us living in an “old person’s” town. Then in nursing school he calls. “Hey, I’m doing a rotation. Guess what it is.”

“Don’t know, what?”

“Nursing home.”

I laugh.

“I LOVE these OLD PEOPLE.” he says. And he DOES. He is wonderful with them. He works in a nursing home for years. He gives scholarships to the medical assistants when they leave for nursing school. He brings coffee to his medical assistants and the other staff. He drives by on his day off because one elderly woman will only take her medicine if he gives it to her. He gets pianos for the nursing homes. He does memory loss concerts, where he tries to engage memory loss folks. We store music as entire songs, or entire albums, so if someone starts a song, they can often go through the whole thing. He can sometimes get someone singing who no longer can string a sentence together. Families love it.

Early in covid he calls me. “I have covid.”

“Sh-t.” I say. “Are you ok?”

“Oh, yeah. Everyone at the facility has it. Two staff didn’t so we sent them home. We are working sick because there isn’t anyone else.”

“Holy crap.”

“Yeah, it’s a little depressing. My memory loss folks can look ok at the start of the shift and are dead by the end.”

A quarter of the patients die. This is before the vaccine. My ex sails through covid, says he doesn’t feel bad, for him it’s just a cold. He says, “I miss some of them.” Yeah, holy crap.

So another hero. And he paid the child support every single month and stayed in touch with his kids in his own odd way. “Mom, he tells me about his golf shots,” says my daughter. I laugh, “Yeah. Well, he loves you.” “I don’t care about golf.” she says. “I know, me either,” I say.

The photograph was taken with my camera by my friend Amelia in 2014, I think. It is me and my ex, seven years after the divorce was final.

I read this to my ex prior to posting. Posted with his approval.

Lung swelling and long covid

I wrote this in 2017, about influenza. However, I think covid-19 can do the same thing. Part of long covid is letting the lungs really heal, which means infuriating amounts of rest and learning to watch your own pulse. Watching the pulse is easier then messing around with a pulse oximeter. The very basics of pulse is that normal beats per minute is 60 to 100. If your pulse is 70 in bed and 120 after you do the dishes, you need to go back to bed or the couch and REST.

From 2017: Influenza is different from a cold virus and different from bacterial pneumonia, because it can cause lung tissue swelling.

Think of the lungs as having a certain amount of air space. Now, think of the walls between the air spaces getting swollen and inflamed: the air space can be cut in half. What is the result?

When the air space is cut down, in half or more, the heart has to work harder. The person may be ok when they are sitting at rest, but when they get up to walk, they cannot take a deeper breath. Their heart rate will rise to make up the difference, to try to get enough oxygen from the decreased lung space to give to the active muscles.

For example, I saw a person last week who had been sick for 5 days. No fever. Her heart rate at rest was 111. Normal is 60 to 100. Her oxygen level was fine at rest. Her oxygen level would start dropping as soon as she stood up. She had also dropped 9 pounds since I had seen her last and she couldn’t afford that. I sent her to the emergency room and she was admitted, with influenza A.

I have seen more people since and taken two off work. Why? Their heart rate, the number of beats in one minute, was under 100 and their oxygen level was fine. But when I had them walk up and down a short hall three times, their heart rates jumped: to 110, 120. Tachycardia. I put them off from work, to return in a week. If they rest, the lung swelling will have a chance to go down. If they return to work and activity, it’s like running a marathon all day, heart rate of 120. The lungs won’t heal and they are liable to get a bacterial infection or another viral infection and be hospitalized or die.

I had influenza in the early 2000s. My resting heart rate went from the 60s to 100. When I returned to clinic after a week, I felt like I was dying. I put the pulse ox on my finger. My heart rate standing was 130! I had seen my physician in the hospital that morning and he’d gotten a prescription pad and wrote: GO TO BED! He said I was too sick to work and he was right. I went home. It took two months for the swelling to go down and I worried for a while that it never would. I dropped 10 pounds the first week I was sick and it stayed down for six months.

Since the problem in influenza is tissue swelling, albuterol doesn’t work. Albuterol relaxes bronchospasm, lung muscle tightness. Cough medicine doesn’t work very well either: there is not fluid to cough up. The lungs are like road rash, bruised, swollen, air spaces smaller. Steroids and prednisone don’t work. Antiviral flu medicine helps if you get it within the first 72 hours!

You can check your pulse at home. Count the number of beats in one minute. That is your heart rate. Then get up and walk until you are a little short of breath (or a lot) or your heart is going fast. Then count the rate again. If your heart rate is jumping 20-30 beats faster per minute or if it’s over 100, you need to rest until it is better. Hopefully it will only be a week, and not two months like me!


Feel free to take this to your doctor. I was not taught this: I learned it on the job.

I took the photograph, a stealthie, in June 2021, when I was still on oxygen continuously.

wrong word

you are angry you say
I don’t think those are the right words, I say
not angry? you say
bored, I say

BORED you say

Yeah, I say
Well, you say you don’t love me
You say you won’t change
You say you changed once, in the past
You say you won’t go in a church
You say you did that
You say you won’t go in a casino
You did that

I’m BORED

My first thought about the church
My first thought about the casino
Is that is clearly where I can go
If I want to avoid you

My second thought about the church
My second thought about the casino
is ICK. Why am I hanging around
someone who doesn’t love me
someone who doesn’t plan to change?

My sister and I talk
about the people who don’t change
about the people who remain the same
about the stubborn who bury their heads

We notice them shrinking
as the world changes around them
the things they are willing to do
the people they are willing to talk to
the places they are willing to go
get smaller and smaller and smaller

You dream of a small cabin in the wilderness
your brother shows up and an attacking bear
in another dream I am well and busy and happy

May all your dreams come true
my love
if you really want them to

I am well and busy and happy

are you?

__________

April 18, 2022

Wings

I try out
for a solo
singing

my director
is pleased
I am growing

she says
I am beautiful

she says
I look like a different person

she knows
a little of what I have weathered


my patient
is 86

and her husband died
in December

she misses him so

as she comes into the room
one day

she says
you look as if you have wings
and are ready to take off

and I freeze
for a moment

in surprise

that she can see
my wings.

Falling II

poem: Falling II

I can’t fall
until I let go

my cousin says that people learn
to stay away from angry people

I am hurt and then let that go
and think, yes, she is right
my cousins say over and over
that I am too angry when I’m not angry
until it makes me angry

my cousin gives good advice
I let go and stay away
it’s not my anger

I thought allopathic medicine
was where we listened to the patient
I let go of that too, disillusioned

a family member wants to be free
I let go

I let go of you slowly
I let go of coffee
I let go of sitting next to you
I let go of seeing you daily
I let go of asking
I let go of driving by

I let go of hope

I have not let go of longing

I think that I can fall
without letting go of longing

it is only a thread
like a spider’s web
thrown into the universe

I don’t think it will stop me
from falling